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Hey everyone I am thinking of having a support group this tuesday at 4pst time. IF you don't have the number and you would like to join let me know.

Nicole

debbyz's picture
debbyz
15 years 6 months ago

          I would love to join.....please send me the number   THANKS!!!!!

Liz's picture
Liz
15 years 6 months ago

Thank you, Nicole for doing this and for your support. You are an inspiration to me.  If you can get thru this I can.  This eye operation with the steroid injection two weeks ago has upset my healing.  I was doing so well before.Please send me the contact info.Liz

nicole's picture
nicole
15 years 6 months ago

I will send these out this evening. :) Your so welcome

tamwatson's picture
tamwatson
15 years 6 months ago

I have sufferd since birth from IC; however, the docs never knew why. My urologist now told me to get online and research the syndrome myself. So, here I am. I've been searching this website for a couple of days now. I have found it to be a wealthy source of encouragement and information. Thanks to everyone involved.

emmarenee's picture
emmarenee
15 years 6 months ago

You've found the right place to be. What are your symptoms? I've been in treatment with Matia since Nov 08 and am feeling better. Tammy

nicole's picture
nicole
15 years 6 months ago

Welcome to the group I am so happy for you that you have found Matia. You are not alone and you can get well.

tamwatson's picture
tamwatson
15 years 6 months ago

Hi, I'm new here. How are you guys?

IC-Hope's picture
IC-Hope
15 years 6 months ago

Putting in a request for future talks to be a bit later? I wanted to join today but had to work; not sure if others in the same boat?  Perhaps if it's in the evening for all of us, like early evening PST, later evening EST?
Thanks for organizing Nicole - a great idea. Hope everyone got much out of it.

nicole's picture
nicole
15 years 6 months ago

I usually do them on SUnday afternoon. For me I am already 3 hrs later then you so when i host it at 4 its 7pm and then we talk for 2-3 hrs its 9 or 10 at night.
When I have them on suday I have them around noon your time its about 3 my time. Then for some people I have talked to it's 9pm. I tried to ask around what people would like to do. Really I don't need to be present once you have the number you can join in and hold one any time. If you have a certain time you want to do it though just post it and we can see if we can get some people in. It's nice getting to know everyone.
Nicole

nicole's picture
nicole
15 years 6 months ago

Anyone want to join me in a chat today sat @ 4 let me know. If you have the number from last time just call in those of you who want it just contact me and i will send it to you.

Kriste's picture
Kriste
15 years 6 months ago

Is that 4p.m. P.S.T.?

nicole's picture
nicole
15 years 6 months ago

yes, your the only one so far though I am thinking maybe i didn't give enough notice. it's just been a really hard time for me emotionally and phyically.

emmarenee's picture
emmarenee
15 years 6 months ago

So that would be 6:00 in Texas. Is that right?

nicole's picture
nicole
15 years 6 months ago

http://www.timetemperature.com/tzus/texas_time_zone.shtml

emmarenee's picture
emmarenee
15 years 6 months ago

I called back a few time but I missed you. You probably gave up. I enjoyed the short chat. I hope you have a better evening. I enjoyed your FB pix. The spa looks great!!!! Tammy

nicole's picture
nicole
15 years 5 months ago

Just wanted to let everyone know i am going to do a  Sunday at 12 pst time thats june 13th hope to hear from you all. Please contact me if you would like the number.
be well
nicole