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Hi Everyone,
So excited to be starting with Dr. B and finding this community :)
I just got back to South Jersey from CA on Friday and "officially" started List 1 and supplements on Saturday. I have been sort of following List 1 for approx two months, which has helped a lot. Now I am gong cold turkey on my last thing - Dairy! I just love cheese, milk and plain greek yogurt so much...to the point of obsession. Oh well they gotta go!
I am going on almost 2 years of this horrible condition...woke up in the middle of the night 12 weeks pregnant and couldn't pee. Went to the hospital where they emptied my very full bladder and have had I.C. ever since. I have been to at least 13 different doctors, specialists acupuncturists, chiropractors, and holistic doctors. I have tried the Yeast Diet, the IC Diet, the Low Oxalate Diet; I am already Gluten free due to Celiac...I even had "ozone" injected into my bladder. But I know in my heart this IS IT. I believe in this and Dr. B fully.
In my case Dr. B blames my years of abuse with Motrin (for very painful periods)....it all makes sense.
Thank you everyone for sharing your stories.
Hi Livandlex,
Hi Livandlex,
Welcome to the forum! I'm also a newbie. I met with Dr. B on Wednesday and flew back home to Montreal on Thursday. I'm so glad I made the trip. I too saw so many specialist and tried everything you mentioned above. I bought every book that existed on IC. Finally it led to me finding Dr. B one night as I was browsing the internet. I was in so much pain and in tears. I typed "Cure for IC" and her site appeared. The rest is history. In her opion I abused tylonol and advil because of back problems. I was a little surprised because I never felt that I was taking too much! For some reason I believe my back problem was the beginning of IC. I guess I'll never know. I started an IC diet the day I got diagnosed in June. I cut sugar and yeast so when I began List 1 it was't difficult for me. Early on I suspected I had a yeast problem. My only complaint is that meals are becoming repetative and boring. I look foward to eating yoghurt and cheese. Dr. B told me I can start List 2 at the end of the week but now I'm not so sure because I'm having a hard time with the probiotics. How are you doing with the protocol? I'm a little worried and scared that I will be in pain. This is all I think about. I'm hopeful that she will reverse this monster for you, me and everyone she is treating. Let me know how you are progressing!
Hi Sandi,
Hi Sandi,
Thanks you too! You were there this past Wednesday on the 12th? That's when I was there! Montreal is beautiful :) I was there a few years ago. Yes...our stories sound the same...tried everything...read everything...searching the internet constantly....thank god we landed here!! Oh I definitley abused Motrin...I took so much to function with my period. I use to vomit and miss work from the pain. In fact, when I had both my girls I had a natural birth because I knew I could take the pain...hahahah. Yes meals are pretty boring, but I am use to it like you. I am finding that I am hungrier than normal so that's been a challenge as to what to eat for snacks...usually I am not a snacker. As it's only been a few days I am doing pretty good. The probiotics are causing a little bloating but not much else...I've been on some heavy duty probiotics before...so I think that has helped. I know the PAIN and PRESSURE!! It's so awful...in fact I had a bout last night urrrgg. But I think it's my period coming...so I'm not too scared. Yes keep me posted on your progress too!
Claire
HI there! Welcome and best
HI there! Welcome and best wishes for healing. I just wanted to let you know I live right outside of Philly. Maybe we could get together at some point. I have a 2.5 yr old girl and 7 and 9 yr old boys. It is very difficult to explain this treatment to other people!
Hi Claire & Deir,
Hi Claire & Deir,
Wanted to wish you both Happy Holidays. Lots of health and happiness for the New Year! Claire I wish I would of run into you on Wednesday that would of been great! My app. was at 9am. I believe talking to someone who is going through the same struggles can be very healing as well. Hopefully one day we can all meet in person and talk about our recovery! Wouldn't that be AMAZING! Have a great Day I'll be enjoying our first major snow storm it looks like a winter wonderland outside.
Hi Dier,
Hi Dier,
That's awesome! I am right in Cherry Hill - where are you? How long have you been a patient of Dr. B's Would love to meet one day...any advice or tips would be very welcomed! My girls are 5 and 15 months :)
Hi Sandy,
Hi Sandy,
Happy Holidays to you too! YES HEALTH and happiness definitely!!! That would have been great - my appointment was at 3pm...but when I got to Dr. B's they said I didn't have an appointment! I almost fainted on the spot....this was after my luggage didn't come in on my plane either...but Lynn said they would make it work and they did THANK GOD! They fit me in a 4:30. Someone apparently put me in on the wrong day. Holy Cow!
Yes, all meeting someday would be amazing! Ohhh I would love to see snow....we really haven't had any yet :( Snow at the holidays is so magical!
Claire
Hi Sandi,
Hi Sandi,
I'm not sure whether I sent the other replies back right lol! How are you doing? I am having extreme vulvodynia flares!!! Just emailed Dr. B...see what she says...there's also some other weird stuff going on but I can handle that....but this is really tough!
Did you guys get snow
Claire
Hi Claire,
Hi Claire,
I did read your last post! I've been experiencing more bladder pain especially after peeing. Also having vulvodynia flares! For me it all started on Friday when I started the protocol. I had been pain free for over 1 month and now everything is resurfacing. I'm so discouraged! I hate this feeling. I did contact Dr. B. and she's made some changes to my protocol. Were trying different mixes and different quantities. Some of the supplements I'm taking taste horrible. I hope she can get this right soon. I must say she is so efficient and commited to her work. The holidays are fast approching and I know I will not be able to contact her if I'm not well. We are going on vacation and this is not how I want to feel especially for my kids and husband. Please let me know how you are doing. We are on the same path to healing so don't feel alone. We will get through this so stay possitive.
We got so much snow about 30cm. It looks beautiful but I hate the cold.
Your IC friend
Thanks for the response Sandi
Thanks for the response Sandi!
I know for the last 3 days mine has been getting worse and worse urrggg. I tried to shrug it off on my period coming...but it's really bad...so I contacted Dr. B today. She just got back to me and now I am waiting her recommendations. I know right now the vulvodynia calmed but my bladder is going to explode!! I hate it too!! It's so awful isn't it?
I am taking Goldenseal, megadophyllis and Rehmanniae Peonniae....the goldenseal is hideous tasting! Thanks for the positive thoughts we need them :)
Have a great vacation!!! You'll be fine :) Wow that is a lot of snow!
Claire