Forums:
I am having trouble with my anxiety. I need to be at home, but I am three hours away from my family and having to work to keep my insurance. I am so scared. I just cry all the time. I am begging someone to help me. I have tried to tell my family how bad off I am mentally. I try to read positive things, but then my symptoms change and I get scared again. I haven't been having any urgency, but today I came home and ate, and then I started feeling swelling in my rectum area and tiny little pains in my bladder area - something I usually don't feel, and it scared me.
I also subscribe to yahoo alerts about IC, and an obit popped up today of a woman who had it, and that sent me over the edge this weekend.
I feel so alone. I feel like there are no doctors here who can help me. The last one I went to said he thought I had a mild case of it and told me just to get out and run. I have been exercising, but I don't feel like getting out and running. I got the impression that he thinks my mind is doing this to my body, and it may be. It may have.
I go over and over the things that could have brought this on. Sometimes I think it is nerve damage I caused. Sometimes I wonder if it is a virus or infection. And when I google the individual symptoms, no body knows what any of them are either, and there are so many of them. It kills me to think that doctors don't know what this is, and there are so many peope suffering from it. I just don't understand how they coudn't know in some way what caused it. I am so discouraged by this and have lost faith in the medical community.
I'm not sure I can go on living much longer with this kind of anxiety. I had an anxiety disorder before this started, which is why I thought that could have caused it. But I will never be able to get my anxiety under control following the rules on this site about no medications, etc. I am trying not to take them, but I struggle every minute of the day with my anxiety.
I need to move home, but my mother can't afford to take care of me, and it's not fair to subject her to me and make her life miserable too.
I'm so afraid I'm going to get worse. I can't live in this fear.
Hi Me
I am so sorry you feel this way, i am not sure if you are a patient of Matia or not but i hope if not that soon you can be. I was like you for so many years until i found her. She is trying to have a place close to her where she could take care of people in need. Meanwhile just try to be strong until you can be under her care. There is a better life after ic, i promise you that. I was really really bad, i wanted to give up. i am glad i did not. i have a long way to go but there is hope. i wish i could do something to take this fear away,... I can tell you this, one day life will be better. Matia will find a way to help people in need, she will not rest until that happens. Pls dont give up.
Veronica
Medication and anxiety
Dear Me
It breaks my heart that you feel this way. I am someone who constantly struggles with OCD relating to my health, I have been where you are right now. Please protect yourself from the internet. If I start searching I end up with every disease that is on there.
If i were unable to get to see Dr. B, and had the degree of anxiety that you're suffering from, I have no doubt in my mind that I would be taking conventional anti-anxiety meds - there are times that I occasionally still use them. You are not a failure if you've come to the realization that you can't go on without some sort of perscription. I do know that some of the meds are considered far less harmful to IC than others. I myself went to see Dr. B while on Busparine. She told me that this was one that she didn't have severe problems with - I know that there are others. I believe one of them is Elavil, also known as amitriptyline. In an ideal world you wouldn't use any of this stuff - but please please don't beat yourself up if you feel that you've run out of options.
This thing about not subjecting your Mom to you, is that coming directly from her? If it is, I am so sorry. If it isn't, maybe she would like to make the choice for herself?
I truly believe that your mind is not doing this to your body. I believe, from experience, that the imbalances in your body are doing this to your mind. I wasted a year of my life in cognitive bahavioral therapy. Which, if I were to take it now, would probably no longer be a waste. I believe that I've physically healed enough that my mind is now able to think clearly enough to grasp this kind of treatment. Ironically, I don't feel like I need it enough to commit to the program again. Especially as I become calmer as days go by and more junk pours out of me.
Dear Me, I don't speak lightly, I have rocked in dark rooms, sobbing, looking up mental health facilities to check myself into. I have scratched my arms to feel the physical pain - dimminishing the mental anguish. I have come to fear the fear more than the disease.
I'm sending a great big Hug - you can find me at greatworker1@hotmail.com.
I just read all this stuff
I just read all this stuff about IC being progressive. But some people seem to have a stable case of it. I'm so scared it will progress.
It's so hard for me to work
It's so hard for me to work mentally andp it hurts to sit in my chair. I need to be living with my family for right now but my mom wants me to work. I am sitting here crying and when I cry it makes me hurt more. I feel like I'm in a nightmare I can't escape. It's hard for me to find things to eat on list 1. I feel like I'm not eating enough. I have a roommate and I'm sure she's hearing me cry so I have no privacy. I don't know how people have strength for this. I need someone to help me so badly. Wherever I go, there I am. I can't get to California with no one to go with me. I hate that I'm putting my mother through this. Why did this have to happen to me. It was my last years of my 30s to meet someone and have children. Now that's over. I feel hopeless. Why would god heal me if he won't heal the others.
getting help
Hi Me,
I have read a lot of your posts and I think about you often and am so concerned for you. There are people out there who will help you, maybe it's not your family, but as you let others know that you need help and are willing to accept it, I truly believe things will start to get better. Especially since you are not in treatment with Matia, I think it makes sense for you to take your anti-anxiety meds. You have to be able to get through your days without complete panic.
After I got sick, I kept working for a year, trying to "tough it out" and be brave. It sounds similar to what you are going through. I would get through the day, come home and cry, eat something, feel worse, lie in bed and do it again. It was incredibly isolating and desolate. I know the worry about the health ins. stuff, but Christiane Northrop (who wrote women's bodies women's wisdom) calls staying in a job that is killing you because you think you need insurance "dying for benefits". The regular medical community is not going to give you a satisfying answer to what is happening with your body. Insurance is important if you break a bone or have an emergency, but with a chronic health issue, the md's are not going to treat the root of the problem. I don't regret leaving my job for a minute. Yes, I have less money and I live the the uncertainty of not having a stable career in my 30's, but I don't cry every day anymore. Putting my health first (mental, physical, spiritual) is the only thing that matters in my opinion. If you don't have your health, even if you have money, you feel compromised.
My mother was of the mindset that I had somehow "caused" this for a long time. But once I really reached out to her and made it clear that I needed her help, she stepped up and has become so, so supportive of my healing process. I don't know your situation, but I truly believe that people want to help others in need if they can. Maybe you could stay with your mom and get some job where she lives? Then you would at least have a greater support system if she is able to do that for you.
I don't want to overload you with a million suggestions, but I just wanted to tell you that reaching out, asking for help, and accepting help really changed my entire course for my life. I KNOW how bleak your days feel when you live with so much pain and uncertainty but please remember that you are not alone and people care about you.
ceb217- Well said!!!!
ceb217- Well said!!!!
Me- On this site we believe we have found a lot of the answers to the questions you are asking. It isn't as mysterious anymore. I don't worry that "doctors"haven't figured it out because I think Matia has!!
Denise has definitely been there with the anxiety- listen to what she has to offer.
Why can't you travel to CA alone? IS it anxiety or literally physically you can't? There have to be ways to solve each of those issues if you break them down but if you truly need medication right now to help you have the presence of mind to handle this- take it.
Are a part of a church or any other community organization? People often want to help but need to be asked. Give people the honor of helping you.
I'm not sure who to ask for
I'm not sure who to ask for help. I have asked my mother over and over. I have told her I'm about to have another nervous breakdown. She keeps telling me o take my medicine but I don't want t.o be on a lot of meds since I dont know how they affect me.
To all of us
Thanks Deir for mentioning me :) Veronica, Ceb 217, and Deir, it's so nice that you guys care from your hearts - it isn't always easy.
Dear Me, I am sure that none of us want to say anything that would make you feel worse. For me, it's scarey to wonder if I sound like a know it all and am judgemental. I hear what you're saying about the meds. Trust me, I know that these type of medications aren't ideal. So, what is your alternative? If you can breathe, and take it step by step, do you want, and can you get to California?
I do want to go to
I do want to go to California. I just think it's going to take me saving up money to do so. In the meantime, I have gotten an appointment with Ragi Doggweiler in Knoxville, who treats IC from a holistic perspective. Please don't say anything negative about her because, right now, I'm trying to put my trust in something and escape from this abysmal depression and hopelessness.
IS she near you? I wish you
IS she near you? I wish you the BEST LUCK!!! Hang in there. There are many paths on this journey.
Congratulations
I think that is absolutely wonderful! If you ever feel like E-mailing me directly, to let me know, how it's going, I'd love to hear from you :) If not, keep in touch here.
Way to go
Thank you for your support. I
Thank you for your support. I have read really great things about her. I think she is pretty well known for her work with IC, and she does focus on treating it from a holistic perspective, and she is an MD, at the same time, which will satisfy my family, who put more faith in medical doctors than alternative practitioners. I belive that, above all else, she will give me hope.
She is not that close to me. About eight driving hours away, but my sister and mother are willing to go with me. I just need some support right now if I travel anywhere.
I am also looking into hiring a life coach who used to have IBS/IC to help get my mind in a better place.
I'm sure I'll continue
I'm sure I'll continue posting on this board. I need the support. But I'd also like to email some of you if you share your address.