types of IC

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Has anyone been told that their issue isn;t so much the microbial imbalalance? I am again just feeling so upset. The appointments are never long enough. I have never had die off and yet I never improve so it isn't really great. Today, she told me that it is more of an issue with my tissue becoming inflamed and irritated easily rather than microbial or yeast. I can't remember if there were any cases like that in her dissertation (I lent mine) Any input? I just feel like I am in a neverending cycle and so afraid that I don't fit the profile of people who she has been able to heal.

 

So while many poele can rest assured that when they go through a bad time, it is their body gettign to a different level, in my case, that isn't true.. I wish I could hang on to the "necessary pain" idea but she flat out told me that doesn't apply in my case so when I feel bad it is just that soemthing isn't right.

Mimij67's picture
Mimij67

D, how much time does dr. B think it will take you? If you have inflammation then you still have a leaky gut like most of us. Not the Eastern way to think about it but it is how I think of it these days. 
do you have a history of IBS? If so, which type?

If we don't excel at health, the only other option is disease.

Rachel Ann's picture
Rachel Ann

Deirdre,
 
I'm so sorry you are struggling right now.  I am praying for you.  Let's talk when my jaw isn't so sore from going to the dentist. 
 
You are going to get better, I just know it!
 
love,
Lisa

cprince's picture
cprince

Deir thinking of you, and saying my prayers! If it is an issue with inflammation this will get better! I wish I knew when for your sake. Looking at Dr. B's dissertation she does discuss what is in excess: inflammation vs. microbial presence, but no specific case study just for inflammation. But, obviously things are very complex with stress/emotional factors, hirmonal changes with just having a baby, your yeast killing diet, that was obviously inappropriate for you, this set your body over the edge, etc. No die off symptoms makes sense if there is not a high presence of yeast/bacteria to remove from your body. Which is frustrating in of itself because you can't feel or see the changes that are happening! Things are happening, just at such a small cellular level and at a snails pace it is hard to see/feel the positive changes. Like I tell my patients with nerve injuries, you have to be patient, it can take nerves to regrow 1 mm/day, 1 inch/month, or 1 ft in a year, this is painstakingly slow, and can be physically painful during this process.  Our bodies will respond eventually, they have to, we are doing nothing but good for our bodies. Hang in there girl! Hugs!

livandlex's picture
livandlex

Deir I'm so sorry. You know I'm here if you need me. Hopefully we can get together on Tuesday and discuss. Hang in there...I'll see what I can find in the dissertation in the meantime.
Hugs!!
Claire

deir's picture
deir

Updating this-
 
I got some more clarification on this. Yes- I do not have an issue with microbial balance so much as the tissue is compromised and inflamesdso there is leakage from the small intestine. So bacteria is involved but much more it is the inflammation and wrecked tissue in my poor bosy. I asked her if this was harder to treat than yeast etc and she said in some ways it is. Of course, yeast can have its own set of complications. The pIll antibioctics and coconut (big time) are the causes of this. She also said the way people process stress is an issue :( This is what really scares me!! I have worked so hard to change my coping and stress reactions but the longer I am in pain and not living a normal life - the worse it is. I just have to have faith that the herbs and my continued efforts at self care will help me cope with this stupid 'Stress" ugh I am so sick of that word.
 
I used to be a happy person. I wasn't the most stressed person you ever met. I feel so annoyed that this is me now.
 
She did tell me she had a male patient that was in this situation ansdit took home 3 years to improve and now he is fine. Oh please LET THAT BE ME!!!! I am coming up on 2.5 years and my life isn't much different than it was when I started.
 
Thanks for reading.

deir's picture
deir

I wanted to add- I hope htis doesn't sound too depressing for some poeple. I hate to spread negative feelings. In some ways, it isn't really good news but it helps me in a way becuase I know I am not crazy. I haven't improved symptom wise  so at least I know why ,partially at least. Also- if Dr B knows what is going on now for sure, she knows better how to approach it. I just have to keep trying

Knparker's picture
Knparker

Hi, Deir. I'm new here so I don't have nearly the experience or wisdom to share, as others do. But I just wanted to say that you shouldn't worry about sounding depressing or negative. This place is a sounding board and should feel safe. I know I'm so thankful to have a place where I can ask questions or vent frustrations and just be "real" about this horrific illness and this whole experience. The people here understand your despair and have felt it themselves. 
Thinking of you and hoping you turn a gigantic corner soon. You deserve it!!
 
Katy

cprince's picture
cprince

Thanks for the update Deir. At least you and Dr. B know what is going on, and good to know she has had success with another patient presenting in a similar way. You will get there, but remember not to set your mind to a date again. I think this just lead, I am going to say it STRESS! Don't go there girl! Your body is working it's magic. Hang in there and try to just breathe! Saying my prayers!