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Hiya all you UK girls, I don't know about you but I am feeling a bit lonely and fedup with being a bit out on a limb here. We are probably all in different areas so can't have meetings but I am definitely going through a phase of wanting to talk to others face to face and share ideas/experiences as I am really sick of my diet now and feeling cack on a regular basis. Sorry I am just ranting! Arrrgggghhhhhhhh! I am having real trouble eating even though i'm nearly 4 months in...I work long hours, absolutely loathe cooking anyway and find myself just steaming up veggies and chicken. I occasionally make raw chocote which seems to have no effect but tastes amazing....thank heavens for small mercies. Anyway, if anyone has any tips for eating/where to get foods or just generally wants to natter, get in touch. Sometimes this darn illness makes us feel very lonely...especially when friends still ask you if you want a biscuit despite you saying a zillion times i'm not allowed one chuckle chuckle!
Ria x
I know
I am almost 4 months in and peeing more than ever, and so sick of this. I thought I would have at least a little improvement by now, but I am not..so I scares me into thinking I will not get well with this program. But, then there are others who have been in a year and have not felt bladder success yet...So I guess we are still really early in treatment, even though it feels so long. Some of us keep touch through face book, I will email you and give you my email so you can find me! I would love to chat with you.
Thank you that is wonderful!
Thank you that is wonderful! I tried joining an american facebook group and telling them about Matia's treatment...and after several rude emails and being called 'the fake english girl' I decided not to bother as they obviously enjoyed wallowing in their own self pity. I made three good friends on there that were interested. I thought about starting a UK one up...if there is one going then super as my partner finds it incredibly hard understanding my illness and I am incredibly depressed trying to get him to understand how debilitating it can be. I know what you are saying though...it's so bizarre because before I started the programme I went into regular bouts of remission. Now I hardly get any rest bite. Thing is, my terrible acne is gone, skin is glowing, my energy is through the roof, people tell me how well I look and yet my bladder still feels awful. I don't get it!!!! It is so hard when people say 'you don't look ill' yet your undercarriage feels like a furnace. Thanks for getting in touch! x
Would love to chat
Hi RiaI know we chat occasionally by email but I feel the same. Are you in Brighton, I'm in Tonbridge I know its only about 1hour & a quarter by car if you go via the Ashdown Forest.It would be interesting to see if there are any other of Matia's patients in the south east. Lets hope for more replies.I work full time too so if we met up it would have to be a weekend or we could chat on the phone.Is raw chocolate OK? I'm just about to move onto list 2 so probably not for me but its something to look forward to I suppose.I will email you my phone numbers.Carole
Are any of you on Skype?
Are any of you on Skype? Maybe I can figure out some sort of cinfrence call where we all have webcams to see eachother. Now I feel like hell and I know you all understand so no dressing up here. ;) IF i can't figure that out Friday theres always the option of staying on the line. I have just gotten over a feaver and still going through some rough die off so not sure how I am going to be but If I am feeling up to it I will certainly hang on the line. Also I have the sunday chats confrence call and once you have the number any one can arrange that call I did set it up but I dont have to be there. I am sorry i haven't had as many as of late I just have SO much going on I need a headset so I can still get my stuff done.
UK
Hi Ria, I'm in the UK, have sent u an email.
I'm on skype, used it to talk
I'm on skype, used it to talk to my family at home when I was in Santa Monica for my first appointment. Don't know much about the set up though I would have to leave that to hubby.