i'm new here. (interstitial cystitis)

Facebook iconTwitter iconGoogle icon

Forums: 

hello. i am new here.i am 33 yrs old. i was just diagnosed yesterday with IC. i feel like my whole entire world  has been ripped out from underneath me. i have anxiety & have had this for most of my life as well. This combination is making me feel absolutely helpless. i was a given a novel of prescriptions in which i am forced to start taking at this point becuase of fear i will cause more damage emotioanlly or physically to this IC. i am scared. i have always been one to listen to my body & to my heart & to my soul & God. i apoligize if this is all coming of 'corny'. at this point, i feel that everything but heart & soul is useless. i am came across dr. Brizman's website. i can't tell you how many tears i have shed thus far, & i know that i will shed so many more. i am digging down into my soul in hopes that i too will be able to share my journey back to good health. i have 2 absolutely incredible children, who need me to be me & a husband who has the warmest & best soul i think i will ever meet. i want desperately to find a path that will lead me to the feeling of recovery that i have read so many of you have posted. reading these stories i see many similarities of my own story. it can't all be a coincidence. dr. brisman's office is closed until july9th, this leaves me a few days to manage my demons :( after reading the awful stories of procedures & artifical stims i feel that this approach may be my only hope. if any one has any advice to share with me i would be eternally grateful. thank you so much for reading this if you have. theres must be a bigger picture to all of this.
molly-

mollyj79's picture
mollyj79

i have a random question: i am a very active person. we enjoy running at the park. just curious i haven't found any information in regards to excercise? thanks again-

Annika's picture
Annika

Hey Molly, welcome to icama.org . I´m sorry that this horrible condition hit you as well. But as Ally has already assured you, this is only temporary and can be reversed, no matter what other doctors say. I came down with IC by the end of January and stayed in hospital for 2 months. Doctors couldn´t find the reason for my pain and claimed me to have emotional problems only. I am fortunate to have found this forum pretty early and started the diet 3 months ago. One months later I had my appointment with Dr. Brizman in L.A. I went all the way from Germany to see her and it was totally worth it. I´m painfree and  I´m not suicidal anymore. In fact I´m emotionally stable and just started my own little business. I´m absolutely hopeful that I can become symptom-free and live a healthy and happy life! So glad that you have decided to give this treatment a try. It´s really worth all the effort. Good luck! PS: Regarding exercise Dr . Brizman told me to take it easy. Walking is a good option in the beginning. You have to feel into your body and make sure not to overdo it. Three weeks ago I went dancing and it was a lot of fun but by the time I came home my pelvic area really hurt. In my last appointment she told me I can try hula hoop again, but not too long and really carefully. Running maybe too much in the beginning.

mollyj79's picture
mollyj79

thank you again to anyone who reads this & takes their time to respond. i am wanting to get a jump start on getting 'somewhere'.. i have spoke with ally who was a god send, a little bit about the step 1 diet. any recipes or ideas of a 'meal' would be greatly appreciated, i feel i have so much to learn
molly-

ranjit singh's picture
ranjit singh

hi MOLLY.... it is sad that u r going through this ,but u will be fine ...i replyed ur email and gave u all the information wt i do and yes even i was very active and atheletic ...but now i just take a walk every day and no more gym....drink lot of spring water i forgot to mention that ....LOT OF ONLY SPRING WATER and take little bit of sun to boost ur immune system everyday