Forums:
Hello everyone (and a hello to new members),
I have been absent from the boards for quite some time. I have, however, been following everyone's posts and Dr. B's blogs. The recent activity concerning the blogs has prompted me to write in about my progress. The reason for my absence - I am SO much better. For those who may not know my history, I became ill with what I can clearly see now as the CFS/ME end of the candida spectrum in 2011 following the birth of my fourth child. Although my bladder was somewhat affected this time around (I had had bladder symptoms - but only bladder symptoms, several years ago) I had a multitude of terrible and diverse symptoms, too numerous to list here. To summarise, I felt as if I had the worst hangover, coupled with the worst flu (multiplied x1000). I never had pain, but I had everything else. I could not move, I could barely hold a conversation, etc.. Given that I had had bladder symptoms before, I knew what I had - just a lot worse than previously. My husband and mother (normal, reasonable people) thought I was dying at one point. I got steadily worse. I wished for 'flares' (and that's saying something as I have read about how bad flares can be!) just to get some relief from the onslaught of on-going symptoms. There was no respite - ever. I knew that I wouldn't get better. I came out to see Dr. B as I knew that this is what I had, and I had nothing to lose. It was an easy decision. Two years on - I am back at work full time, I have just moved house, I am up and about, fully functional. I participate fully in all aspects of my life. This is entirely due to Dr. B's knowledge and treatment. I knew, without any shadow of a doubt that I would never get better. She told me that I would and she was right. I am not 100% better - far from it, but then I actually don't expect to be. I'll never feel 100% again but I don't mind. I can live with how I am. My symptoms do interfere with my life but I can function and for that I am grateful. I expect to be in Dr. B's 'treatment programme' for life - but I am back to my (new) normal and it feels ok. When I was very ill, I communicated with another UK patient, with whom I seemed to share the many diffuse, weird and strange symptoms. She kept telling me 'Keep going', and she was right. She pulled me through and for that I am enormously grateful (as, of course I am to Dr. B). For those of you who are unsure or struggling, my advice is lower your expectations and keep going. Getting well means getting to a new normal, a 'good enough' state. It will happen.
Wow!! I have been thinking of
Wow!! I have been thinking of you a lot and to tell the truth i was too afraid to email because I didn't want to hear bad news. SO happy to hear you are doing so much better and please don't give up hope that you will be 100%
I've seen your many posts on
I've seen your many posts on here Vin43 :) Thank you so much for taking the time to write this! It's really appreciated :)
I have been wondering how you
I have been wondering how you are doing. Its great you are so much better now.
Hi Deir,
Hi Deir,
Great to hear from you (although I've been following your posts - and everyone else's - on here throughout). Livandlex-Hello. Nice to 'meet' you. I hope that you are both doing well. I have not given up on the 100% (there's still a part of me that believes in it) BUT this monster became a lot easier to manage once I began to see it as a work in progress as opposed to desperately trying to reach a final goal. I am happy with my lowered expectations. I can take it easy, get my head down and keep going. Indeed, I am grateful for anything I can get so giving up some expectations was a positive thing for me (but the usual proviso - we are all different so it may not work for you!). I am happy. I feel ok and I can function. I can do many things. It's probably easier to list what I can't do: I can't watch TV (a good thing!), I can't read a book (a bad thing but I'm working on it), I can't run the parents' race at my kids' school (oh well). That's about it. I am back to nearly my full workload that I had before I became ill. I still have all my symptoms - just at a reduced level. I just knew that I wouldn't get better - but I did. It really does feel like the right thing to say is, "If I can do it, then anyone can". Oh, and I hardly ever feel my bladder. Dr. B is absolutely on the right track with this.
Totally makes sense!! XOXOXO
Totally makes sense!! XOXOXO
Vin thank you SO much. It is
Vin thank you SO much. It is so valuable for older patients to post!!! I am so happy for you!
If we don't excel at health, the only other option is disease.
Thank you Vin! This was so
Thank you Vin! This was so encouraging to me! So so happy for you.