So Sad- Please Help

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Hi Everyone:

 

I have had IC for 2 years- although i did not know it at this time 2 years aggo- and today is the first day that I have felt so sad and discouraged that tears have come. I feel that I am trying so hard and things are getting harder for me. Yes I ahve had improvements in manyother areas of my body but my bladder hurts more now than whenI started in February.  It is true that I have gone off of elmiron and HRT and I am at baseline but honestly, is it ever going to ease up? I know that I am not as burdened as many others but honestly, this constant, low grade nagging pain that has developed makes me want to hide in my bed under the covers. I wish someone could tell me how long i need to wait to feel better. Then I could do it. It is just not knowing if it is ever going to get better, in which case, what do I do...

 

Thank you.

 

bonnie

DLFox123's picture
DLFox123

I'm so sorry that you're feeling so bad right now. I'm searching for what I can do to help. What has Dr. B told you? I can tell you that I truly believe that you will get better. This is largely due to over the last two years reading entries of people that sound as scared and in pain as you - then hearing more calmness, hope, and healing in their entries. How bad is the physical pain, how bad is the emtional pain? Talk to me. You can find me at greatworker1@hotmail.com (I am never able to E-mail through this site - not sure why) (it's the numberal 1 after greatworker)

deir's picture
deir

Oh Bonnie- I have so much to say and so little time without a 2 yr old!! LOL
 
Just know that you CAN do this. You have strength within you or you wouldn't be here. let the tears flow because fighting against emotions and even physical pain is a no win situation. I find that I am often sad about being sad so instead of feeling just one level of grief- I have 2.
 
This is a rough spell. One day at a time. I hope I will have more time to write later.
((((hug))))

calieve's picture
calieve

Hi Bonnie,
 
It is tough to get through the beginning but your body is going to get better. Just keep pushing through. It takes time, but it will be worth it in the long run.

pterzwife's picture
pterzwife

Hi Ladies:
 
I am really appreciative for all of the suggestions and blown away by your kindness. In desperation yesterday, I tracked down my therapist and talked through the last 4 months with her. Part of my healing has to replace my catastrophizing, fearful and negative take on things with a positive view. That may be a longer term project than the physical issues.
Today I was able to keep calm and carry on.
 
I can't thank you all enough.