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Hello my fellow warriors! I am really struggling and I know all of this and especially joint pain has been the topic of conversation on many occasions! Several times a month I find myself in quite a bit of pain, especially in pelvis and hips to the point I have trouble wailing and can't fall asleep because the pain is so bad. It is most notably debilitating the days leading up to and first few days of my period. Do any of you get debilitating cramps, burning in urethra and stomach, and joint pain especially around your cycle? I am getting so discouraged that this pain and my body is so resistant to budge, especially with how diligent and strict I have been throughout the 2.75 years of treatment. I had some recent stool tests that showed a certain bacteria that is found in those with an arthritis called ankylosis spondylitis, not that it matters if I have it or not, but think it may explain why I am having such pain and infllammation issues. I know life isn't fair, but I would like to catch a small break with a little relief! I would love any suggestions you all have for minimizing your symptoms, especially for the joint pain! My heating pad is my best friend and gentle movement is my go to, but still doesn't always cut it!
Sorry, that should say
Sorry, that should say walking, not wailing! Even though quite fitting, I feel like wailing at the moment! :(
Hi C Prince - just wanted to
Hi C Prince - just wanted to let you know that I'm sorry that you're in a rough patch. I'm old and senile - 54 - no period. Thus, can't relate to that. In the past I've had joint pain. My worst pain, over the liver, and nearly impossible to walk (felt more like wailing :) - lasted a very long two months. As far the bacteria - I bet that will get better with time. I had irregular PAP smears - they told me that it would very well turn into cancer - Been gone for two years now! Anyway, hanging in there with you. Miraculous things happen here - on good days I hold to that.
Hi Christina- Have you read
Hi Christina- Have you read Norman COusins' book about healing from Ankylosis Spond.... It was really good and inspiring to me in many ways. I know how frustrting it must be to have this pain that won't "budge" as you say. I just still believe that healing is possible and I believe it will happen for you. Also- sorry to laugh, but I definitely have no trouble "wailing" either. I love typos
I am too am struggling with
I am too am struggling with close to these same issues for the past few months, but I am at ovulation. My symptoms lessen for 5 days before my period and them bam, they are back in full force once my period starts. I am noticing sleep, rest, and gentle stretching is my best friend. I have been in bed most of yesterday and plan to do the same today:(...not a fun way to live. I've been in treatment now 9 months and off Elmiron for almost 4. I had been wondering if the pain had anything to do with getting off the meds, but it is just probably another part of the healing process, which I'm hoping goes away soon. Be kind and gentle to yourself during this time. Hugs to you:)))))
C I have right heel and knee
C I have right heel and knee pain intermittently that is slowly improving. It seems to be worse around ovulation and period. Are you drinking close to half your body weight in water? I always think I am drinking more than I actually am so I know I can improve here! Since you work I wonder if you drink enough on those days? Might be worth tracking?
How about pelvic pain releif visualization CDs? I think there are several good ones out there?
Big hugs and keep us posted!
If we don't excel at health, the only other option is disease.
Hi Cristina: you certainly
Hi Cristina: you certainly deserve a break as well as some answers. Just wanted to let you know that I have been thinking of you.xxo B
C also wondering is this a
C also wondering is this a new symptom for you? Was wondering if related to the probiotics and a sign that your immune system is really turning on strong which is a great thing. I remember when I started the bifido I had a day where my hips hurt so bad I could barely walk.
If we don't excel at health, the only other option is disease.
Thank you all for your
Thank you all for your support, ideas and encouragement! Yes, I am hopeful the bacteria will be replaced with good. Denise very encouraging to hear joint pain subsided for you and abnormal paps are now coming back normal! Vegasgirl, trying my best to just go with the flow and stay relaxed during this. My husband and I had a discussion today, that I need to let go amd stop stressing. I wish there was an off button to my brain. I am now stressing that I need to learn to stop stressing! LOL! No but really, it is so hard to let go and ride out the pain instead of trying to fight it. Deirdre thanks for the suggestion, I will look into this, sounds like a must read! LOL, yes, I have no troubles in the wailing department! Mimi, doing my best to drink, drink, drink! It is so hard when I feel like I am going to pee my pants all the time to keep drinking. I will also look into the CD's. I need to do something differently obviously! Bonnie, so glad to see you back on the forum! Miss you and also sending happy thoughts your way! Hugs and love to all!