Hi Christina! I have had the throat inflammation, chocking thing and one point it was so bad I literally was afraid to eat or drink it caused such anxiety. I finally had an EGD more because of the feeling of difficulty swallowing and severe GERD. This lump in the throat feeling can be a sign of silent reflux if you aren't actually feeling heartburn. Maybe you are?! Anyway, during my EGD they found severe yeast overgrowth and did a dilation of my esophagus. During my first appointment with Dr. B she also told me this was the only time she has ever seen them see anything while performing an EGD. I actually felt worse after the EGD, so I don't necessarily think it is the way to go for them to probably see nothing. This has improved with treatment, but still get the lump in my throat feeling and as my anxiety increases is when it gets out of control scary for me. So trying not to focus on it and trying to stay as relaxed as possible (easier said than done, I know) was helped me the most. Sorry, haven't had significant dizziness, just off and on, so can't really speak on that front! If you would like to know more feel free to email me. Hope you start to feel better! Hang in there!

Christina I have had the horrible vertigo before and during treatment. It comes and goes in severity to the point of can barely walk to just the general off balance feeling. It is awful I know but it's all part of the imbalance and I'm pretty sure the dizziness stuff is inflammation. I've been in treatment a few weeks short of a year. And more recently I feel like I have a big lump/blob in my throat. Crazy stuff! But trust your body it knows what it's doing. Hang in there.

Hey! 
I have had strange throat things come and go- I used to get sore throats all the time precursor to my Ic cymptoms but never quite anything like you are describing BUT the dizziness was one of my main complaints in the beginning and througout treatment I have had really really chronic bad vertigo. I could barely walk a straight line and felt totally drunk! Then later the  vertigo would happen when I would change planes like lay down or turn over. It would only last though for a week or so at a time and it eventually cleared up. If I was not getting enough red meat it would be really bad so try increasing that if you have not. 
The dizziness is a symptom that I don't feel anymore so I just wanted to reassure you that it will go away. We are really working on digestion strength for me and sometimes I get spikes of nausea so I understand about that too. i would practice a yoga move for balance which is that move where you are standing and you put your foot on your inside of the knee and put hands together over your head like an overhead clap. I would stand right next to a doorjam for support.  I found this helpful somehow. Hang in there! It will shift to more balance. 
Peace and balance flowing to you,
Mary
 

Chrisiitna- the levels of suffering withthis disease are unbelievable! I am sos orry to hear this and it sounds really tough. I had one major spell of vertigo but it pased. I believe like everyone else that this will improve for you but hang in there until it does. You are not alone.

hello! popping on to say Nadia's absolutely right - had horrid vertigo on several occasions which totally freaked me out. All I can say is that it passed! Dr B was always v relaxed about it, which helped me relax. There were some online vertigo exercises I did that seemed to help. It can be caused by bits floating in your inner ear, apparently, which tallied with all the IC stuff - just more crap being worked out of your body.
 
I also have had, on and off, a really weird/horrid brain symptoms - a kind of deja vu feeling, like being on really trippy drugs - kept feeling like every situation I was in was an echo of a dream or something. TOTALLY terrifying. Happily this has passed too! But wanted to mention in case anyone else has had!
 
Otherwise (I like to update in case people are searching my posts) I'm doing pretty well - no bladder symptoms at all any more, just residual VV symptoms to go - tickling in pelvic floor/burning over vulva. These come and go; have symptom-free days and days where I'm more niggly. But Dr B assures me these will pass too. Am trying a couple of new things at the min which are stirring things up - hoping to ditch these last niggles next year! On the days where I feel well, though, I feel like I must have imagined the whole thing - can't even recall what IC was like. We'll all get there. Love to you all xxx

Sarah- SO glad to see that you are doing so well!!!
 
 Trying to imagine a time when this isn't the first thing on my mind but keeping the faith and continuing to work.

Christina, hang in there!  When I was about a year into treatment, I suffered for months and months with throat issues.  I would have panic attacks because my throat felt like I had so much tightness and nausea in my esophagus, like something was caught in there.  It felt like I needed to puke it up from my throat.  In my case, the issue was mucus just hanging out in that area, which made it feel like I was going to stop breathing, causing my panic.  This would also make me feel very dizzy, like I couldn't stand up or walk far.  I remember just crying and panicking and feeling so awful.  For me, this was all a massive case of die off, probably the biggest bout of die off I've had to date in treatment.  Matia was wonderful in helping me through it, but in the end, I just needed to let the die off do its thing and get out of my system.  I can tell you that it does go away, even if it takes a really long time.  During this time, I had lots of doubt, and even went to an MD at my local clinic because I was certain that I had a massive infection or something.  Let me tell you that doing that was a HUGE mistake for my healing process, but it is what it is, and I've moved forward.  The dizziness and throat issue did pass for me, but only when my body was ready.  Trust me when I say I know how this feels and how much dispair it brings!  It does get better!!  Hang in there!!  Sending you love!