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I don't know if I will ever be able to come out to see the doctor financially or physically. But none of the doctors here seem to know anything and just suggest medications and invasive procedures.
I had a panic attack tonight and have felt suicidal again. I worry what is going to happen to me and who will take care of me, as I am alone. I am driving my mother crazy and she is in her 70s. She is he only person I have, but this is killing her. I was supposed to be able to take care of her at this point. Now I'm the one who is sick. She wants me to have the hydro and take elavil and other meds but everything I invest bothers me.
I am looking for some strength. Not sure I will be able to go on much longer. I haven't found any doctors here who can help me.
Please do not lose hope
Dear Me,
I know that this is incredibly hard. I´ve been there, too. I am alone, I am a student so I barely have money for food & rent, this nightmare started just after finishing my MA degree, so I could not really start any career. I was tester positive for lyme, chlamydia, strep, candida, etc., just seems like blahblahblah to me now, because I guess this is not a bacterial invasion, but an immune system breakdown. I live alone in an appartment (well, that is one room in fact):). I have a serious chronic fatique along with my IC pain, IBS and many other problems. And yes, I had like two panic attacks, both at night. Now I am a little bit better, but like some 8 months ago, after several rounds of atbs I could only lay in bed, in severe pain, exhausted, humiliated by doctors (one even told me that I should like what he is doing while examining me vaginally, not being in pain - he is an urologist).After all those medicals, my kidneys kinda collapsed. I was only crying and planning suicide, really. And I almost did it. I have a grandfather who is really really old and can not do anything for me, but I know he loves me deeply, and I knew that if I ended my life, it would end his, too. That stopped me. I am still depressed, I know that, who wouldn´t be. This sucks.
My family lives in another town, and they are not supportive at all - in fact they think I am crazy (well my grandfather doesn´t, but he´s old and he´s the one who needs the support), in spite of the fact that in past they considered me as a very rational person (too rational and too intellectual, I guess):).
During the past few months, I tried to heal myself with herbs, accupuncture, anti-candida diet (not very strict one though) and vegetable juices. It helped some (mostly buffer the atb/antimycotic chemical treatment, which was crazy and badly indicated), but I am not fine and I do not want to spend the rest of my life like this. But I got better without chemicals and without seeing a doctor in six months! That is encouraging. Sometimes I regress, but I am not a zombie just lying in bed anymore.
I don´t say going to see dr. Brizman is the only choice to get out of this. I am convinced that there are many ways in fact. But, I decided to give this a try. I am from the Czech Republic, and it means to travel more than I´ve ever traveled, and alone. I must go to Vienna by bus, than change the plane one or two times, it takes a lot of time and I know that if I am tired, without proper sleep and if I am in air-conditioned spaces for longer periods, I regress A LOT and feel like a zombie again. I am so so scared that after landing in LA, I won´t be able to take care of myself. But, in spite of that (and trust me everyone around me just think that I am completely out of my mind, chasing some crazy doctor in LA) I decided to do this. Not because I am so convinced this would heal me once for all, but because it seems reasonable to me. This doctor specialises in what I have. She probably knows what to do. There is some evidence that it works for certain people. Maybe it is going to work for me, maybe not. I am a sceptical person. But, it seems like something worth trying.
And - important thing, I mentioned it somewhere here, I know that this is personal and maybe inappropriate (sorry), but I am taking a loan. You know, I never had a full-time job since I had no chance to get and keep it. Czech republic is an east-european post-communistic country. This is a huge amount of money even for an average Czech citizen. Which I am not. I only hope I will get better and be able to earn the money in the future.
What I am saying - my heart goes out to you, really. I know that this is difficult and insane. But I have seen many people recovering from the most terrible conditions, and there is still a chance. This is not a death sentence. It kinda challenges all we are, but there are people who could beat this. If they could, why not me and you. No matter which path is the right one for us.
Maybe trying to make up a short-term plan could help. Try to create a what-to-do list for next few months. Breathe. You are not alone. Don´t give up.
Aya- I wish I could help you
Aya- I wish I could help you directly. You sound very brave and committed. Best of luck. (((huGS)))
I did instillations and
I did instillations and hydro distention. Never again. It was the worst time of my life. I still have PTSD flashes.
Why don't you spend some time searching this site and learning what this is about? Perhaps it would help.
Even without seeing Dr B, list 1 diet may bring you much needed relieve in the meantime. It helped me even before I flew to CA. It helped me with depression and hopeless thoughts, too.
This site can give you hope.
This site can give you hope. read the success stories and old posts and stick to list 1. When you start to feel a bit better, your emotins will be easier to handle. All of us have been (and still are sometimes) scared and frustrated but I know for me- I am never hopeless anymore because I know I am on the right track. Can you stop depending on your family for support? What about a friend? Hope you get some relief soon.
Just wanted to second what
Just wanted to second what everyone else has offered and I especially can relate to what Aya has said. Although I would suggest you seeing Matia if at all possible, you can also get a lot of support from this site. This is the place I get mine - not from friends or family - they can't possibly understand, people just don't unless they've been through it themselves.
The results of this regime speak for themselves.
Thank you all so much. I had
Thank you all so much. I had a terrible panic attack last night. I want to be well more than anything on this earth. It's hard for me to control my fears sometimes. I had to leave work today because I was upset. Thank goodness my boss was understanding.
If I see anything hopeful out there on the topic of healing I am going to start posting it here to give others hope. I would appreciate it if any of you would do the same.
I did instillations and hydro
I did instillations and hydro distention as well. It made me worse. Also taking a bunch of the Western IC medication. They only help temporarily then after time,( for me it was a year) you get worse.
I know it is not recommended to self-treat, because everyone is different and reacts in different ways to different treatments. But if you absolutely cannot make it to Dr. B right now maybe you can follow the diet list 1, and try some herbs for now until you see her. I saw that someone posted on here that they took the "Oreganol" oil of oregano before they saw Dr. B and that helped them a lot before they went to see her. Also for me, before I saw Dr.B I would drink chamomile tea everytime I had a flare and that really calmed things down. Or a nice hot bath helped me out too. Also for me, my top flare foods are Sugar, and Gluten. If you can stay away from both of those it may help.
I really hope you can make it out to see her, because I know that I wouldn't be able to do it without her. I know a lot of people that have posted on here that try to do it themself and although it may help temporarily, I don't think they get better in the long-run without her.
Maybe you can set up some kind of Dr. B fund, and see if you can get anyone to donate to help you make it out to her, maybe give a mailing address and see if people will mail you a check.
I wish you luck, just remember you will get better. And there is so much to live for!