Anyone with NOT only bladder symtoms? Please?!

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Hi all

I'm new here and I just recently found this page. I have never been diagnosed with IC, but having bladder symptoms.

I'm thinking about going to see Dr.B, but it is a huge decision, since I live in Sweden, and it will cost a lot. I'm also a bit worried, since my main and worst pain is not the bladder, so I'm hasitant if she will be able to help me or not.

I am experience a whole list of symptoms, and it would be nice to hear if any else are experience other symtoms besides the bladder.

These are things that I feel ALL THE TIME!!!!

1. Vaginal pain, stinging and tingling. Accually I have the same type of pain in my rectum, does any one of you experiece that? Mostly on my right side.

2. Urethra pain, as if someone is twisting and turning it. Can't tell if it is the urethra or just in the vagina somewhere. Does not hurt when I pee though...

3. Pelvic floor pain. My muscles in that whole area is just cramping and acting really strange.

4. Stomach pain, lower abdominal, specially on my right side, hurts awful. And pressure over my bladder. I also have period pain constantly. It is like everything down here feels heavy and inflamed.

5. It feels like I want to pee all the time, but I can hold it in pretty well, bc I know if I go, I only pee so little anyway, so there is no use. I  don't feel the super super urge and frequency like many of you describe, so maybe I don't have IC.

6. I have pain in my neck, and throat. It is like I'm "thick" in my throat, and I want to swallow the whole time. Can't tell if it is the muscles or not... but it is awful anyway.

7. I have constant back pain, lower back pain, like period pain mixed with UTI pain. Like my kidneys hurt.

8. My legs don't feel the same.. I have tingling feeling in my legs, and like shooting pain sometimes, and the swell up sometimes... really crazy.

9. Well, tired all the time, and I guess my whole body hurts, joints as well, and other muscles too. Like fibromyalgia pain I guess.

So, that all from my miserable life.  Yes, the list was long. HATE IT!

I sooo hope for your answers and input on this!!!!

AND, one more question, is there anyone out there who´s boyfriend or husband are also sick?

All the best to you all out there!

Love,

Kristina

blondy's picture
blondy

Hi Kristina, it seems you described my symptoms. They are common among those diagnosed with IC.
Have you started diet yet?

natalie86's picture
natalie86

Here are my other symptoms -
 
1. IBS - stomach cramps, constipation
2. Chronic sore throat
3. Sensitive to bright light (painful)
4. Watery eyes in the morning
5. TMJ (jaw pain/cracking when yawning)
6. Random numbless/tingling
7. Migraines/headaches
8. Bleeding gums
9. Pain in knees/joints
10. Lack of energy