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Hi Everyone! I've been with Matia for almost a year, and I've been reading the posts fairly regularly lately, I just haven't posted until now. It has been quite a journey for me, as I know it has been for everyone doing this treatment. I've had IC for about 12 years and was keeping it under control for about 10 of them with Elmiron and Hydroxizine (and the "IC Diet" as prescribed by the IC-Network). However, two years ago, my symptoms started getting out of control and Vulvodynia set in. So, one year ago I decided to get myself on the path to healing and started treatment with Matia.
Right before I started treatment, I was on a lot of different drugs to help me get out of the pain cycle I was in. I have had an excellent urologist working with me, and the meds worked to a certain extent, but I didn't like the path I was on. So, my first goal in working with Matia was to get off the meds. In February of this year, I finally got off of everything. I am happy about that, and it was my choice to get off of them as fast as I did (I was motivated!), but now the pain is severe. I'm seeing what is really there, and it's really hard to go through.
I know this treatment works because someone very close to me has gone through it and come out absolutely healed! She is my angel and reminds me that she too had to go through much suffering before things got better. I know not everyone has to go through what she did and what I am in order to get better, but I just wanted to encourage those of you who are suffering right now that you are not alone!
Thank you to all of you who write such encouraging posts! I have found comfort in them many times.
Hi Lisa, I just wanted to say
Hi Lisa, I just wanted to say welcome, and thanks for posting. I'm sorry you are in so much pain right now. I give you credit for getting off your meds so quickly, hopefullly you will be feeling better soon!
Thanks, Christine! I've had
Thanks, Christine! I've had this thing for so long, I'm anxious to get on with the healing! One thing I'm learning through this is to have compassion on those who are homebound. I'm also learning to reach out to my friends for support. I'm the kind of person who likes to go into her cave when I'm feeling bad and resurface when I feel better. But that's not working for me with this situation. Most people are supportive when I explain why I'm doing what I'm doing. I've had several friends pray with me and for me, and it is so encouraging!
Welcome Lisa,
I am so glad you are with Dr. B and on the road to healing. And it's absolutely wonderful that you have someone close to you who has already come on the other side of this treatment to help you and encourage you. I pray for everyone on this list. I feel close to the ladies here, even though I don't get to post very often as I have intermitent use of the internet. So many times their posts have encouraged me, too.
WELCOME! You have already
WELCOME! You have already been through such a struggle but you have a wonderful positive attitude. It is great that you are on the road to true healing. Best of luck to you.
Thanks Mrs. A & Deir! I'm
Thanks Mrs. A & Deir! I'm having a pretty rough day today. I'm in a lot of pain and also experiencing upset stomach and body temperature fluctuations. Has anyone experienced these things? I know there is so much that goes on in our bodies when we're in treatment.
I am sorry
you are having a rough day, Lisa. I hope it gets better for you. I have not experienced stomach trouble, mostly intestinal trouble for me. But I have experienced on a daily basis body temperature fluctuations. Mostly hot, hot, hot. I have been having hot flashes daily since I began treatment last November. But on Sunday I was going from hot to cold. I have just added Bif in, so Dr. B said that would cool things down a bit. It's amazing how it did.
That's interesting! I was on
That's interesting! I was on Bifido for a long time, and then Matia recently took it out because of this flare. Maybe that has something to do with my body temp fluctuations.
Today has been a little better pain-wise. I have a call with Matia on Friday, so I'm really looking forward to it. The worst thing about being this kind of pain everyday, is that I'm stuck at home and pretty much stuck in bed. I did some laundry today because I was feeling a little better, then I started feeling worse because of the movement required when doing laundry. So frustrating!