Argh! Still confused about when to email Matia!!!

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I just don't knoiw what the goal is. I sometimes feel good for a couple of days and then if I feel worse for a day or 2 I will email her. She usually changes my supplements. Last week, we changed multiple times. So yesterday was good and now today I am back to bad! Do I email her again?

 

What is the goal of changing supplements? To make you react less, or to facilitate healing? Do you know what I mean? I can handle teh bad symptoms if it meands I'm improving faster but if I feel worse does it mean I need different supplements? I am frustrated. Not sure if I am making sense and my kids are all screaming for something right now . ARGH

Christine222's picture
Christine222

Hey Deir, I thought I would try and answer your question. When you say you are having a good day, what is your pain/discomfort number? I use a number scale from 0 - 10 with most days now being a 0 - 3. How much higher does your number go up on a bad day? Most good days for me are a 0 - 1.5. I consider a 2 bad right now even though it isn't really bad so I don't bother Matia when I go up alittle. I was a 3 yesterday but I was away and I ate things I probably shouldn't have so I know that is why I felt worse. What Matia puts you on is what she feels will heal you best with the least amount of pain. When she changes it, it is to lessen your pain. If she changed something and your number goes from say a normal 2 for you to a 4 or higher I would email her after a day to ask if it was normal. She doesn't want you to feel bad but I know some discomfort is bound to happen. I know I feel worse with taking more Bifido but I have to keep working my dosage up so I don't email her to tell her it makes me feel worse because we both know it does and it is to be expected. I hope this helps a little and you are feeling better today!

deir's picture
deir

Thanks Christime. My discomfort is all over the place. I am fine with the bifido discomfort but mine comes from nowhere. I am still strictly on diet list 1. I never even come close to cheating or eating things I shouldn't. I had been doing the number scale too but it is so subjective even to myself. If I am mentally handling things a 5 feels like a2- youknow what I mean. But your response helps. I am never too too horrible. I just want to get better FASTER so I can handle it if I am supposed to grin and bear it. I never know if I am getting worse or just suffering through progress.
 
COuld you describe how you rate your discomfort?
Thanks!!

Christine222's picture
Christine222

Look at it this way, my number 1 can be completely different then your number 1. Matia says when she hears your number she doesn't need to know how you feel at number 1 it is more important that you consistently know what number 1 feels like to you, do you get what I mean? For me it means I am aware I have a bladder, that is all. For you it might mean just the slighest burn, we will all feel our numbers differently, she just wants to know if things make you worse or not, so if you tell her you are now at a 4 and you usually never go over a 2 she will know it is bothering you quite a bit, and if she knows you have never gone over a 7 lets say, she knows a 4 is very uncomfortable to you, but someone else may have many days at a 9 for them so she would know a 4 was actually a good day. Am I making much sense?

deir's picture
deir

Yeah you're making total sense but it is still so darn tricky! My mental state over this is also so all over the place. My poor husband.

Clueless's picture
Clueless

I have trouble figuring out whether to e-mail in or not also.  Sometimes when I let bad symptoms go for a few days, it turns out that I should have e-mailed in because she ends up changing something.  Other times when things seem bad and I e-mail in, she says to wait a few more doses and then I improve.  One never knows what to do.

selichan's picture
selichan

My only answer is that they do both, heal and take care of some of the discomfort. I am into month 7 now, and last month I had a lot of moderate burning pain, level 4-5. It felt uncomfortable, but it was tolerable bc i was in a better mood. I decided to wait it out till the next meeting and just observe it. What's confusing for me is the role of the hormones. Before my period, after period, during ovuluation, i kept waiting out, and then it was the end of month and time to see Matia!
She seemed upset at me that I didn't email her about the pain. I guess I shouldn't be having pain now and that was bad. I got so worried I messed up by staying quiet, and maybe i was on the wrong protocoal and it wasn't working, should have told her. It did feel like i was regressing but I read some old posts that around 7 months into treatment others had similar symptoms. 
I usually don't email Matia, except when she changes the protocoal to let her know how i am doing. If something was really off, i would, but I figure with so many patients and emails, it's best to keep it minimum. She told me that the point was to heal without having a lot of pain and suffer. I don't mind dealing with a bit more pain, if the treatment is working for me or speeding it up!!
We've changed my protocoal twice now this week. I am so curious, how 1 versus 2 mega makes a difference, and why? I recently stopped taking bifido (2nd time around) due to unbearable hearburns immediately after breakfast. I have no clue what's going on, but i am seeing improvements in overall health. All thanks to her.