will it ever change?

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I am 10 month in treatment and things are not changing for me. i know Dr.Brizman is doing her best and i know she is the best and helping so many people but for me things are just stuck in the place  my bladder is doing really really bad. i follow the diet and doing everything Dr.Brizman says but i am just not responding to the treatment. i feel like giving up and i just don't know what to do.
cathy's picture
cathy

I am 9 months into treatment. The changes can be so subtle you dont notice them. I look back to how I was a year ago and can see a difference. Sometimes you have to look back to see how far you have come

deir's picture
deir

DOn't give up! Some people are very slow to respoond. I try to remember that each change she makes takes her a little closer to figuring it out and all along, some internal changes are takingplace that we may not feel

Divaswearred's picture
Divaswearred

Don't give up! Some people take two years to get better and then they experience a big shift! I see this in my practice all the time. It can take years to get there and a few to get out. What does dr. B say?
yes, travel back to the beginning and see how you have changed even if only slight.
 
pray and respect your stressors if possible. I cleared my schedule of patients this Tuesday to allow some healing. I had to make space for myself. Also journal like crazy and know that you re doing the best thing for yourself!
 
i will put you in myprayers too!
Please don't give up, the shift is near!
 
carey
 

Rachel Ann's picture
Rachel Ann

Adi,
 
I have been in treatment for over two years, and there have been a lot of ups and downs.  My bladder would feel a teeny bit better for a little while, then things would flare up and last a while until the next time when I would feel a little bit better again.  My bladder is finally having some really good and calm days.  
 
In the beginning, I had many more bad days than good.  But now my good and bad days are about equal, and the good days are much better while the bad days aren't nearly as bad.  Eventually it will turn into more good days than bad until the bad days are gone.
 
Hang in there!  Things will get better!  I bet you will turn a corner soon.  It seems like the times when I felt like giving up were right before I experienced more relief.
 
Lisa

Tinkerbell7's picture
Tinkerbell7

Adi, I wish I could hug you!  Please don't give up.  Even if you do not feel differences in your symptoms yet, be confident that changes are happening inside of you!  We experience symptoms to let us know that something is wrong inside.  If something is still wrong (even if getting better over time.. but not all the way there yet), we will still have symptoms.  I started treatment with very high levels of pain 24/7.  It was very difficult to notice any physical changes in the beginning because I still always had pain... it became difficult to judge the level of pain after awhile.. pain was pain, no matter what the level, so it was dicouraging to me.  I had to start judging my improvements by my function level, measuring things that I could do that I perhaps could not do before, i.e. standing up long enough to fold a load of laundry, being able to walk to get the mail, etc. Very little things at first.  Those things began to become bigger and bigger after while... trips to the grocery store, vacations, etc.  My best suggestion is to try to take note of the small function/ability things and hold onto those.  But please don't give up!  Changes are happening, and you are strong!