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Hi folks, Ive been reading a lot of the posts here lately and I am in awe of your courage and your tremendous spirit in getting well.
My situation is that I have been bulimic for 20 years (brought on by most of my family being wiped out to a genetic disease) and my health generally withstood the eating disorder. However, over the last year alone, I have gone down hill regarding my bladder (three UTIs in a row and the last one never went away) and I got told I 'probably' have iC. That was about two months ago.
As I have been reading here, none of you will be surprised when I saw life has been a torment ever since. I always hoped that I would be able to get over my bulimia in my own time, and without pain. I now realise if IC hadnt happened, I wouldnt have tried to recover. I also was on the pill for 15 years, had a load of fillings (gone now and off the pill as well) and 10 antibiotics in the last year alone.
I havent gone the medical route for treatments as I am so new to all this (except for a cystscopy after which the urologist said everything was normal) and I quickly found out about someone in Europe and then about Dr Brizman. I will be having tests soon to see if I have yeast, candida, bacteria.
What I want to know is, while its only my bladder that is so uncomfortable (I genuinely dont have other health issues...yet, I know IC can bring on other issues), have I absolutely destroyed my insides and that they will never heal? Any time I tried to get help before medically, I was always told that the body just naturally reverses all the damage done by bulimia and that I would be fine and just to eat what I could. Now I realise its much more than that, regarding the gut and bacteria and immunity but I never got told that by any doctor or specialist is EDs.
Does anyone know how long treatment would be for someone like me? Is it a case of, how long is a piece of string, that noone really knows? Would I looking at two years, maybe more? Does anyone know patients of Dr Brizman who have a similiar background?
I have been on sugar free restricted diet for the last 3 weeks, no bingeing, no purging, if I was still in counselling, this would be seen as a miracle, for someone with my history. However, the discomfort is so bad, no food is worth it, I really understand that now.
I am very very low, and not sure about anything now. The diet has made my pain worse but I understand that seems to be common?
Taz
Hello Taz and welcome to the forum.
My heart goes out to you, and yes there are people out there like you, I'm just one of them.
Our stories are very similar and I too thought I would be able to get over the bulimia on my own, always thinking tomorrow I would be stronger and then feeling disgusted with myself for not being strong enough.
I too only realised the damage I was doing when my bladder began to hurt even then it was a long time before I would admit it.
I have been Matia's patient now for a year and I am tremendously better, you can heal and for the first time for many many years I feel confident about being in control of my eating. I'm not saying its been all easy but my urges have been a lot less and even non existant at times over the last few months. I now believe that the eating disorder my be linked to my cravings for yeast and as I am getting on top of the yeast problem the cravings become less.
Last night I went out with some people who haven't seen me for a year and they all commented on how well I was looking. It was a huge boost to me.
Yes the diet made me feel worse at first but it is part of the body cleansing itself and it does pass. Its just something we have to go through to get well.
Feel free to email me, it would be good to have someone with similar issues to talk to for support in times of weakness.
Just a note on the tests, if you are planning on seeing Matia it would be worth checking with her first rather than spending money unnecessarily
Taz
Hello Taz, Welcome.
My vice isn't an eating disorder, it's obsessive compulsive disorder due to a lot of fear about death, mainly my own. (not a topic that many are comfortable discussing) I think both of our disorders stem from trying to find some way to feel in control and feel safe? If I'm wrong, and am projecting my own quirkiness onto you, forgive me. For me, if IC hadn't happened, I'd still be on all the conventional anti-anxiety medication that I"ve weanred myself off of. Dr. B now has me on herbs for the anxiety. It took awhile for them to really help - but man, what a difference. They haven't completely killed the fear. What they've done is allow me to feel the fear, with less intensity, and work my way though it to the other side, nor have they had the horrible side effects of the other drugs. Don't get me wrong, it's not always easy, I have come nearly completely unglued at times, and have reached out for help on this site. (My thanks go out to those that lent a helping hand)
I too suggest that you talk to the doctor before putting yourself through all of those tests. I think the proof may be in your symptoms, not lab results. I have, for years, had lovely colored vaginal discharge, strange odors, all with negative results for yeast & bacteria. I have also been treated, numerous times, for uti's, only to have the test results coming back negative for any infection. By the time the UTI was really there, I was immune to all conventional anti-biotics and was hospitalized for IV antibiotics.
Now, 7 months into treatment, all strange vaginal symptoms are gone, my pap smears are looking more normal, and the bladder and vulvodena pain has become manageable with herb adjustments. HOWEVER, my itestines are hell bent out of shape about something, and my anxiety comes and goes - But, lady, it's never too late, if you still have breathe, to fight the good fight. What I'm finding is that you'll find yourself along the way. I'm thinking that both of us are worth knowing.
While I would really like to cure this body that I'm hanging out in. I've come to realize that healing the "me", the soul, or whatever is hanging out here, is what my journey is really about.
All my best.
Its never to late to be healed
Denise, your post was so touching and completely spot on.
Taz- I have been in treatment almost 7 months. I had an appointment today with Matia and somehow we happened upon my childhood ailments and what might have triggered the IC symptoms, because sometimes it is so hard for me to wrap my head around something that just won't go away, despite completely understanding and believing in this process. I, like you, have always felt relatively "healthy". I did get sick quite a bit (throat and ear infections), but nothing major and other than that had a very strong constitution. I also had an eating disorder in college and was on depo provea (the birth control shot) for 10 years). When my IC symptoms hit, I felt like it was completely out of nowhere. I had never had a UTI in my life, EVER. What I have come to learn is this was slowly building and building and building UNTIL bam, my body just couldn't take it anymore. Now I look back and realize that getting the flu or a cold every other month was/is not normal. While I have not seen major changes in my bladder, I can say that I have had one very slight cold in 7 months. I don't think I have gone that long in my life without getting sick. I also hadn't had my period in almost 10 years (because of the depo! I know, that should have been my first clue that depo wasn't good for my body, but ignorance is bliss, right?) and in November (and December) I got my period. Like Carole, people tell me ALL the time how amazing I look and ask me what I am doing (of course, I can't see it day to day), people that have no idea I am sick or are aware of my diet. My body is slowly, but surely starting to normalize. Matia said to me today, that the body has an amazing ability to heal and NO MATTER what you think you might have done to it, it will correct itself, if you give it what you need. She does that and more.
I second and third Carole and Denise. I would consult with Matia before getting all those tests. I wasted so much time, money and energy on tests that ended up all coming up normal, when clearly things weren't normal or right.
As for the length of treatment, Matia will say that everyone is different. I think 2 years is a good estimate, but again everyone's different. I know that 2 years seems like a lifetime, but I can tell you almost 7 months in, time slips by and this journey will make you healthier, wiser and stronger than you could ever have imagined before embarking on it. Have patience and believe in yourself. You are in good company.
a like in so many ways
Hi Taz, welcome to ICAMA. I was reading your post and your story is very much like my own. I was on birth control for many years and after being what I thought was a very healthy, BAM I got a UTI, than another, and the third just wouldn't go away. My symptoms were urgency & frequency. I've been with Matia for just over 2 years. It has been an amazing journey. The first six months were hard. I had a lot of yeast. Then month to month I have come to list 4 and feeling good. I agree with the others. I would see Matia as soon as you can. She will tell you if she feels you need any tests. Some of the tests that your GP or Urologist will ask for may cause more damage than good. Please feel free to email me anytime. Tammy
Guys, thank you so much for
Guys, thank you so much for your thoughts and advice, they have really really helped. The tests are non invasive, just bloods and urine, so dont worry, I wouldnt put myself through a cystscopy again. I love that Matia has said that no matter what damage you think you may have done to the body, it will heal itself, that gives me hope.
Two years doesnt seem a long time when I look at how long ive been battling my eating problems, its just I notice some posters seem to be longer than 2 years in treatment and also that people seem to be experiencing pain, even late into treatment.
I have read and reread everything you have all said, it really helps. I am going into my fourth week of not bingeing and I know if I can do that, I can do more.
You are most welcome
GOOD JOB! You know where to find us if need be.
All my best,
Denise