Forums:
They say the gut lining replenishes itself in 24 hours. I read a book about leaky gut, and it said that the the gut lining is replenished in, I think, 4-6 days. If this is all gut related, and possibly leaky gut syndrome, I wonder if a person could just be fed intravaneously for a few days until their gut healed. Just wondered if any experimentation along these lines has ever been done with IC patients.
I was wondering about it,
never mind
I say this gently: Please
I say this gently: Please read the guidelines at the top of this forum. With all due respect, those of us who have made the leap of faith to invest our time energy and emotion into this difficult treatment do not need to discuss other options right now. There are many IC discussion forums on line. This one is to help with people going through treatment or considering it or some variation on that. Maybe I should just speak for myself when I say it isn't helpful to me to talk about other options with treatment. I've had to devote myself 100% to this or else I can't do it!
I feel so much for everyone suffering with IC whether they go with Dr B or not but I think we should keep this forum about what the guidelines at the top specify.
I also ask that no one argue with me because frankly we've got enough prioblems right now!!! LOL If you disagree- just keep posting whatever you want- don't engage me personally. Thanks.
With all due respect,
With all due respect, everyone is entitled to their own emotions, experiences, and opinions.
There is also an option of filtering or ignoring information that bombards us every day.
It just sounds like this
It just sounds like this treatment is about healing the gut. That is why I posed the question. So I wonder if completely eliminating food a few days and being fed intravaneously would remedy the situation, seeing as how the gut lining is supposed to repair itself quickly. If so, seems like that would be something worth checking into by at least one doctor because it could save a lot of people a lot of trouble.
I understand that the forum is about treatment here. I am in the process of trying to decide whether or not I will seek treatment here (due mainly to travel and expenses). But I also think it is good to share ideas with other people about this illness, in the hopes that someone will make a connection.
I am floored that doctors do not understand this disease at. all.
*
Me--if you want to look at the various studies on iC, medical abstracts are available on pubmed for free. You can also find out about clinical trials here:
http://clinicaltrials.gov/, not to enroll in them perse, but also
I see your points ladies, but I think its interesting to hear about what other people went through. Blondy was just saying what she considered previously, and I think she should be allowed to do so. As long as you're not advocating other treatments, I don't see why this cant be a place of discussion.
I know about the fragility of early treatment, I too when I chose this path, I chose to only focus on Matia, because ultimately she has the best grasp of the human body. However, hearing about other people's approaches as a medical researcher is pretty fascinating!
I think it could be
I think it could be interesting on another forum but not this one.Just isn't for this space that's all. I think she was actually saying that another treatment was still a consideration. I guess it is up to debate whether someone is advocating or not. I think there are other sites to discuss IC that allow discussion of alternatives like the IC puzzle site etc. I'm not a professional medical researcher but I love to read and research as well. However as a patient on this support forum it just doesn't work. I am pretty sensitive right now but nothing compared to what I was so I am thinking of real newbies too and thinking how that would have affected me a few months ago.
ok- back to spending my energy on healing!
Christine, don't settle for
Christine, don't settle for less. You deserve the best.
I hope you won't be like this for the rest of your life even if it isn't much. You will be completely normal, I hope.
Deir, you have been plain
Deir, you have been plain hostile toward me lately. I cannot be responsible for your interpretations of my posts. It amazes me how one's experience, opinion, intentions, or unrealistic idea's can be internalized by someone else. I am not going to be a part of this discussion any longer.
I wasn't advocating what I
I wasn't advocating what I posted as another method of treatment for anyone here. I don't even know if any doctors have tried it. I just wondered if it was theoretically possible to heal the gut lining that way since doctors say it repairs itself in a few days. Just wondered if it was something that anyone had researched.
And yes I am a crazy person looking for answers, but I think I have IC.
A thought
I have to put my 2 cents in here. I first started having mild symptoms of IC in 1995. I had a horrendous bladder infection that landed me in the ER. I took antibiotics & it went away. After that, every few mos I would feel like I had another infection & each time was given antibiotics & it would go away. Soon the "infections" were coming more & more often & I was taking antibiotics once or twice a month. By 2000 I felt like I had an infection most of the time. I had alot of pain & my periods were very heavy. Also was in perimenopause at that time so my hormones were crazy. I was bounced around between gyn, internal med & urology. My gyn said I had a fibroid & also endometriosis & that's what was causing my pain. I had a laproscopy & they removed some adhesions. I continued to have pain & he recommended a hysterectomy saying it would get rid of the pain & that it was the cause of my bladder symptoms. In 2002 I had the hysterectomy & that helped slightly with the pain but I still had the frequency, urgency & was also developing IBS like symptoms & strange reactions to foods, bad allergies & sinus problems in addition to the depression & anxiety that had been steadily growing since I first started dealing with all this. I tried all of the traditional med treatments which did norhing for me. I had a cystoscopy under sedation & was told i have IC. They also "stretched" my bladder.I started researching and Matia was someone who was treating IC, but I felt I just needed "the right" antibiotic. I started working with Dr Fuggazotto & took antibiotics for 3 yrs. I did ok while on them, but each time I tried to stop, I got extremely sick & had unbearable pain. I then found Dr Toth in NY who uses megadoses of several antibiotics given iv, vaginally & lavages in the bladder. He also gives injections into the Bartholin glands. This treatment helped my severe pelvic pain but greatly worsened all of my other symptoms. I spent the last few years pretty sick & became unable to continue working full time in 2009. I have tried pretty much everything to treat this. Earlier this year I started researching again and noticed that Matias work was the only treatment that was consistently mentioned with success and healing. I started the diet in June & went to see her in July. I have felt consistently better since starting the treatment. This is the Only thing that is really helping my bladder. Before I started I was getting up 5-8 times a night to pea, now it's 1-2. Alot of the other symptoms are better also. I have had Really bad sinus problems since taking all of the antibiotics. I'm sharing all of this so that others know that if your symptoms are similar to mine, you can save yourself a lot of time, money & heartache by skipping them. I absolutely believe that I am on the right track with this treatment. Alot of little things are changing & I don't feel as "sick" as I was. I think it will be a process for me because I believe my body was "out of balance" long before I developed symptoms. Sorry this is so long. It felt like I was writing a biography :-) Wishing wellness & happiness to everyone here.
Lisa- thanks for this. I am
Lisa- thanks for this. I am so so glad to hear that you are seeing improvement. I had the specimin bottle etc ready to send to the lab to chec k for Enterococcus and was seriously considering antibiotic therapy but it never felt right to me. I am so glad I went with Matia. Thanks. I was wondering how you were doing since we hadn't heard from you for a while!
Wish it was easier too
Me, I understand your desire to find an easier solution. I think we all wish the path could be a little easier and clearer. However, I believe it takes much more than healing the gut lining to get well. You have to heal whats inside the gut, which includes balancing the good/bad yeast and bacteria. There is no easy way to do this other than shifting the internal enviornment to the healthy side. Otherwise, the bad little buggers will just mess the gut lining up again.
It might sound weird, but I am kinda glad this protocal forces me to look at what I put in my body. Thank goodness it was IC and not cancer.
I hope you find your path to healing.