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Hi all,
OK, I was really thinking about posting this for a long time, because I do not want to scare anyone and I know how powerful this forum can be speaking about psychological influence.
So, for everyone who might read this - anything I describe relates to me only and does not apply to you!! :) I just need some help.
I started the herbs more than a week ago. First, my dry eye syndrom worsened to the level that I almost can not open my eyes in the morning, they are all red and burning, especially my right eye. We changed the herbs almost every day, it gets worse anyway.
Second, what I had before was quite moderate pain most days (well, a year ago, I was in agony, but managed somehow to get better with accupuncutre and other naturalk stuff). After starting the herbs, my pain worsened gradually. My bladder feels irritated all the time and my frequency (which was not such a big issue before) is now insane. I have to go like every 30 minutes, sometimes more, with almost no relief. This gets worse after every dose of herbs/pros.
Third, and scary too - I developed terrible hives. They are on my hands, legs, around my waist, they itch and dissapear very slowly. Crazy thing is - most of them is where my gallbladder is, and the spot itches all the time. Seems like an allergy to something. Also, my gallbladder hurts. Not much, my eyes and bladder are worse, but it is even more frustrating.
Do I have to be a lot worse before I get better?
I would not ask here, but... I wrote to dr. B about all this and how miserable I am (I haven´t cried this much for months) and she answered that this is odd. Well, that did not help me to cope. It seems like noone knows what the heck is wrong with me. I do not blame anyone and I do not say that this is not a part of the process or something, I just really need some assurance, if anyone had the same or similar experience, anything.
Thank you!
hives, etc
Hi Aya,
I'm so sorry you're struggling after your trip to see Matia! It must be really frustrating and disheartening after such a major effort to feel worse than you did before. I hope Matia gives you some suggestions that help to ease your symptoms. It could be that your body is releasing a lot of toxins and is having trouble dealing with the power of that release. Matia should help you to feel more comfortable as your body goes through such an intense shift. Sometimes I think of it like cleaning a seriously dirty, messy room. It has to seem worse before it seems better, unearthing all the dust bunnies and spills and stains that had been swept under the rugs and furniture can be a tricky process!
I wanted to tell you that I am now in about month 10 of treatment and that there have been lots of ups and downs and doubts for me throughout this time but really in the last month especially I've been feeling SO much better- like close to normal- and that that was preceded by a brutal stretch of discomfort. This disease really does go up and down so much. I'm not counting on my current state to be my permanent state. At this point, I've realized that there's no such thing as a permanent state, but I am grateful for every pain-free moment.
On another note, in November 2010, way before I was seeing Matia, I had a very crazy hives-ish episode where I broke out in a very itchy rash all over my arms and legs for no apparent reason. It was very distressing and lasted quite some time. Nothing I did calmed the itching, it just took time to dissipate, and I had marks from the rash for about a year. I think I may have been having some major die-off and have read in Matia's dissertation that this could happen. I hope Matia can help you to get more comfortable.
Don't be shy about emailing her for follow-up advice. She may not understand the full level of your discomfort and sometimes it helps to be persistent and very specific when you email her. She's very compassionate and will definitely get back to you, but sometimes it takes your body a little while to level out again. I also know from reading this forum that you're not alone in feeling worse before feeling better, there are others who have gone through this, and it's especially hard to remain hopeful during a bad spell. You're in my thoughts, I hope your body finds some balance soon!
Claire
Aya
Hi Aya. I started with Matia mora than 3 years ago. I was bad. When i started the herbs things got so much worse that i almost left treatment. For me the pain was unbereable. Thanks God there was a another patient that i could talk to every day and she said i had to be strong if i wanted my life back. I live in Costa Rica and i had to stay at a friends in Los Angeles for 4 months just to be close to Matia because the pain was really awful. My friend used to tell me that you could not have a new kitchen if you didnot destroy the old one.Matia and her helped me to be strong, i was suicidal every day. I was one of those that needed to get worse before better. Thanks God i had them because now i have a life again. i dont cry anymore, i have sex (well sometimes :), i went back to work, but thte most important thing is that i smile again. I used to look at people and i think "why do you smile if life is so hard and painful?" But now i can do it too!!! I am not were i want to be, but i will get there someday if i keep the fight. My friend used to say "Do what Matia says". I always do, no matter what. I was soo lost before i found here. I got soo much worse trying things on my own too. Be strong please and one day you will smile again. When i was so bad i thought that was imposible, but it is!!!! you just have to find that strenght in you, dont have doubts just keep doing what you need to do, dont stop!!!
Hives
It sounds like the herbs and probiotics are killing things off and running a lot of toxins through your bladder. Could you possibly back them off to smaller doses? As for the hives, usually hives indicate an allergic reaction to something. Could it be one of the herbs? You might have to try one herb at a time to determine what is going on. Don't give up.
I started treatment about 4
I started treatment about 4 months ago. For the first two months all of my symptoms became worse to severe. I to had the itching and hives. I was just about ready to stop treatment and I started to have minimal bladder discomfort. It waxed and waned for another month but now I am having more days of feeling better than not. Dr. Brizman switched my herbs back and forth many times until they seemed to be working. I was not able to take the siberian ginseng - I tried several times but new it was not agreeing with me.
I now how difficult this is - but just hang in there - Dr. Brizman will help you - I was not a believer until recently when I have had some consistent relief. If you feel an herb is bothering you let Dr. Brizman now and maybe you have to stop it and try it again later.
Hope this helps you. You are not alone
beginning and water
Hi Alena,
I can understand your situation, it is really very hard. I feel the same.
Take care and get better!
May I ask you what brand of water do you drink?
I have tried many : aquarius, Jana, Vivien.....
Finally I found a low mineral contents water: Vera fonte in Bosco. It is an italian natural mineral water. In Hungary not so expensive, cheaper than Evian. Evian is very very expensive 300 Huf / liter.... You can imagine: 1 liter milk is cheaper than Evian water.
A great hug from Hungary!
Thank you!
Dear all,
thank you so much for your comments... We took out goldenseal and changed the protocol to RP/probiotic, and my bladder is better and so are the hives (although I am still getting them), so I think goldenseal is probably the problem. I might be allergic to it (Clueless - I think you might be right, although another point of view is that one about toxins leaving the body. I am maybe sceptical, so I call it an allergy). It has a lot of alkaloids. I calmed down a little after reading your posts, I do not feel so weird and alone in this. But...
I am really freaking out a bit again, because today I had such a strong pain in my gall bladder that I thought I will have to go to the hospital or something (hospital is the most scary place for me, so...). And the hives are the worst right on the spot where gall bladder is. This is crazy.
Has anyone had problems with gall bladder pain while getting IC? For me it is probably connected somehow, but of course, I do not understand it at all... And this attack I had today was just - wow, how much weird stuff is about to happen?!
Much more, I guess. I have tingling in my legs/feet. I have tried many herbs before, but NOTHING did this. And I am on ONE herb right now. Oh my.
Again, thank you for your warm, encouraging messages. I really needed this. I will try to survive all the weirdness, it just does not fit well with my job, that is stressful. I hope somewhere far away in the future is the healthy I so desperately need. I totally understand the remarks about stopping the treatment, I do not have any intention to do it right now, but of course, I am scared.
Zsuzsanna: I drink Aqua Bella - low mineral spring water. Sometimes I drink water for babies :), but mostly this one.
Aya, I had a lot of
Aya, I had a lot of tingling in the beginning. It was scary to the point that I initiated a contact with a neurologist to check for MS.
What helped was taking vitamin D3. It really helped, not immediately but over the course of three weeks I would say.
I did feel awful in the beginning of treatment, shortly after I started diet and thereafter, before I began taking supplements. My pain went down but my energy level sank prior to that. When I flew to LA, I was in a very weak condition. Things improved overtime.
Hi Blondy
Thank you. Well, I had lots of tingling last year when I went off the antibiotics (they made me worse, but I got that after stopping them - weird). And lost of imbalance and vertigo and feeling as if something pushed me to the left all the time - it was hard to walk straight. I do not want this to return. It was really hell. They also did MRI and some other tests for MS then, and it seemed my brain was ok at least. :)
Diet did nothing, but the herbs are potent I think. But it is crazy - I am on RP only now (and superdophillus). How can ONE damn herb do this? Or is it something else? And RP is supposed to calm things down, right? Goldenseal was killing me, so I had to stop. Maybe these are still consequences of taking it? Wow. Just hope this will be better soon. I really have to work.
Aya- So sorry. This is very
Aya- So sorry. This is very very difficult. The thing I have come to accept is that I really can't figure much of this out. WHta a relief it has been to let it go. I can only control so much. I was only on Mega and Rp recently after being on lots of different things and felt like it was bad that I wsn't taking bifido etc but it isn't really how it works. I am having a lot of muscle die-off right now only on RP, mega and 1 siberian. It builds in your body and sometimes the reactions are swift and other times they develop.
Thanks Deir. I will repeat it
Thanks Deir. I will repeat it over and over. For me, it is horrible not to understand a thing about what the heck is going on! I used to think that I kind of understand my body - ha. And, that I understand some natural remedies or how they work. Nope. This is just a leap of faith. Hard, so hard for me. I would love to know what is happening, why and when is it going to end ( I don´t mean the whole illness, I mean these herbal tricks). And geez, I would love if my gall bladder finally stopped to hurt. I feel like an old lady - who has problems with gall bladder in the age of 26?! It is enough that one of my bladders is crazy, lol.
Aya
I've had some issues with my gallbladder. I was always afraid it was going to have to come out since my mom, both my sisters and my cousin have had theirs removed. I had a few instances a couple of months ago where it felt like I was having a gallbladder attack. I used to get attacks a lot before I got IC. Matia said the gallbladder should get better to. I was worried with all the fat I am eating that it would get worse! I have to say I haven't even felt mine now in over 2 months. Hang in there it will get better.
Aya- I totally understand
Aya- I totally understand what you are saying. I went through almost 2 years of mainstream medical Infertility treatments, got off the meds, researched herbs self treated and got pregnant! I treat my kids naturally and I've also helped multiple people with ailments using natural remedies. I thought I was so smart about my body and natural health/diet etc. IC is beyond me though and I am so grateful it isn't beyond Dr Brizman! It kills me to not understand every shift and change and i have even thought about paying for another appointment just to have dr b tell me as much as she could about what is going on with me and what each change means. I am coming to a much better place with that though and just accepting the rollercoaster ride. I've actually started to realize that I know nothing and I mean that in the best possibel way!!!It helps that I think I am seeing some progress too! I get how tough it is to stay positive when all kinds of bad stuff feels like it is going on in your body.
Christine- That is great about your gallbladder.