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Hi ladies, I have been doing SO SO well since I started the protocol in September but I have had a flareup all day today during work. I've tried to tough out the comments at work (oh, she is sick again) but I just cant take the pain. Luckily, my next appt with Dr. B is tomorrow late afternoon and I was so proud that I was doing so well and hoping to move to List 2. I think I either had too much salt or had some ham (which I realize now is NOT OK) and the ham had some hickory favor seasoning. Or, too much garlic & salt? I dont know. My pain is burning in my vagina, frequent urination (3-5 times/hour), I feel like I have a head fever and now a headache. Not to mention I started a sore throat this morning. Since this is my 1st flareup in about 2 months and I used to use Baking Powder BEFORE I started seeing Dr. B, I would like to ask you all what has helped you calm this down? Please, anyone, my anxiety has skyrocketed in the last 8 hours and now that I'm home, I'm cloe to tears but I know emotions will make it worse. I also think it started last Wednesday due to long work hours with no break and alot of work stress to meet a deadline. I mean, I worked 33 hours in 3 days. Seriously - I had no choice.. My period was due 11/7 but finally started 11/12 and it just stopped today. Could it be period related? My back is burning, I'm scared and I know that I need your support to get through this. On the positive side, I have an important interview being set up (which I'm hoping is next week so I can pass through this flareup).
Any advice for those in treatment and what Dr. B has prescribed? Have you tried anything homepathic for the frequency and burning? I'm drinking ALOT of water.. But then I get up and have to go pee. Dr. B told me to buy Carlson's Vitamin D3 400 IU.. I took it and I dont know if it caused more burning or its just my anxiety.
Sorry to be long winded, scared since I was doing SO well.
Newbies, I dont mean to scare you. I trust & believe Dr. B 100%, I just am looking for support from those here so I can get back on track and stay mentally focused. I know I cheated thinking "I'm doing better, why not try the ham or extra salt?" and now paying for it...
Thank you in advance. I think I may try a warm epson salt bath until I hear back from anyone on this site.
I'm sorry for your pain and
I'm sorry for your pain and suffering. I can't say there is much Dr. B will allow as far as homeopathic flare reducers, but it sounds like either it was from the ham, the stress, or the introduction of vitamin D or some combo of all three? When it's food related for ME, I find that within 24 hours I am better again. So, perhaps if that isn't the case here it's comething else? I know stress plays a huge role so perhaps taking lots of deep breaths, putting in a meditation CD or a yoga tape will help you focus on something besides the pain. I also like using hot baths or a hot water bottle when I have these flares. Sorry I can't be more helpful, but rest assured that this too will pass. It could be part of a healing crisis as well and it's a good sign that things are clearing out. Perhaps the inflammation has been set off by the release of stored up toxins which, although painful and tough to bear, is always a good sign of brighter days ahead. Good luck.
Just keep telling yourself-
Just keep telling yourself- THIS WILL PASS! I am FINALLY able to do that after 6 months. Focus on how well you were doing. If it was me- i'd blame the ham! At least you have something to blame! It's great that you have a phone appt soon. I'd email her too tonight. Hang in there- you'll get through. Focus on how WELL you were doing. This flare does not erase that!!
Hi Adriane, I really hope
Hi Adriane,
I really hope that you are feeling better by the time you read this. I feel your pain and frustration, cause this last month has been so stressful for m at work as well, our company lost 3 people now putting all that extra work on me, similarly i work 10 hours and 2 plus hours commuting to work. Anxiety and stress immediately effects me. I try to listen to pandora and create stations that are soothing, meditation music, even try holiday music as for me it gives me hope and cheers me. Seeing matia and having her adjust your supplements will sure help you get out of this flare as soon as possible or at least so that it's tolerable and you can get through work. This week i had one of the worst flares i had since i started seeing matia. It kept getting worse for 2 days and finally the third day i couldn't take it anymore as it felt like i had knives in me turning, with aweful urethral pain. In your case, i believe its the ham besides from stress but just curious did she ok you for the vitamins? Please hang in there, there is good days right after bad, and when you finally reach the good days, it's amazing. My flare was probably due to sex, and still trying to understand if my husband's having sushi and beer had any role in my flare through kissing. So frustrating not to be able to have intimacy with the person you love or if you do feels like a punishment for having fun. Warm bath, drinking a lot of water and trying not to get emotional is the best you can do on your own. Focus on the fact that this is temporary and you will get over this as well.
selichan- had a huge flare
selichan- had a huge flare last week after sex too. Th worst I've ever had. Sorry TMI but I think it was from oral sex. Not sure if the orgasm did it or maybe my husband ate or drank something that bothered me or through salva. Ugh. This is the most horrific part of this for me.
Adriane- hope you're feeling a bit better.
Hi deir, so sorry to hear you
Hi deir, so sorry to hear you had a flare after sex too :(( I did a lot of research on the site about the oral sex factor, and a lot of it seemed to point out to having protected sex and not swallowing the semen. I thought it'd be ok to let my husband do oral sex, but in the back of my mind i was so hesitant cause he had just went to dinner with his friends and had sushi, and i am sure beer with it. I didn't want to ruin the mood so i went thru with it and honestly i am still suffering from it!!! I thought it could also be the rhodiola i just started for low anxiety and stress due to work, Matia said it'd be good on my bladder like ginseng, but after my flare, she stopped it. I still feel a lot of pain today and if it doesn't go down another level soon, i'll need to ask her for help again. Hope you are feeling better by now. Kisses and hugs
Epson salts
Hi Adriane, I hope that you're feeling better. What I have to say may be too late. BUT, unless Matia OK'd the Epson Salts - I'd not do it. My IC is fairly mild - especially after 18 months of treatment - I've noticed that a bath can still cause some irritation. I've also noticed that any time that I use Epson salts I end up worse - not better.
You ARE going to get better. When you feel this bad - I would E-mail Matia right away - she does expect it. In the beginning I NEVER contacted her until months in and I was near the breaking point. I told her how sorry I was to bother her between appt.'s - that I wanted to be her one patient that NEVER bothered her. She kind of let me know that she wanted me to let her know what was going on. Damn - ruined my perfect track record (think we're all over achievers)
Take Care,
ha ha ha ha
ha ha ha ha
DLFox123- I was trying not to
DLFox123- I was trying not to bother her as well in the first 4-5 months unless she told me to email her re: new protocoal. Then i had one bad month and she was upset at me for not letting her know. She said i should let her know so she can help. I always thought to deal with it the best i could knowing there will be good and bad days but i broke my good record now and if my pain level goes moderate-high, i let her know. i can't imagine how she gets anything done, when i am sure she is seeing so many patients and replying to their questions. But she never makes you feel bad and is so good to reply.
Hey adriane, so sorry to hear
Hey adriane, so sorry to hear of flare. I know a UK patient who had been doing super well and then had a terrible reaction to some bacon, so could definitely be the ham, I'd say (she's doing great again now!). How are you feeling now? And do, do mail Matia. I remember having a really nasty flare back in July, and mailing her just feeling totally miserable, and she said, "I know it's scary, but, I promise, we'll get through this". It helped so much (and she tweaked my doses which helped hugely too).
Matia is wonderful!
Hi ladies. Yes, its super early but being that I finally got a good 8 hours of sleep, I felt inclined to reply back. THANK YOU everyone for your support. Without you, I know I would have gone back to being depressed and square one. Matia is so wonderful, she was truly able to help me get through this (just like you ladies all told me). I have to be honest, I thought it would continue for days but she knows what she is doing. She truly is a blessing to have when dealing with this illness.
After hardly sleeping 2 nights ago (pain, anxiety, panic attack), I only had to get up 3-5 times that night BUT the pain was less intense than previous episodes. She emailed that night to check how I was doing. I told her during our scheduled call yesterday that I had a bad night and she is going to adjust my supplements for my sleep deprivation, anxiety and cold stone feet. I also learned that you must be strict about the supplements you take. I casually told her that I was running out of Imperial Elixir Siberian Root and spacing the doses till I got my refill in the mail. I learned that this would take me back to a flare so exhausted & sleep deprived as I was, I drove 1/2 an hour to the nearest Whole Foods last night and stocked up. Boy, I had NO idea but lessen WELL learned.
The night before, I tried relaxation music, praying, a cold towel over me eyes to get back to sleep but as I explained to Dr. B, once I hit that anxiety level, I cant snap out of it. With time, Dr. B told me this will improve and I believe she is right. I had no idea about the Epsom salt (which I failed to ask her but I will email her in a few days since she wants to know how I'm doing so I will ask then).
The good news out of this and much to my surprise is that despite this flare, since I had been doing so well, Matia is allowing me to start Diet 2. I will cautiously go with it and see how things go. I will write more later since I'm typing in the dark so to not wake up my husband. Thank You ladies, you truly are the best support group!!
Adriane, so glad to hear
Adriane, so glad to hear you're doing a bit better and that Matia was helpful! Really hope you get a great night's sleep tonight. Sending positive, healthful thoughts across the atlantic!
Adriane, Guess I am late to
Adriane, Guess I am late to the party;) I am so glad you are feeling better. I am finding that when I do get a flare, they are less both in intensity and duration.
Sending good thoughts your way,
Katie
me again....
So I woke up feeling well but have not felt well at all today. Primarily, a headache and my bowels are back to being irritable. I used sandalwood oil for my headache which Matia knows about. It was very little amount, like a pea size but just a dab. I didn’t get the feeling she wants me to but it helps and I cant keep going home ill from work. I emailed her this morning about my bowels and said to increase back to 1.5 caps if I feel this way again, but I scared to…
I’m wondering if my anxiety is still there that the flareup may come back? Are our bodies that sensitive? When will it get better? My back feels warm again and some discomfort in my Vag but I have drank close to 70 ounces of water (Matia reminded me that I should be drinking 80 ounces/day). Do I email her? Or, could it be my anxiety/sitting at work all day long… oh, the ups and downs of this illness, I try not to worry about this. Somewhere today, I read someone stated recently that IC and people with anxiety are totally related. What do you ladies do to reduce the anxiety? If you see a therapist, how do you find one that knows what IC is and can correlate the anxiety/stress of this disease (if that makes sense). I’m considering this route as part of the healing but the cost factor… Also, how many of you notice that there is minimal pain with just walking? I don’t do much of that here at work but on the weekends it’s a different story.