Losing It- Need Reassurance

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OK all, what do you think? I just got back from a 30 hour trip to Northern Ca. Parts of the trip were good but this was my first time travelling andit is hard to see how many limits my current condition imposes. Eating out is so tricky. It seems as if there is the inevitable screw up no matter how carefully one orders. (Plain chicken turns out marinated; everything has pepper in it etc. etc.)

I am back home now and feel really frustrated. I am totally bloated and feeling overly fixated on my bladder. My symtoms are mild- i have had some good days in the last 10 days and on other days my symptoms are no pain and sensation in the reallm of 1-2 at most. But tonight I feel like I am getting pretty cuckoo. Sunday is my anniversary of 4 months on the diet. I know this is supposed to be early on but I am filled with fear that I am not going to get better and this is not really working.

 

Please send words of reassurance to this desperada if you can.

 

Thanks, Love Bonnie

Christine222's picture
Christine222

Four months in is still early. You sound like you are making good progress in such a short time. I was where you are at 4 months. Most days around a 1-2. Today I am 13 months in and most days are 0, now I mark days in .25 to .50 increments. I feel 90 - 95% better at this point. Don't worry, it will work, it just takes a long time. Hang in there.

DLFox123's picture
DLFox123

Christine is right (Hi Christine) 4 months in is early. The thing that I've learned, and am still learning, for me, is that IC has a huge emotional impact. Or, rather, the emotional impact has been the breeding ground for the IC? As my body has dumped the toxins, it has spewed out a lifetime of emotional garbage. In all honesty, I'm not sure where one starts and the other ends. If you're anything like me, everything is starting to come crashing together and you're just plain pissed that you have to deal with it and it all scares you to death - and you just want to find a pill to fix it NOW! I've spent a lot of years running around trying to do the quick fix so that my world can be safe. Most of my fixing has been sweeping it under the carpet, stomping on it to flatten out, and putting a pretty potted plant on it - yep, the queen of fixing. So, now, here I sit with a disease that has no quick fixes and an incredible new therapist that isn't offering me any quick mental fixes either....scarey and hard and I sure as hell don't want to do it. However, I've chosen to join the rest of you, kicking and screaming, and am damned proud of all of us. So, Bonnie, yell, holler, reach out for help, and we're all going to get there...unfortunately without the beer and cake :(

DLFox123's picture
DLFox123

Christine is right (Hi Christine) 4 months in is early. The thing that I've learned, and am still learning, for me, is that IC has a huge emotional impact. Or, rather, the emotional impact has been the breeding ground for the IC? As my body has dumped the toxins, it has spewed out a lifetime of emotional garbage. In all honesty, I'm not sure where one starts and the other ends. If you're anything like me, everything is starting to come crashing together and you're just plain pissed that you have to deal with it and it all scares you to death - and you just want to find a pill to fix it NOW! I've spent a lot of years running around trying to do the quick fix so that my world can be safe. Most of my fixing has been sweeping it under the carpet, stomping on it to flatten out, and putting a pretty potted plant on it - yep, the queen of fixing. So, now, here I sit with a disease that has no quick fixes and an incredible new therapist that isn't offering me any quick mental fixes either....scarey and hard and I sure as hell don't want to do it. However, I've chosen to join the rest of you, kicking and screaming, and am damned proud of all of us. So, Bonnie, yell, holler, reach out for help, and we're all going to get there...unfortunately without the beer and cake :(

Clueless's picture
Clueless

Eating out is difficult for everyone with IC.  Just do the best you can and don't worry about.  Ask the waiter a lot of questions.  Most restaurants will try to accomodate you if you tell them you have food allergies.

calieve's picture
calieve

Whenever I eat out, I try to choose a fresh mexican restaurant because they usually don't use sugar or yeast in their food. Dr.B okayed me on corn tortillas since I was on list 1 because I have never had a reaction to those. So most of the time if I have to eat out, I get steak tacos on corn tortillas, with nothing on it, just the meat.
If it's not a mexican restaurant then I usually do okay with a steak and potato entree. I just make sure to ask if they marinate the steak, and usually they say no, that they just use salt and pepper. It's also best to choose a high quality restaurant, chain restaurants seem to give me a problem.
Another option is ordering a salad with no dressing or cheese(unless you have been approved for the cheese). If it has meat then ask if it is marinated, if it is, then just order it plain. But most of the time if it it steak, the just season it with salt and pepper.

deir's picture
deir

Bonnie- everyone had good comments but i just wanted to say the title of your thread "losing it, need reassurance" is the perfect description of me every few weeks, sometimes every few days! You are not alone in your fears. keep the faith.
 
My new mantra,  "I am managing at this level and I have a plan"
 
My plan is not long term-that would be too stressful for me- it is simply, take my herbs, eat my food, take care of myself.
 
(((hug)))

pterzwife's picture
pterzwife

Deir, that is a really good plan. All the other suggestions are appreciated too. When I went out at lunch today I was very explicit about what plain broiled fish meant and I got what I ordered so that was good. Today was a good bladder day. Boy what a difference. Keep the cards and letters coming. Thanks!