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Okay so my bladder has actully been pretty good to great lately. I have had major DIE OFF though since starting SF. I started SF back in August and it has been on going since then. My die off comes in groups ... first it was nausea, stomach burning, heart burn, diarhhea, muscle aches and calf pain. second group was chest pain ,ear itching, bad breath, urethral burning, fatugiue, headahce, insomnia ,thirst, dry eyes, night sweats, throat hurt. third group was insomnia, fluid in ears ,diarhhea. fourth group was cold symptoms, nose itchy, sneezing, ache in ribcage area, gas. fifth group was back of my knee had pain and my jaw had pain. MY MOSY RECENT BOUT OF DIE OFF WAS LAST WEEK WHERE MY ENTIRE FACE WENT NUMB, had a severe headache, AND I wass SO DIZZY. I actually went to the ER so they could rule out MS and anything else that could cause the numbess...tumor, nerve issues, etc. Evertyhing came back normal from the hospital...I had an MRI with contrast (contrast did not bother my bladder). Currently, after the numbness went away I cam down with a "cold" -- or possibly more die off. I cannot kick the cold. Dr, MAtia thinks that this is more die off and it is related to my facial numbness. I can't sleep at night casue im so stuffy, ears are filled with fluid, nose is running constantly, sneezing, and sore throat. I am on a cold protocol but it seems to be getting worse. the mucous from my nose that I blow is CLEAR...which tells me that its not an infection and more die off possibly. Dr B put me in touch with someone else who is currently a patient who also HAS/had facial numbness....it was so werid because her numbness was in the same place as mine...it started under my eyes and went down to my chin. it wasnt fully numb...it was more like at the dentist when the novacane is wearing off..i could hald feel my face and it was half numb...just a weird sensation, a different sensation then anywhere else on my body. I AM WRITING THIS BECAUSE I DONT KNOW HOW MUCH MORE DIE OFF I CAN TAKE. FOR ME THE DIE OFF HAS BEEN WORSE FOR THE PAST 3 MONTHS THEN THE IC SYMPTOMS THEMSELVES. I CANT TAKE OFF ANYMORE WORK UNTIL FEB SO I AM SCREWED IN THAT DEPARTMENT. It is really hard to work, keep up a house, etc when going through this!!!!! i am getting tired of it....mentally and phsyically because I barely get any sleep with this COLD. And to add fuel to the fire I am starting to go back to school to get a second degree OCT 20 so I PRAY that this is over by then. thanks for listening......
Oh and one last thing...since
Oh and one last thing...since the facial numbness episode my face has broken out. I never really had acne. This is the worst acne I have probably had since I was like 13....which was 14 years ago. It looks bad and its embarrasing.
You can take it! Just tell
You can take it! Just tell yourself that. This will pass- that is the great thing about die off vs bladder/ It is a sign that your body is doing good stuff it needs to do right now. It sounds awful and I am so sorry you have to go through any of this crap! But it will pass and you can do it. I am sure it feels impossble but it is not and you are strong. Just get through one 24 hrs at a time. Do whatever you need to do to make each day more livable and know it will go away sooner than later. (((((((hug)))))))))
Praying for you Star Gazer.
Praying for you Star Gazer. I am so sorry you are having it so rough lately. Your body is definitely dumping the bad guys. You will get on the other side of this! A big hug to you! So very glad your bladder is doing so good and the shift is away from there.
Thinking of you and hoping
Thinking of you and hoping you will turn a corner to feeling better soon :) hugs and prayers
Thanks all
Thanks all
It seems common for there to
It seems common for there to be a grand finale in holistic treatment. Hopefully this is it for you. Thank goodness your body is strong enough to throw off all these toxins. Some of us have to go a lot slower. Did you ask Dr. B if you could slow down the die off a little? Otherwise, I know it sucks but you need to do this to get all the way well and I know that is what you want!! Hang in there!
If we don't excel at health, the only other option is disease.
Hi Star,
Hi Star,
About a year ago, I began having my most intense die off in treatment. I thought I was going insane, with MS and possibly ALS on top of it all. My muscles were burning, sinuses, inability to think, anxiety through the roof, bladder mess, fatigue, numbness etc. the clouds began to part and my bladder truly improved. It is very slow, but I believe you are about to turn a major coroner. Stay strong, you are healing!
Katie
Hi katie!! Hopeing for an
Hi katie!! Hopeing for an update!! :)
If we don't excel at health, the only other option is disease.
i have also been exp for the
i have also been exp for the past 3 months ... "Oh why did I just walk into the kitchen" and "its on the tip of my tounge--what word am I looking for" -- major brain FOG!! The funny/weird thing is is that I feel like I have already turned a corner...because my bladder has been pretty good lately. Just MINOR freq issues. Like I said my die off has been the issue lately...hoping for the best!
LOL, welcome to my world.
LOL, welcome to my world. Been experiencing that for over 10 years. Hope that goes for me soon.
If we don't excel at health, the only other option is disease.
Yeah that brain fog is rough
Yeah that brain fog is rough for sure :) I had it so bad one week I forgot my appt with Boaz...that NEVER happens and I was in tears. While I wish none of us had to go through any of this I am at the same time so thankful for you all.
I am thankful for each and
I am thankful for each and every one of you as well...all the support and love everyone brings to this forum...It is truly a beautiful place. Katie, I hope I follow in your footsteps and turn another corner soon. I feel like I am going crazy. I am 27 years old and every week I feel like I have a new issue arise. I feel bad because my husband is great it is just I really don't like complaining. When I had emailed Dr. Brizman I was going to the ER she called me on her personal time while she was at her house in the AM with her children...I was just SO blown away by that. She is truly dedicated to our healing...and I am sure Boaz is too. I can't wait to be to be done with this treatment and write a heartfelt thank you note to Dr. Matia Brizman for her devotedness to us. Thank you all for your kind words!!!
Oh and Mimi, I have been in
Oh and Mimi, I have been in close contact with Dr. B for the past 3 months. We have tried different combos of different things I guess to try to "tone down" the die off..we always kept the SF in though. Nothing really seemed to help. I guess whenever I am on SF I am going to experience intense die off.
Hey Katie,
Hey Katie,
Only because I "know" you well enought to tease a bit. - Your typo reads that you are about to turn a major "coroner". I'm getting a real good laugh out of it - at times the coroner has seemed really fitting!
I forgot how much I love
I forgot how much I love being in regular contact with the lovely souls on the forum. Our common experiences create such a powerful opportunity for positive relationships;)
Denise- Goodness, I adore you. It has often felt that either I would do one or another.....turn a corner or end up with a coroner.....a little dark humor;)
Star Gazer- This disease truly pushes us to the brink of sanity ( or perhaps some of us have crossed over) at times. The facial numbness is truly a scary experience which I can only imagine. The variance of crazy die off that happens with this healing process in amazing. My husband and I regularly joke that if my arm fell off, I would just attribute that to die off. Sometimes I just have to laugh at the absurdity of the die off sometimes or the fear creeps in. It is wonderful your bladder has been doing well! Perhaps after this round of die off, you will not feel it at all! I am sending good vibes your way- and keep talking to us;)
Hi Mimi- How are you? I am 15-16 weeks pregnant and feeling very well in the pregnancy! The nausea is mildly there- much better than it was with my older girls. The anatomy scan is October 21st- I will relax quite a bit when I hear the words perfectly healthy;) We will find out the gender that day, too! Wish I could celebrate this more closely with you all- with the exception of close family, very few realize what an incredible accomplishment it is to be well enough to have another baby. My bladder is absolutely beautiful. In the last week or so I have had increased heart issues and muscle burning. Dr M believes it is from an overload of hormones in my lymphatic system stopped up a bit, but I am still teaching full time and running around with my girls. Am I still glitchy? Yes, but highly functional and out of pain;) It's pretty much like a dream come true.
Even though I am not posting as often, I am still reading everyday.
What a wonderful update.
What a wonderful update. Congratulations on your pregnancy and good health. This is the best news I have heard today. I wish you continued blessings!!!
Wow, KAtie, Congrats!!! So
Wow, KAtie, Congrats!!! So happy you are doing well!!
Star! Hang in there girl -
Star! Hang in there girl - been there done that so many times! I seem to never stop dieoff. It's all good though :) If you ever need any thing give me a shout - I'm right around the corner!
Love Claire C
Thinking of you star! None of
Thinking of you star! None of this easy, but your body is getting stronger! I've had many crazy numbness twitching etc, etc and now after 3.5 years try to just take it in stride and hope it will get better! I too am dealing with what seems to be a never ending only worsening cold, with terrible congestion! Sending hugs, hope it continues to pass and will be feeling much better over all when this has passed!
Thanks CLaire :) you are
Thanks CLaire :) you are sweet. Maybe I will run into you ar wegmans!! Christina, thanks for your kind words...it makes me feel better that I am not the only one. I will pray that your cold get better soon!
Katie I am JUMPING up and
Katie I am JUMPING up and down in my kitchen. So happy for you. Yes, this is a HUGE accomplishment. We get it! Since we are heart sisters I want to mention that my heart stuff did get a bit worse with pregnancy but I am sure Dr. B will help you and after pregnancy it did improve a LOT. Lately my heart stuff is almost nill on this protocol.
THANKS for checking in!!! xoxo
If we don't excel at health, the only other option is disease.