I just want to encourage everyone who is at the beginning of treatment or still struggling to get better. I'm a little more than 3 years in treatment and flew all the way from Belgium to LA and hoped so hard that this would be the right path. It turned out to be the best decision I ever made in my life...
It has been a hard and long road, and sometimes it felt like I would never get better, but I did. It's also true that once you start to get better, you don't come to the forum a lot anymore, but I remember how important it has been to me to read positive stories from others (and certainly from long term patients).
I still have some issues now and then, but I feel so much better and forget to think about it. Not eating sugar has become a life-style for me, most people know about my diet and when I meet new people I just tell them that I can't eat sugar due to health problems. Mostly they don't ask more questions and if they do, you can tell whatever feels comfortable.
The biggest victory has been my holiday a few weeks ago. The past years it was always a struggle because I felt a lot worse when I went abroad, but during my last holiday I felt great.
It can be a very hard road but know that you will get better as you keep going.  Hang in there.

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