just need to talk

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I am having a real hard time today lots of cleasing. I still haven't left my house other then to take a walk in a long time. I have only left 6 times in the past 9 months. I feel like life is passing me by and i have no control. I am so tired all the time I feel like a narcoleptic. I know I am going through a lot of hormone changes and it doesn't make it easy. i wish i could just be like a normal person take some regular herbs even biodetical hormones and be done with this mess. I am so sick of feeling this way. It has almost been a yr and I hardly go anywhere. Every time I wake up and think I am going to try I have had the worst night and I wake up in so much pain and so fatiged I just end up not doing it. Now it's been so long I don't even know how to try. I know I need to push through the pain anyway or I will continue to be depressed. Last night I had a dream my father died. HE didn't but I think it is because I feel like he is old and I need to spend time with my family and friends. I didn't go to his 80th birthday this yr because of my anxiety issues. No one understands what i am going through or what i am doing except my boyfriend who I would like to Marry if I could actually get well enough to go out and enjoy life. He has been my rock through this. Yesterday I finally got to the 3 month point of not using xanex and although that is great I don't feel as acomplised as I did last month. I am just so sad it doesn't feel like christmas and my birthday is on Monday I am not even looking forward to any of it. I just want it all to be over. :(

natasha149's picture
natasha149

Nicole, hang in there!!!I've known Matia for a long time, and just take my word for it: this mess that you are going through WILL END! It is probably very hard for you to believe, but IT ABSOLUTELY WILL!I know it is almost impossible right now, but try to count your blessings, there are at least two: your boyfriend and the fact that you've found Matia. There are just very few of us that were lucky enough to find her. Forgive yourself for not going to your Dad's Bday or not going for a walk, or for everything else that you are too weak or sick to do right now. Just cut yourself as much slack as you need and always remeber: you are in great hands and you WILL BE HEALTHY AGAIN before you know it. Happy upcoming Birthday!Natasha.

Honeybee's picture
Honeybee

Nicole,I hear you. I do. Your despair and suffering is felt and acknowledged. Natasha is right- it is okay to let go of the guilt you are feeling for not being enough for not being present in the ways you want to be for your family. I am pretty certain they would want you to concentrate your energies on nourishing your health?  By doing that - you will be insuring a brighter future for all involved.you doing good means they will be doing good! but I understand. I have missed sooo much but in away I have been a huge teacher to alot of people without meaning to be. that's a sacrifice but there is alot more to life than just social gatherings. This is real life stuff. this is facing down sickness and our fears of mortality. this is an afterlife underworld journey.  It is archetypes of universal proportion.    Think of the people who read these posts- many who may be just like us but who have not ever posted. or who aren't even in treatment with Matia but come here maybe because they are are thinking about itor looking for hope. we encourage them and help them- I think.. I was able the other day to inform someone who has very likely a candida problem on ways they can address thier yeast problem. I urged them to seek help from thier local alternative medicine/TCM practioner and helped them connect the dots on some allergies and other problems. It felt good to help educate someone on ways they can take responsibility for thier health. If I had never had to deal with Ic I don't know if I could have had an impact maybe prevent them Ic later on.  Who knows how much we reach others through our own stories and epic adventures/struggles.   I know it is hard to be in the present moment- its great to know the future holds more but it doesn't diminish the struggle we are going through right now. Keep working at this.I try to find ways to improve the quality of my life - to raise my vibration-(my attitude how I see myself and the world) or life condition so that the impact of the intesity affects me less?  does that make sense. look at some folks who are dying of like painful cancers and they are so at peace with themselves and feel like they are unafraid of death or life and therafore they are free. I refuse to feel sorry for myself. this in an of itself is key to my getting better. Somtimes I notice my self defeating behavior as though I don't how to be anything other than sick. somtimes I see myself shooting down possibilites or quick to dismiss things because what if they don't work.  I've been sick so long that I wonder if it has become an identity. who will I be when I get better?  but that is changing. my proof is manefesting now. the present moment is the future. I am well. I am well. I am well. there are infinite possibilites in this moment. i am well. the manefestation of the wellness is latent. I am well now. I call forth in my minds eye great powers that reside deep in the mystery that is my DNA and demand its presence. doctors say Ic is incurable. erase this from your mind. we are impossible beings doing impossibly wonderful things. and if I can't feel it then I 'll beleive it until it arrives on the horizon and it will. even unwellness is not static and subject to change. improving self esteem is kind of a challenge - affirmations go only so far. I have had to go deeper into why I struggle with self esteem. the sources of my anxiety. Look at the past. look at my relationships to my family and any past hurts I buried and tried to forget which have festered. The good news is such things are healable. and in more than one way- but only when we are ready. I wanted to do a post on this but I think I'll just talk about it a little bit here- and that is how much emotions and energy can play a big role in IC. Emotions rise up- some that are just really uncomfortble - it is all apart of the cleansing.-energetically and physically. anxiety- and depression all of that. Some emotional stuff was actually coming up for me and it was affecting my life and causing me alot of pain in my heart. A friend mentioned EFT- emotional freedom technique - I checked with Matia who said it was okay for me to try as long as it didn't feel uncomfotable or cause any physical problems- it hasn't so far. I found a social worker/therapist who teaches and uses EFT and Psych -K therapy in her practice. I did an introductory session with her and plan on doing more in the new year. I found it to be immensly powerful and interesting experience. Supposedly it is good for dealing with anxiety-and helps people overcome things like Post traumatic stress disorder. People report being able to overcome thier phobias of water and big spaces etc etc. Maybe you could check to find a therapist that does EFT and Psyche -K who will come to see you to work on your fears of leaving the home. Check with Matia - I am not sure how it would be harmful but sometimes energy work can release things in a physical way and that can be intense or possibly interfere with treatment but I haven't had that happen and you would just stop and maybe try it a later time. I felt better after my session. I had done Youtube sessions mirroring the sequences for fun just to check it out and liked it but found a therapist session to be much more in depth and tailored to my specific issues which had more benefit and success than just a more overall- broad session online. does that make sense? The yeast and yucky stuff can cloud our minds with depression  and negativity- it is going away. it doesn't seem like it but it is even as you read this. I feel like I just hit another little level of healing. still have a ways to go but something has shifted and I just moved forward another inch. some months have been more productive than others- I know that's true. everyday I need to start focusing on the things I am grateful forand when I do that it begats more positivity and healing in my body. when I concentrate and microanalyze my setbacks or worry that I'm stuck or beat myself up over things that are beyond my conrol then it seems to make me worse.I am always actually in control over my attitude which has a very powerful affect on the state of my health.  I try to acknowledge the truth- okay I am suffering with this pain but it is worth it and the outcome will be phenomenal. I know one day you will be writing from the other side to someone in your boat- actually you do that now. you've been very helpful. Thanks Nicole for always sharing information and encouraging others with a compassion for their situation. I am grateful for all of you and for my life which is getting better and better every day. -Mary 

nicole's picture
nicole

It's hard because even with the ic and the yeast I have never felt this much anxiety. I know i need to hold on to the little things. I have never experiened these hormone feelings before. I just feel ike i am way too young to be going through tis. I know that because I have yeast and IC I can not treat the normal even natural normal way. It makes it hard to hang in there. I am thankful to have Matia and my boyfriend yes of corse. Its hard to hand in when people including myself doesn't understand what exactly I am doing. Also I do not only have myself to anser to. My parents pay for everything my intire living expenses. my home my herbs my consults my bills all of it. I am not able and so it makes it difficult to have to explain the crazyness all the time to them. I don't feel like I am free. UNtil I can change my situation i feel like i am stuck I think it would help to talk to someone who has gone through the hormone issues with Matia. Thank you  both for your support and encoragement.
Nicole

toreyg's picture
toreyg

im having a hard time as well and i havent started treatment with matia yet. i have started the diet and somedays im ok with it and other days i get this intense urge to just eat something normal like everyone else. my favorite thing was to go out to eat with my boyfriend and family all the time and now i cant and it takes me into deep depression. i found out i cant eat gluten(sensitive to it not celiac) and i thought i could at least eat gluten free food, now i believe i have ic also and its even more hard to cope with. i havent been diagnosed with ic, which makes it even harder to stay on the diet b/c i keep thinking i should try some sugar or something to see if it affects me to see if i really have ic. ive alreayd noticed on the diet that im having die off b/c im having all these crazy symptoms that dont seem unrelated but i know they are. i know i need to stay on the diet if i want to get better quicker, its taking all the willpower in the world. has anyone else felt like this? will i ever be able to go out and enjoy a meal with my loved ones again? i get this feeling of envy and anger inside when people i know are eating out.

Kriste's picture
Kriste

I know that it is difficult but hang in there it is worth it.  You will soon see positive results especially once you begin with Matia.  I think that your feelings and urges to want to eat the way you used to are normal.  Your body is probably in shock because of the change and also it could be that time of year of so many temptations around.  I have my parents staying with me for the past two weeks and my dad just can't get what I am able to eat and what I am not able to eat and keeps asking do I want this or that and saying just a little won't hurt.  As far as restaurants are concerned it is a little difficult but if I were you I would research restaurants in your area and find one that will cater to your needs.  I don't go out a lot but once in a while I do like to go out for a meal and not cook.  It took a couple of tries to find one that would cater to me and also to care to make a good meal for me.  I did find one in my area and pretty much I go there whenever I go out for a meal.  My husband is happy to go to the same place every time because he knows I will be satisfied.  My son even bought me a gift certificate for that restaurant as a Christmas gift.  All of this does take effort and will power but once you start seeing results it will seem less of an effort.  Also you will not want to put any junk in your body as you become more knowledgeable about what we consume.  Matia gives us an education as you can see from her many posts.
 
I hope that you will be able to join us on Saturday for our support group.  Email Matia for instruction to become invlved.

debbyz's picture
debbyz

Torey:  I know exactly how you feel.....cooking and eating and enjoyingthe social event of eating out w/ friends was high on my priority list.  I alsoam not seeing Matia yet but trying to stick to the diet.  I have to be honestthat I haven't been faithful to the diet and have eaten some of the wrongfoods and I have to say, I feel the pain immediately and wish I had not eatenincorrectly.  It's just soooo hard to follow it!!  Hopefully, once I start treatment, I will realize how important it is to makinga full recovery and my willpower will get better.  In the meantime, just know you are not the only one who is feeling depressed about the restrictions butwe do want to get better...and if this is the road to recovery we must do whatever it takes.  Hang in there...try to focus on other things....it will getbetter!!Debby