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Sigh.......I just don't know when the heck I should email. She changed my protocol on Fri on our phone call. I was better and then the past 3 days not great. Today is definitely worse but manageable. I can hack it but should I? I am totally up and down and not stable so it isn't like this is out of the ordinary for me but I truly never know if it important that she know or I should just push through. I am not wanting her to take the discomfort away magically I just worry that I am making it worse by suffering through- Does anyone get what I mean?
I am always "OK" menaing I can get through life but I just don't know if letting it go is right or wrong? Sigh...........
any advice?
toughing it out
Dear Deir,
I so know what you mean - three weeks ago I was in the same dilemma. I'm sorry, I don't really have the answer. I toughed it out for a week and it got better. I think next time I talk to her I'll ask her. So, I guess this reply is a whole lot of nothing - except empathy.
E-mail
I never know whether to tough it out or write in either. Usually ends up if I keep putting up with the discomfort, I should have e-mailed. If I e-mail right away, she says to tough it out. There is no good answer to your question. Go with your gut feeling.
Thanks! I have NO gut
Thanks! I have NO gut feeling. I just do not know. I also don't want to bother her too much because the woman needs a little break!
Argh. I guess i will wait until tomorrow to decide. I am tired and had an ultra stressful day so I shouldn't make any judgements right now..
Denise- thanks for NOTHING! Just kidding! I'll take empathy at this point. I'll take anything at this point. :)
Hey Deir, So sorry you are
Hey Deir, So sorry you are still up and down. I stabilized for about three weeks of heaven (both my bladder and my heart) then my bladder began the roller coaster ride again, but my heart has stayed strong... so basically, I am there with ya!
I probably email her more than I should, but I figure if I knew what the heck I was doing, I wouldn't need her expertise. IF I try to tough it out, I end up trying to read the "tea leaves" of IC and as it turns out.... I am not very good at that. So, I email her and let her decided what I need.
Just my two cents;)
Katie
Hi Deir, Sorry to hear you
Hi Deir,
Sorry to hear you are having a rough patch. My two cents, since she will be on vacation (yet available), I would ask now. I always question this, ALWAYS, so I’m glad I’m not the only one. I think about it daily… should I email or tough it out? I hate to bug her and feel like I'm the psycho patient but IC is tough to deal with. With the holiday two days away… I would email her tonight and then by tomorrow morning, you will have feedback. Hopefully then, you will be able to enjoy the holiday with not so much pain. I cant recall which dates she says they are off....
I’m sorry you are in pain. Thinking good thoughts. XO