peein and pain 24/7...need to hear from others

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hi everyone...
i just wanted to hear from some people if they got worse in the beginning...i am hearing from other new pts how they are doing much better and i cant get one day in without peein and pain non stop...i am so glad for my IC sisters who are feelin well..xxoo...
i am also frustrated and depressed on my progress...i kno everyone is different and this healin is hard and gna take a while...it will give me some hope  hearing from others who got worse in their bladder in the beginning...i really was not prepared for this...
i am eating nothin but potatoes,brocilli,protein,butter and a lil oil..spelt bread once a day....i am on 1/2 mega and 4 RP's...
thanks for ur support...

Melsvensen's picture
Melsvensen

I am so sorry you have not had any relief.  I know it is so hard to stay on track when you are not seeing any difference.  I keep in mind that this is going to be a really Sloooooooooooowwwwwwwwwwwww  process. I have been waxing and waining with my peeing since I started.  Yesterday was horrid. I had no relief even upon waking and normally when I wake up I am fine until the afternoon.   I had that get up every 15 minutes and had a burning urethra before AND after I peed.  I am getting my period in few days, so I am not sure if it was that, it felt like an infection.  Other than that I am pretty much the same with my bladder (my MAIN problem is frequency and urethral pain at night).  I have had a FEW good days going under 15 times a day, but not many since beginning.  So, we are all different with the way our bodies are responding. I am only 16 days in. I am also on some different supplements than you.  I am taking goldenseal, Oil of Oregano, fish oils, and step one probiotics.  Have you tried taking out potatoes for one week?  I ask because they were a huge yeast feeder for me.  Whenever I eat them I get more symptoms within 24 hours.  Also, I wake up with a headache.  You may need to take out all grains for one week to experiment. 

Melsvensen's picture
Melsvensen

I forgot to tell you any grain except rice including spelt and kumut cause me to flare big time.  I can only handle a little bit of brown rice daily.  This keeps my pain levels way down when I follow it.  I would like to hear from some old timers to see if they were worse at the beginning..and now are better.  I know I have heard people write that on other posts.

jj's picture
jj

Hey Kristen, I'm so sorry that you are feelin so bad still!!!  I hav been in treatment for 5 months and I didn't get much initial relief either.  There were signs that things were changing in my body but my bladder pain stayed pretty constant for the first 3 and a half months :(  I kept little notes on my calendar to try and find some pattern and tried to communicate those with Matia which I think helped her to adjust my herbs.  HANG IN THERE!!!!  It's not forever and ONE of these days you will feel a little better!  Sure feels like forever though-especially when all those "comfort" things are off limits.  I am hoping for speedy healing for you!!!!!