Regressing?

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A few times she has changed my dose and said,"Let's go back to..." At one point a few weeks ago I went back to my original dose of 1 mega and 2 rp. I was so upset.Has this happened to anyone else? I am really starting to feel like I am the only one who isn't getting better around here.

Veronica Solano's picture
Veronica Solano

this has happened to me before many times and i also get upset, but dont worry you wll see that as time goes on you will tolerate more combos and herbs than before. Going back to... doesnot mean you are not getting better!!!

deir's picture
deir

Thanks Veronica!! How long before you started having longer good stretches?  I  have been in treatment for 5 months and Matia thought I be better within the year. I am so afraid that she was terribly wrong in her estimation. I was so positive and hopeful and now i am so scared. Today is particularly bad because I have awful PMS which makes me like a crazy person and also so depressed. I should be able to see that for what it is but I just can't sometmes.PMS is one of the things that Matis reassures me will be gone when I improve. I almost think it is worse than the IC sometimes.

flygirlsam's picture
flygirlsam

Ugh, yes this just happened to me in fact.  After 2.5 years in treatment, I started regressing this summer (we think we figured out somewhat why though) and Matia said..."let's go back to......R.P."  I was like, huh?  I haven't taken that since the first month I started treatment!?!  So upsetting.  But it is helping tame the inflamation and I do feela bit better.  I am just upset I have to order more herbs form Bomamed since it's so darned expensive for shipping.  I hate ordering too mnay bottles at once, but I was down to my last bottle of the stuff from 2 years ago.  Anyway, hope this helps.  Sorry.

deir's picture
deir

Sam- Thanks and sorry you needed to "go back" too. I hope you aren't going back to original pain levels? I hope you get it figured out!

fahlmank's picture
fahlmank

Deir, You are not alone in feeling as if you are regressing. I won't share all the details, because my case is not usual to IC so I do not want to create necessary worry. However, I am continuing to have issues with my heart and because of circumstances related to my heart, my bladder has regressed quite a bit. I feel as if I have lost four or five months of progress!
Mentally, this is a very tough time to stay balanced and strong. But I always come back to the essential question... "What would my life be back without this treatment"? And the answer is.... I would be worse off with conventional medicine treatment than on my worst days with Dr.B. 
I always enjoy reading your posts and sending good thoughts your way, (Sam, I am thinking of you too:)
Katie

deir's picture
deir

So sorry Katie- I am also sending energy and prayers your way.