Not getting better

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I'm so sorry for being depressing but I know that I'm not getting better At all and it's been 8 months of nothing

At the start of treatment I improved some, then after taking some medication for my back for7 days everything got a hundred times worse. Its been 4 months since I took that medication and I continue to get worse each day. I now have level ten vulvodynia everyday, which I didn't have before treatment, I can't sit, my bladder hurts more than it did before treatment. I now have urgency and frequency which I didn't have before. We change the herbs three times a week and nothing changes. I had a double gum infection over Christmas, I may have a uti and I only tolerate 4 foods at the moment. This truly isn't living and nothing ever improves. I go to physio for my back, take the herbs, don't cheat, treat my gums do everything I can and nothing ever gets better. Its seems that everyone heals apart from me. I don't understand when I'm trying so so hard. Today my physiotherapist felt my pelvis is worsening despite all the back exercises I do even though I can barely stand. My gums are bleeding and sore. I just don't understand how one life can have so much bad in it.

DLFox123's picture
DLFox123

Dear Katie ( I'm hoping I have your name right)

It's not fair, it sucks.What I can tell you, is that there is hope.  If I give you my own history - I risk making this all about me.  If I don't I risk making you feel that you're the only one in this world that's been given such a raw deal.  So, here's the short  version. A horrendous back injury took several years of my life - I nearly used a pistol to end the pain.  I've endured chemo and radiation - two times - for cancer - I've had two other rounds of other cancers.  I was hit with IC six years ago - I have spent nearly 20 years fighting for my life.  At some point, I have realized that the only sense I can make of this, and my major coping skill, is forcing myself to learn from it - to accept it - and not to run from it.  Before you think I have some big fat swollen ego - none of this comes easily for me.  It is a hard won success that often times darts back into the darkness.

 

Please reach out -

Denise

 

 

deir's picture
deir

Hang in there Katie!! ((((hug)))