My symptoms

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Dear all,

 

I have been reading on another board (!) about IC being caused by PFD. Can this really be the case? The person posting, who is now getting better, had same symptoms as me - no urgency or frequency, large bladder capacity, can't feel bladder on vaginal palpation exam. My main symptom is burning (right sided) - inflammation was seen on cystoscopy but apparently, can be caused by PFD. Has anyone else had these symptoms? This other person was saying that most IC people have frequency and urgency, and very sensitive bladders upon palpation. Is this wishful thinking on my part or can it be possible that PFD is involved primarily in my case?  I do, unfortunately, have a history that Dr. B works with - years of UTIs, antibiotics, contraceptive pill, etc.. Nevertheless, I do keep on asking myself, 'why don't I have frequency?', 'Why don't I have urgency?', 'Why do I feel nothing when my bladder is palpated in a manual vaginal exam?'? I keep on searching for reasons/causes for my bladder inflammation - there has to be a reason for this. As I've mentioned previously, I had no symptoms for the past five years, and the rest of the time since 1997 when the symptoms first came on got better and better with each childbirth - what happened to the yeast/bacteria during the past five years when I was asymptomatic? It can't have all come back - I have been very clean living since the children arrived (no Pill, pain meds., etc.). There's no reason for it all to come back - so what CAUSED my (worse than before) symptoms this time around????

Vin43's picture
Vin43

Hi Tink,
 
I know that you are right, and deep in my heart I know what it is. I don't visit those boards anymore for all the reasons outlined on here - but today was an exception because I am panicking as my appt. is this week. What if she can't help me vecause I've had this for so long? As you know, symptoms came on in 1997, but from 1999 I have been more or less asymptomatic. How does the longevity of this thing work? From what I've read, she can help people who get symptoms and go straight away to see her - the ones who've had this for a while aren't helped as much, are they? I'm in panic mode 9again) - looking forward to the appt. but also dreading it because there is no plan B. 

researchnerd's picture
researchnerd

Had IC for 35 years, and hers went away before mine!  Haha. : )

deir's picture
deir

Stop!! Cease!! You are onthe right track! (((((HUG))))) I;ve only had pretty relatively mild symptoms for one year and it is taking me a while to get better (although I truly am) but other people on here who have had IC for many years are seeing huge improvements within weeks and months. Basically what I am saying is- there is no rhyme or reason to this freaking disease. I would have thought I 'd be smooth sailing for a myriad of reasons. Other people seem like they'd be worse and yet they're not. It is so so so so so so individual.We all say it so often and yet it is flat out true. Matia is the flat out expert on this and you were doing really well for all those years so there is absolutely NO REASON to believe you won't be back to feeling good again. YOU WILL.
 
relax that you have made the right choice and get ready to start on the road to healing again. This time armed with more knowledge and amazing support to stay that way.
 
Tinkerbell- thanks for that quote from Dr B. Another helpful thing to read.
 
 
 
 

Vin43's picture
Vin43

Thanks everyone. You are right, of course. I know that I am on the right track because nothing else makes sense. However, I am still fearful. I guess all that will change once I've met Dr. B. this week - I've heard that she reduces the fear at the appt.. Wish me luck!