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Hey all, how's everyone doing?
Haven't posted for a bit, but had a tough couple of weeks and wanted to reach out as feeling a little lonesome! Having been progressing well since January, and seeing many many more symptom-free days, I've hit a bit of a wobble this month. A close friend of my partner's died very suddenly a couple of weeks back, which coincided with some protocol changes, and since then (not sure what's causing, I think both are linked) I feel as if I've regressed a couple of months. Urgency and frequency still fine, but am having much more soreness/awareness again - burning in muscles/tissues over pelvic area (esp pelvic floor muscles) more spots, more diarrhoea, more itching in my pelvic floor muscles and so on and on. Still having occasional good days, but whereas I had 15 symptom-free days in May, I've only had 3 so far in June.
Just a) looking for some encouragement and b) wondering if anyone else gets this burning/itching feeling in pelvic muscles?! I feel like a bit of a moaner really as these are all bearable symptoms, and I'm still doing much better than I was, but I'm having that sucky thing where I feel like I'm going backwards! Waaah! Sorry for whinge, just wanted to speak to people who get it!
Hope everyone else is doing really well xxxxx
Tired of the wobble :)
Hi Sarah,
Even though this happened during your loss - I'm so sorry for that - after two years of this - I still get periods where the type of symptoms that you're talking about increase. I'm sure this is normal - as Dr. B still asks me. There have been times when these increases have ended when orangish brownish stuff has been discharged vaginally. Or, periods of strange feelings when gunky slime have come out of my intestines (Polite way not to mention that particular orafice) Or, I notice that I once again, have a fairly heavy small skin bumps all over my body. I don't think you're going backwards - but rather forwards.
thanks Denise! Am actually
thanks Denise! Am actually feeling v headachey, runny nose and so forth - had attributed to hay fever but wondering too if it might be a bout of die-off - sticky eyes, too (and a lovely stye the other week, which I grossed my partner out by bursting!) and lots of little white-headed spots. Just feel a bit battered in the wake of all the bad news and kind of needed my body to give me a break - but of course that's when things are always worse, isn't it?!
Urge and frequency are the symptoms I can't handle, but they really seem to have gone for good, which is great - despite all the upheaval, they still haven't returned. I remember thinking a year ago that I could live with pain for the rest of my life if I could resolve those issues. But guess what: turns out I'm greedy! it's a bugger having bad days again after such lovely good stretches. But on we go! How are you doing just now - how's the anxiety?
Oh - you bring back memories : )
I'd forgotten about the runny nose - I remember the horrible headaches and runny, crusty, dry, painful eyes....CELEBRATE! Do you really want that crap in you still? (easy to say when it's not me - at the moment)
Thanks for asking about the anxiety - still battling it - am sick of it - I'm just hoping that this is part of my answer in dealing with it.
Take Care,
Ah, you're quite right about
Ah, you're quite right about the crap! I have a very attractive ;) ring of spots around my mouth just now, sort of from the edges of my nose down in a ring around the bottom of my chin. just looked up chinese face meridians and guess what? these areas pertain to the colons, the kidneys and the bladder! I guess I am having a clearout of sort. Just wish it would clear the heck out!!
Sorry about the anxiety meanwhile. I suffer from it too, and it's a burden. Have been seeing a therapist for the past four months which has at least helped me spot patterns. I guess you've been down this road already?!
Hey Sarah, (and Denise;)
Hey Sarah, (and Denise;)
Just wanted to reach out a hand to steady the wobbling. About four/five months ago I stopped the dramatic back on forth on a daily basis. The pressure and frequency still come and go but at more predictable times like ovulation rather than just this ghoulish entity with no rhyme or reason causing me pain...yes, I think like this;) Anyway, I know that when I have a cluster of crappy days when I feel sick again, I become discouraged.... then I think of how far I have come in 10/11 months. It truly is amazing and even when my heart starts flopping around in my chest, I think... well, I know its part of IC and it's healing. This all sounds so rational, doesn't it? Yeah, well... when my heart goes wonky I still get the adrenaline pumping, but it is getting better too. My point is... you are certainly not the only one and you are getting better so the path does work for you! You will get all this junk out of you and then you will feel even better!
I am so sorry for your loss- life just doesn't make sense sometimes,
Katie
Hey there, thanks so much for
Hey there, thanks so much for replying - and for your kind words.
Yes, that's it exactly. On the stretches of good days over the past few months, I think 'I'm getting better! I can't really even remember what feeling bad feels like!" and as a result I've been much more philosophical when the bad days pop up here and there. But having had about three weeks of bobbling around now I've kind of lost my upbeatness! In hormone terms, I tend to feel better over my period and less good over ovulation, but this has become much less obvious over recent months. For me the emotional component is the bit that's tough to pin down! Can't totally work out the effect, but I'm very sure it's a big underlying factor for me (the usual lack of maternal bonding as a kid and layers of anxiety as a result). Had therapy last week and felt MUCH worse after, like emotional die-off maybe!
Have spent much of tonight feeling nauseous and headachey, too, so wondering a bit if this is die off (though could still be hay fever!!)
SO glad you're doing well though - this is great news! Well done you!! xxxx
Keep Calm and Carry On
To the woman who said it best. Sarah C have been wondering about you. I am too new to offer much persppective except to say that you gave me that and it is a lot. Please let us know every day how you are doing.
Bonnie
ah thank you! should take my
ah thank you! should take my own advice really!! How are you doing, Bonnie? xxx
Hi Sarah: Thanks for
Hi Sarah:
Thanks for asking. Today I had my own mini-wobble and I am having to tell myself to keep calm and carry on. The bladder pain has made me so trigger happy phobic as soon as it starts. I hope tomorrow is better. Let us know how your wobble is going!