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I dread going to the bathroom because at the very end the pain is quite intense. I use lamaze techniques to help me thru it. Then I can feel my bladder spasm a bit and it takes me a few minutes to recover. I usually come out kind of stooped over and walking very slowely. After about 5 min it feels better and I do o for an hour or two until the buring starts and builds until I get the guts to urinate again. Does this sound familiar to anyone? Frequency is not as big an issue for me as pain. I usually feel better in the morning and worse as the day goes on.
I would appreciate any advice. (been with matia since 11-18-09, on list 1 and 2, and on gold tid, sf 4 tid, probiotic 1 tid, and ultra omega tid.) First she told me to stop probiotic and this helped for 2 weeks and then pain increased again. I tried off the gold, and ultra each for a few days and it did not help.
I will admit we have been traveling and eating out- some chinese one night, and other restraunt foods where I did not know all the ingredients. Now I am back in control of the diet and I hope it will help in a day or 2.
struggle
I can't really relate to much to that deep pain you are describing in my bladder, mine is in my urethra. My struggle is more frequency (25-40times day). I do have pain, but its in my urethra. Sometimes, I have pressure and a dull ache in my bladder, a lot more now than usual. When I wake up in the morning and have my first void, I sometimes get a sharp pain that radiates all throughout my pelvic region. for the past few weeks I have had a flare every day, all day it seems, but normally I do feel better in the mornings. As the day progresses everything gets worse. I think it is because this disease is in the small intestines, so when I eat, and continue to eat throughout the day it gets worse as I fill up with food. I am really not positive though on why everything is worse at night for some people. So, I have no advice, just encouragement. You are doing the right thing with being in treatment and I know we started at almost the same time. I have not had any bladder relief so far, it it is normal to not feel better right away. I wish this went faster, but we can only do so much. I know the diet does help, but not always. Some days it just has a mind of its own. As we move through healing I know yucky things have to come out through the bladder, so I would think healing means more pain/freq. sometimes.
Mellissa- You are such a
Mellissa- You are such a dear- and so open with all your struggles. You are a brave woman and I am glad to have you as a friend. I read Matias whole dissertation and I think I will read it again in Jan. I hope your frequency stretches out so that you can go do things easier. I was just on a tour today and it lasted about an hour and I was in pain for about 1/2 the tour until there was a bathroom. This really changes our lives and it takes so much maturity to accept all this. I do think we all deserve a gold star for getting thru the holidays because the foods that I have to look at every day on TV, magazines, driving around, shopping...sound so good. I'm not tempted, and we get enough to eat....i'm usually full of veggies, but.....I don't know what I would do with out all you folks and this web site. I know I am not alone. Wendy
Wendy
Both before & in the beginning months of treatment I reeeeally dreaded going to the bathroom b/c I knew it would always hurt more afterwards. Just as you described was how it was for me, I had heavy & pressured urgency pain rather than frequency, and I would hold off peeing b/c in part I knew I didn't really have to go yet and in part b/c the longer I could hold out the less it would hurt after I peed. When I asked Matia how long to wait since I have no clue when my bladder really needs to go, she said to cut the difference between the "now" feeling" and waiting til you can't hold it any longer. I fretted at the beginning over my often waiting a long time, but in the end I'm getting better and others too regardless I think of bathroom frequency habits. Keep the faith!