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Apparently, the inflammation in my knee joints that has turned my life upside down since September is IC related. I had not made that conclusion until recently because I have had knee problems before. This time, though, the old fixes have not worked and ai have gone from an hour of exercise daily to sitting as much as I can to try to get the inflammation out of my knee.
At one point every day- and that point is now- I AM PANICKING. I can't do much of anything and my body and mind are freaking out from the sitting and not being able to do much of a productive nature.
my joints- especially the left one are so whacked out that I have to be incredibly careful or they swell up. Today's error was a light calf stretch for 30 seconds that has set my left knee back. I am a slow learner.
i know that this is supposed to be a valuable experience and I am supposed to be working on my mind but I don't care. I just want to be normal.
thank you for all of the support this year. Wise thoughts appreciated.
Bonnie
Bonnie, I am at a bit of a
Bonnie, I am at a bit of a loss for words, except that I shed some tears for you and for all of us here that have had or are currently feeling pain. It is so unfair. But you have come very far, and your healing continues, even though it doesn't seem like it at times like this. Hopefully in the new year you can get the energy moving again in your knees very soon and I pray you find some relief. In the meantime, read that book on stress and disease that you just bought and give me the cliff notes! ;)
Be very kind to yourself.
xoxo
If we don't excel at health, the only other option is disease.
Hi Bonnie,
Hi Bonnie,
I know - it just sucks. If it brings you any peace - this is pretty common. Be kind, listen to your body, it's telling you that you're just gonna have to rest. I too know what it's like when your coping mechanism is physical activity and that gets taken away from you - you get to find a new flipping coping mechanism!! Oh joy. At the moment, I'm still battling the UTI infection that ties for the worst UTI that Dr. B has evern seen. This has been going on for two months and I'm still taking 17 pills 4 times a day. I"m absolutely exhausted and haven't seen the inside of the gym in two months. Hanging in there, wherever there is......
BOnnie- I feel for you! Since
BOnnie- I feel for you! Since starting treatment I have had a lot of neck pain that kept me from dancing or working out at all. Not only was that my stress relief- it was a huge part of my life and career and identity really . Wow- when you can't do the things that help you cope it can seem insurmountable.
I have started to go back to some more exercise and dance and I am so happy I nearly cried in Zumba class. "There is no crying in Zumba!" I think I heard that somewhere.
A few years back I had some very weird back pain that I could never get to the bottome of. It was and atill is exacerbated by yogs- which I used to do multiple times a week for fun and meditatin. Anyway- I now know that it is IC related and so in some ways it is a relief. When I am through this chapter, I am hoping that back pain is also in the past.
Hang in there. You're lucky to have made so much bladder progress. Hold on to that.
Deir, are you feeling better
Deir, are you feeling better and your pain level down these days?
Hi- Thanks for asking!
Hi- Thanks for asking!
You know- I think I am a very tricky case. I thought I'd be better in no time but the truth is no- I am still having a lot of issues. I am still very up and down although my life is become more normal so there are some very slight improvements generally. I have had fewer huge flares but my case all along has been weird because even from the start I had good days and bad days. So overall I am still struggling. I have never been as bad as many of the cases I read here so my life is fairly manageable it is just scary to not have huge improvements to hang on to.
How are you?
I had huge improvements until
I had huge improvements until March this year. I have not had any progress since then. My life is fairly manageble though.
Hi all-
Hi all-
Thank you for sending words of comfort when I really needed them. There are many lessons, of course. I will write a longer post about all of this when back at my computer. Lots of love and health Deir and Denise!
Hi Dier, Denise and Blondy
Hi Dier, Denise and Blondy (and Bonnie!)
Denise, I am SO sorry you are STILL dealing with that $%$&****#!!! UTI! That really sucks. I hope you have relief VERY soon!!
Dier, Blondy,
Thanks for posting and checking in! I am glad you are in a manageable place, and hoping that you still see continued improvements over time!! I trust you will, even if it is slow. Can you describe what "manageable" is in your life in terms of symptoms day to day? What lists are you on, and what are your symptoms like? I was reminded when reading Dr. B's dissertation, how painfully slow the healing can be for this illness. And I was reminded recently from a previous post about the difference between symptom relief and true healing. True healing is a totally different process.
Thanks for any thoughts and ((Hugs)) for more healing in the New Year!
Someone posted this a year or two back but I thought I would re-post. It is interesting:
http://www.drlwilson.com/Articles/the%20healing%20process.htm
If we don't excel at health, the only other option is disease.
Thanks for the kind words
Thanks for the kind words Mimi - fortunately the pain and infection are under control - unless I cut back on too many herbs - then it starts to creep back - seems to be a balancing act.
Hi Bonnie - you sound more upbeat?
Take Care All