Forums:
After a year of having this disease and feeling absolutely hopeless, depressed, and being scared, so scared, i would never get my life or my health back, I finally found hope on this website. I have a one year old and a three year old, I had lost hope that i could be the mummy i want to be and that I would never see the light at the end of this dark dark tunnel, now i can see a glimmer :) only problem that the glimmer is in LA and i live in australia, but you make your own destiny and im about to make mine by moving heaven and earth to get to Dr B and begin treatment. i have scoured the internet for a year now, finding the ICN network and not much else, and let me tell you that was a very scary experience, i couldnt believe it a week or so ago when i found this one. i only wish I had found it earlier. xx
I'm so glad this site has
I'm so glad this site has given you hope! I felt the same way a year ago, and similarly wished I'd found it sooner. Matia knows so much about our condition and will continue to give you lots of hope once you are in treatment. It is not a quick fix, but my quality of life is so much better than it was a year ago thanks to this treatment and I would definitely encourage others with IC to go this path.
Best wishes as you make plans to go see Matia. I think it's extremely courageous to plan a trip from Australia when you are feeling ill.
Amanda, welcome!You will be
Amanda, welcome!
You will be all right. A lot of us went through similar steps: finding this site, disbelieve, thinking about possibility of normalcy, flying long distance, starting treatment and feeling better. Because the doctors told me that IC is incurable, I did not even think about searching on 'IC recovery'. Once I did, I found this site. What an awakening that was! It took me about three months to come to the decision to fly. When I finally made that decision, there was no way back. I could not wait for my appointment. Prior to that, I started feeling better once started diet. Have you implemented diet yet?
Did you IC start shortly after having a baby? Mine did. I am feeling better now and I can be a better mom to my child.
Have hope!
Amanda,
I found Dr. Brizman's website about a year ago and made the difficult decision to fly to LA from Toronto, Canada last December. I'm happy to report that, five months into treatment, I've just completed my third week ABSOLUTELY PAIN FREE. To be honest, I'm a little scared to put it down in writing and I know that I'm still to expect bumps ahead, but this is absolute evidence in my mind that I'm healing. Like me, thank your lucky stars you found this resource and don't hesitate to start the diet immediately and make your appointment with Dr. Brizman. I've never regretted my decision for a minute. It's a wonderful thing to feel myself getting healthier as opposed to just medicated.
Thats great news Willow! I'm
Thats great news Willow! I'm really happy for you!
Thanks Christine
I'm really happy too! How are you doing?
I'm doing very well! I am now
I'm doing very well! I am now on list 5 and getting ready to take a 10 day trip to Ireland. Life is pretty much back to normal!
Welcome
I find it wonderful that, despite distance, you know that you will find a way to get to LA. You're not busy expending your energy on I can't. While my plane trip was only two states away, I have never regretted it - I'm sure that you won't either.
All my best