I guess i should start by saying how grateful I am for Matia and this website. AND hello to all of you either with or recovering from IC. I have been with Matia for over 5 months now, and can say that I'm feeling a bit, bit better (so grateful for that) BUT as many of you probably understand there is still an overwhelming amout of fear that comes with IC. I have read most of the success stories, and it is difficult finding one that matches (even though i know I'm not supposed to compare). My main symptom is intense bladder burning. I can hardly tolerate any foods or herbs without feeling like someone poured acid in there. I guess, simply put, I was just wondering if there was anyone out there that is/was like me. If anyone with intense bladder burning, anyone who could hardly tolerate any herbs, has gotten better? A little hope would go a long way. Just thought I'd reach out.
Thanks to all who are reading,
M
Not the same, but understand fear
I understand what you are going through. I have been a patient for almost 3 mths now and get very scared when I don't see much change. My symptoms though are blader pain in the sense that I can feel it when I'm walking, sitting and then I feel like I have a bowling ball between my legs by the end of the day, that is when my pain is the worst is toward afternood and end of the day. Even my bottom will hurt! Do you ever have that heavy bowling ball feeling? I read the success stories a lot too and have a couple great people that have been through the program successfully that help cheer me on. I wish I could understand better why some it works so quickly, or notice changes so quickly and some us don't. I wish we all knew that our day of success was coming soon! I just wanted you to know that I understand your fear, especially when I am in a flair!
Hope you are feeling better soon so you can be one of the success stories others read for their support.
Hang in there -
Ditto