For Deir

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Hey Deir, I have not posted in a long while and I was going to email you but you didn't have an email so I thought I would just post. We started treatment around the same time and I know you had a really hard time with adding foods back into. How are you doing? What list are you on? And how long did it take you to start noticing changes? How long did you stay on Mega before you went to bifado?And when you transitioned stages were there any foods to try first before others? And did you react to foods still a little bit or was were you just able to handle them.  I have such a hard time adding in foods even when I am doing everything really well...It would be awesome if you have any suggestions.

 

:)

deir's picture
deir

Hi! I wish I had more good advce but damn it all I am still struggling. I am actually feeling so fed up tonight. I generally have been handling things sooooo much better but tonight I am just sick of the fact that I am one of the unlucky slow ones. I want to have a normal sex life again. this part is killing me. I am so upset by it.
I also still feel very unsure as to what foods bother me and I am very conservative with adding.I just cut celery out and potato chips (again) to see if that helps but that just scares me that I am not healing.
 
I am not on any probiotics currently. I was on Mega, Bifido and Digesta Lac at various points but now nothing. Not sure what that means but  trying not to analyze too much.
 
I guess I am on list 3 but I don't eat everything on any of the lists and i don't feel confidant about list 3 if that makes sense?
 
I have added greek yogurt and tomatoes pretty confidantly and I did start eating spelt bread instead of just rice so that is a plus! But I still feel pretty unconfidant about all food.
 
The weird thing about me is that I have always been totally up and down and it is really hard for me to tell what the heck is bothering me on any given day. It is actually really tough and I am feeling pretty down tonight.
 
I hope hope hope that you are seeing some improvements! Are you still working as a nurse? (I think that was your job)
 
On most days, i am living a fairly normal life and I am so content and happy despite this crap but for some reason today I am angry about  a few things and scared
 
Thanks for letting me vent.
Deirdre
btw- not sure why my email is off there but it is
deirfinnegan@gmail.com
 

pterzwife's picture
pterzwife

Dear Deir:
 
i was thinking about you last night.  I wanted to write you and ask how you were doing and say thank you for all of the support  and wisdom that you have shared during the time I have been on the site.
i don't have any good answers- I hope someday we will each have some- butIreally understand how you are feeling tonight.
 
with love, Bonnie

Mimij67's picture
Mimij67

Hi Deir,
I hope you are feeling a tiny bit better today. I always feel mentally and emotionally challenged at night. I used to cover up that feeling with wine. Now I just have to feel my feelings. Ugh. Oh well. Hopefully the new day is helping a bit!
xo

If we don't excel at health, the only other option is disease.

porkchop87's picture
porkchop87

Deir...thanks for writing back to me. I am so sorry unwere having an emotional night. It is hard to stay positive all the time through treatment. But.. From old posts that I read of your from over a year ago u seem to be doing much much better and have made definite progress from the beginning. Keep strong! I had a bad year. I just stuck to list one on and off but didn't talk to matia much..inhave an appt next week. I can't wait to get more help and stick with it. I am still working as a nurse in internal medicine. It makes you realize how important holistic medicine is in the healing process because eating hospital food with crohns or lupus does not make people better.....we are on the right path!

deir's picture
deir

Hi! I feel bad about spouting all that off the other night!! Much better when I stick to the experience strenghth and hope of life as opposed to the venting and fear!
 
So- you haven't been in touch with Matia? Did you just stick with whatever protocol you were on? I am glad you are goign to be back with her and I hope you have some serious progress soon!
 
My life is much more normal than it was last year. I am actually starting to work in a rock band of all things!! Before I get too old- this is my chance to do something super fun. I never would have attempted it last year- too many what ifs- I wouldn't say that on a day to day basis I have much difference in symptoms but overall, I think there must be subtle changes or I never would have felt confidant enough to try this band thing out. The weird thign with me is thta I have always been up and down since before I even started with Matia- I had almost normal days. So my issue is that I can't tolerate new supplements wiothout getting worse or many new foods either. icould live like this ok but I want to be healthy not just ok!
 
I know we will get there. I  am glad to 'see" you. You have the coolest name!!
Take care!
Deirdre
ps- thanks other ladies- I am ok!