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Besides my over use of antibiotics/ Pill in my early 20's over about a 2 year period, I fit NONE of the variables she mentioned for long cases. I suppose mine comes down to mystery. SO frustrating. I just don't understand. :(
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Hello,
Hello,
I'm sorry that her blog didn't help you. I've noticed how much you seem to search for the why of all of this. Please don't read any judgement into this. At the moment I'm supposed to be enjoying myself on vacation - I've sent everyone else out of the hotel, isolating myself with fears that have run rampant through the night.
Like yourself, I am so tired of the struggles that life has given me. Unlike you, I fall into so many of her categories, I am overwhelmed and saddened by it.
Hanging in there with all of you
Hey Denise-
Hey Denise-
I hate vacations!!! You are not alone in that.
I guess I seem like I am looking for the why because I am! My deepest, worst fear is that I am not doing the right thing as far as healing my IC. I am always thinking, "do I need to take this out or that or do this or that"
It is ok to be tired of the struggles- I am working on a song for a concert that has this as a last line, "If you can make it through the day, it's not that far. It's not that far" (picture those words with a pretty tune)
Deir, I hear you! I only
Deir, I hear you! I only begun taking some vitamins after IC and before Dr B. Other than that, I fit into none of the categories discussed. However, there is a reason for the imbalance......it just hasen't been discovered yet. There are also other possibilities.....as Dr B wrote ( sometimes she misses things) and there is much she does not test for which could be of concern. As you know, I have had other tests done regarding the toxicology of my body which has unlocked some other imbalances. As I find out additional information, I share it with Dr B and then we work on it together. I am not completely healed, but my bladder feels better. Will I ever heal completely? I don't know, but I keep researching, looking for my own answers and if nothing else it helps me feel proactive and keeps me from gong insane;)
Very frustrating. I hear you.
Very frustrating. I hear you. Equally frustrating to me is hat MANY people have MANY of the things on that list and do NOT have IC. So you see how nearly random in a way this is, and how complex.
One of the things she discussed in a very early interview was weakness in the bladder/kidney meridian on a constitutional level. So one can be born with this weakness, wether through deficiencies in the parent (which are common), low birthweight, slightly premature birth, c-section, or exposures to unknown things early in life which would allow epigenic changes deep in our cells. Who knows? And then you only need one thing, such as ABX to shift the balance. Deir, didn't you say you took cider vinegar too? That is in addition to ABX and is similar to ABX. I think some of us only have a few of these things. Eeek I have a lot, but not to a large extent (did not have big history of abx use, but a few zpacks now can change one's destiny, this according to Dr. Blaser who just wrote Missing Microbes. He said most children will recieve 4 rounds of abx in their early lives and this will most definitely set them up for chronic illness.
If we don't excel at health, the only other option is disease.
Yes- i know the apple cider
Yes- i know the apple cider vinegar was an issue of course. I guess my question is- Why is this takingme so long if I have had so few of these categories?
Katie- I guess I need to seek out tests etc. But I kind of just can't deal with that prospect somehow- not to mention- I can't afford it right now.
thanks
I was hoping Dr B would
I was hoping Dr B would detail some long cases that actually recovered! I want some success stories that are over a year or 2.
I really felt like I had turned a corner a few months ago and now for the past 3plus weeks, I am back to my crazy patterns. It is beyond frustrating. I know everyone has had a rough time. Thanks for reading and caring! Something willl change for me at some point, just not sure how
It would be nice to see some
It would be nice to see some long term cases that have recovered, it would give insentive to keep going. Dr B told me it was my long term use of antihistamines that caused my IC and that was mentioned on her blog. I am sorry that you are still struggling after being in treatment so long. At first I thought that I would be better within a year, Dr B never predicted how long it would take, though said I would not be difficult to treat. I guess I thought that meant I would heal fast but have come to realize it did not mean that just that I really have not had to change my protocol too much, just adding things in here and there. I have been in treatment approx 17 months now but I feel like I am about 60% better overall, but I know I will get there eventually, one day at a time.
Cathy- sounds like you are
Cathy- sounds like you are doing well actually! 60% is really good.
That is good that your protocol has not changed too much- that is part of what drives me crazy!!
I guess I would put myself in
I guess I would put myself in Cathy's camp, LOL. In treatment about 18 months and I have had chunks of releif, but something always comes up and I have niggling symptoms. Usually it is hormone related but sometimes random. I have a great protocol and it has not change in several months now except a few things. I feel good that I tolerate a lot of foods and Juice Plus and vitamin D which I know will help me a lot. I still have a lot of bloating, which means my digestion is still weak and needs untangling. She says she always does untangle it, but it is frustrating to not fit in my clothes or feel good in my body despite all the hard diet work! for the most part, except for some mid-day fatigue I am very functional so feel good about that. Dr. Brizman says one cell at a time!
If we don't excel at health, the only other option is disease.
To me so much of Western
To me so much of Western Medicine is the magic pill concept. Look at cancer. My friend felt the chemo would cure her, it was her magic pill. She continued to eat sugary treats, no exercise, not interested in water etc. I'm honestly not judging her but the treatment. The magic pill didn't work, and she passed away still puzzled and confused why it didn't take care of it. I miss her everyday, but the truth is Matia's way is far better. It's the whole body she's addressing not with a magic pill but a turnaround in diet, attitude, being pro active in your own healing and patiently waiting for the good health to materialize. We can see what the magic pill concept has done to medicine. The antibiotics that take care of the infection destroy our intestines , the birth control pills do too as do so many modern pharmaceuticals. Oh they cure it for a while but we all laugh don't we when the ads on tv tout the latest magic pill and then list the side effects that actually seems worse than the pill. So the magic pill concept, though ingrained in us doesn't really work. Patience, being pro active, following a given diet and exercise protocol, learning to adjust our attitudes as much as possible to the positve and the thankful, all this can and does spawn much better health and well being. If only like Matia we had taken care of our bodies like crystal that needs loving care, earlier in our lives, perhaps we wouldn't be ill. But this I know, finding Matia and her protocol and her patient compassion and caring for us all is a blessing. We can learn from her how to take care of ourselves and eliminate these health problems. Does it take time? Yes Patience? yes faith? yes and above all it takes determination to never give up. This is a lifetime learning experience for us all and I for one am deeply grateful to have found it in time.
Julie,
Julie,
I share your gratefulness in finding Matia. Even though this road is long and hard for me, I am glad to be living in a place of hope that I am getting better.