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I thought I would be one of the few people that goes through treatment with a steady improvement then healing. It was a great thought but not me. I guess it makes me stronger that I have to work HARD for everything I really want! It has been a near impossible 2 months with my protocol constantly changing & only finding fleeting relief periodically. I am now off of 2 of the 4 prescription drugs I was taking. My frequency at night is back uo to 3-4 times & that is very discouraging... Especially since my kids will be starting school in a few days & I won't be able to sleep in. Dr. B moved me to list 2 & I am happily trying some new foods. I am lucky that I don't have many food sensitivities, so I can enjoy things pretty quickly. I have come to the realization that if I get the urge to cheat that the only one I'm cheating is myself:) I am very hopeful that the next couple months will be filled with more improvements so that I can start doing a little more with my 3 children. They miss their Mom, & it is truly beginning to affect their mental state:(
My RP didn't get delivered in time so Dr. B said I should take 1 Siberian along with 1/2 mega til they arrive. I definitely feel more soothed but I'm confused why when I took RP & Siberian together with the Mega I was in so much pain. I also went to the bathroom this morning ( no.2) it burned horrible. What does that mean. I'm certainly not eating spicy food!!! Anyway does anyone have any advice for moving on from this stage.nmost days are such a battle with feeling like this is going to be my life forever & I don't know if I would be able to fight like this without any results. For all of you who are seeing the light at the end of the tunnel PLEASE give me some words of encouragement. It's so hard loosing years of your life when you are supposed to be having fun,,,,
Have a wonderful holiday weekend:)
Amy
Hi Amy, I remember fall of
Hi Amy,
I remember fall of '09, I was at work teaching and was in HORRIBLE pain trying to get through a class, cold all the time, emaciated, feeling so sad and lonely and just wondering if it would ever get better. It has gotten SO much better! I still have a ways to go before I'm in perfect health, but you will get there, too. It'll just take some time. I've been working with Dr. B since May of '11 and there have been a lot of ups and downs but it is definitely worth the effort. 2 months in is not long at all! One thing about this condition, is that it really has changed my perspective about time- at this point if I'm all the way better in 2 years, that'll seem fast to me! And honestly, I'm not bothered by that anymore.
Give yourself the gift of patience and gentleness with yourself. It has been my experience that the more rest and relaxation I can get, the better I feel and when I stress out and try to do too much, I backslide.
Keep giving Matia plenty of updates so she can help you as much as possible. I know it feels like you're missing out on your life and I can't imagine how hard this must be with kids, but you WILL get through this tough time and come out a stronger person for it!
THis post could be entitled 2
THis post could be entitled 2 months in :)))
Because two months is a great start towards more time and getting healthier. I read this post earlier and then thought about it during a delicious afternoon nap. I am in my 7th month and nowhere near done but glad for the improvements that I have had and mainly to have time under my belt. WHat makes it easier as time goes on is that I know more now about what to do and what not to do and I am somehwat less plaugued by doubt. I have had to verify the things Dr. B has told me with my own eyes and see that what she says is what plays out. That helps a lot because this is a radically different way of thinking about things. I was superrimpatient at 4 months and People told me- you will get better but that is pretty early on. What I can say is that I feel really well in all parts of my body except my bladder- better than i have in years- and that is a relief. Now I have to wait for my bladder to catch up and that is difficult but there is no turning back. I do not want to go back to my drugs and my allergy shots, or my alcohol or my secret fear that I really wasn't taking good care of myself.
But the diet is one fo the mroe difficult thingsI have done. It is hard to be so restricted when others aren't. SO I try to tell myself that this is good news for a person of my age because it isn't some disease that I can't get well from. My thought for the week. Stay out of restaurants. you can do it but they are a lot fo stress and trouble and they don't know what you mean when you say "cook it plain."
It also has helped me tremendously to have all support of wonderful people on the forum and to talk with some people directly. Folks know a lot and Dr. B can't teach us everything that we need to know.
Have a good long weekend. Keep calm and carry on! Bonnie