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I just wanted to post this for anyone who is having a tough time right now. Or for anyone doubting that they can actually get better and "be normal." I have been working with Matia for about 5 years now. (I was incapacitated, in constant and acute pain for years before I met Matia). I have had many great days like today much earlier in treatment but for some reason I thought I should post this - today. Maybe someone out there needs to read it. I know positive thoughts and success stories helped me keep going when things seemed like they would never get better. This is the short description of my GREAT day!! This morning I had wonderful sex with my husband with no pain (during OR after). After that, my husband and I went to lunch - to a great buffet place that has super clean food with the majority of it veggies. I had no pain sitting. Just had a good time, ate some good food. I then worked for several hours on the computer - financial stuff, really tedious. I work standing up now - gives me more energy, less stress on my neck, head, shoulders. Felt great while working and standing most of those hours. I then went on a beautiful, fall weather, hour long bike ride with my husband and our "Pigapotomus" (that's just one of the many dumb names we have for our sweet dog). When I got home, I finally put up some Thanksgiving/Fall decorations outside my house. Worked on that for about an hour. Looks nice! Now, my husband and I will probably have some tea and watch a movie on tv. And still, no pain. A boring day for most - but not for me!! I NEVER could have dreamed that I could have a day like this before I met Matia. I still couldn't have imagined it when I was as far as a year into treatment, maybe even at 2 years. But it's REAL now!! I live like this most every day in terms of my pain level and my ability do most anything just like a "normal" person. I venture to say I am healthier than most people now actually. I still have issues that I'm working on with Matia but I'm ok with that since I have so little pain! For anyone who is suffering, please hang in there!!! I truly believe that you can get better. I truly believe that Matia can help you get there. Follow her treatment as best you can. It takes a VERY long time but what are the alternatives?? There weren't any for me so I just kept trying to follow Matia's plan. I am so thankful I did. And I am STILL getting better. HANG IN THERE!!!
WOW!
Thanks for the encouraging post!!! I really needed to here from another patient who has recovered from IC pain. I am looking forward to having great "boring" days in the future LOL.
thank you
This is perfect. Thank you so much for posting this. I am still dealing with vulvadynia and painful sex even though I feel better and am in much less pain in my bladder/vagina now. I still have a waaaaaays to go it seems. I really need encouragement for someone who is still in the thick of treatment and and to hear that is possible to have a normal feel great sex life again is soooo needed! I am scared my nerves are eternally stuck in pain or that the micororgnaisms causing my VV are never coming out!
BUT it seems like its not so much a question of "if" it will happen but more a question of when- but I have made it this far and I am determined to get beyond "better" to full on healthy. Thank you for this proof and amazing encouragment. There are not enough people posting stories like this. CALLING ALL VV/IC patients who have fully recovered - please post your VV ( specifically) success stories! We need to know that others have done it- I know many have in theory but a personal story is so relatable and hopeful. I vow to post my story when I have recovered. I PROMISE to check in on ICAMA as well. wishing everyone healing and light.
Mary
This was such great
This was such great post!
I've known Matia for 6 years and this is my second time in treatment for the past 3. I know it sounds scary to so many beginners that it can take this long, but I'll say what Matia usually says: everyone is different. I've had vulvadynia and a million more bladder symptoms before I've met her, had no life, was severely depressed, and today, even though I am still struggling with some issues, I have MONTHS of these "lazy" days with no symptoms at all. But as impatient as I still am, I get very annoyed when another semi-flare strikes, even if each one of them is just a fraction of the previous. After all these years I am finally understanding that it is a blessing to be forced into learning a totally different way of living, no matter how long it takes. Yes, this road is super long long and super hard, and you have to be completely desperate to embark on it, but with all the setbacks, at 40 I feel healthier and stronger than I've ever felt. It is all so worth it!!!!
I just want to say that I did
I just want to say that I did treatment 2009-10 and had a great summer. Just a month ago I started to feel twinge pain in my bladder and I thought it was because I quit taking my maintenance probiotic for 4-5 days. But I have continually gotten a little worse, even with the fish oil and probiotic. I started a few herbs and finally the pain got my attention to change my diet. I had been eating way too many sweets and processed foods. Last week I went back on the meat and veggie diet. I called Matia, and have an appointment on Tuesday (after not talking to her for 5 months). I had a rough week, but today had a much better day. I even did a Zumba class and went to Farmers market and got grass fed meat, organic butter and eggs, kale and lots of veggies. I just want to encourage everyone to stick to the diet. It took me a relapse to really "get"it. An added benefit is my acne seems so much better too... and I am 53! Acne is a symptom of chronic candida. I need lots of prayer to help me get serious about sugar. The halloween candy, and birthday cakes must have been to much. The pain helps to make it easy to avoid the sugar. When I am in pain, I feel like it is poison and I can be super strong. I would love to hear any tips of what to do when you feel great.
IT WAS ME!!!! (prolapse anyone)
Dear dear MR203: ...i feel you were answering my call of anguish......
Thank you for following your intuition to post this encouraging and comforting message.
I was doing so well!...not perfect, but so much better..yes, having some good days like you describe...and now, with a change in protocol, trying to answer some symptoms, a crash!...a deeper downer because I had been improving.
It 's been just over 2 years for me and I've been through all the ups and downs, accepting them as evidence of positve change and steadily improving...soo grateful to have Matia..I really don't think I'd have made it without her...we all know the emotional struggles alone are a challenge. but this time I was beginning to doubt and all the more afraid because i had nowhere else to go....I can NOT say enough about reading your post... I see you have been at it for 5 years and ask myself how far I'm willing to go to overcome this problem..and yes, dammit, I would go the distance to be well....Thank you and also to all of you...Can you imagine not being able to share some thoughts with other IC travellers on this board? What a difference it makes to me. I will try to communicate more often.
My current struggle is inflammation causing swelling of the bladder causing a mild pelvic prolapse to protrude..cannot walk or stand much while all other symptoms are pretty much under control and while am experiencing a surge in energy...very frustrating.
I cannot find any others mentiong a prolapse...I would sure like to hear if someone else is affected by this??
sending warm wishes to you and all.....HANGING IN THERE!
recovery
hi, i,m 3 months in with Maitas treatment and already 70% better its fantastic ..but i,m not expecting all the recovery to go up in a straight line , ready for some ups & downs...so reading your posts so inspiring thankyou. and i wish you many years of good health ahead. x