Forums:
I have been struggling for so long with all my issues in my colon. I am deeeply inflammmmmmed, raw, burning, bloated, numbness in my belly and burning all over my body. We have been playing around with formulas for so long and nothing is working inside my belly. My mouth is even burning.
Need some support from anyone that is suffering from severe burnng and could really use some love. I don't have much support from family. No one understands yeast and pain.
love love love
Keren
<3
Hi Keren,
Bloating, numbness, burning in mouth.. I wonder if these are very common even when one is on the treatment long enough. I have lots of bloating, which makes me feel like pregnant most of the time and burning in my mouth. I try to drink water -lots of, which helps. but sometimes, I dont even want to drink water just because I have to do it. The logic itself is sometimes quite annoying: being have to do something to take care of my body. It feels uncomfortable for a while mentally, but later on it gets better. So, I have my water bottle with me and take a sip whenever I see it. This is just for burning mouth. When I have burning in my legs (I dont have much in my bladder) I take a nap and take deep breath (when I am positive, othwer wise I get angry:)). I have no idea about bloating, which is quite annoying for me, really. If only, I felt lighter not bloated all the time.
I dont have my family/parents with me here in USA, so I could understand what it means not being suppoerted. If you have really really close friend(s), you could talk to them may be? This chronic situation itself, is kind of pushing limits that we shall be receiver rather than being giver most of the time and shall ask for help, but in the meantime shall be strong on our own, and be our best friend! ? I sometimes talk to myself and say everything is OK, esp, during EFTs. IT feels quite silly:) but it helps.Though, when I am down, I am really deep down!:( I find this treatment like a wave, or a fluid--we are all getting the shape of the emotions/ideas/pain,etc we have. It is quite brave/strong of us to get the shape of all these stuff, indeed.
Also, may be mentally/emtionally/sth in the past you need to fix sth? since you said you were playing with the supplements so long but did not help???
I don't know whatever I say makes sense, or feels good or not, but feel free to email me when you feel like that
Much love
thank you
Hi love,
Are you open to talking to me on the phone? it would mean a lot to me.
hugs and love
keren
3107751103
hey keren..im so sorry ur
hey keren..im so sorry ur still struggling so much..i know how you feel tho..im 2 years in and my bloating is still bad and my bowels are still sluggish and my head hurts everyday. your story about getting better before is what gives me hope..uve gotta hang onto that bc u know u did it once u can do it again..does matia say why she thinks ur struggling so much right now? what are you eating??
I am still eating the
I am still eating the same....Veggies and Protein...basically....butter...olive oil and that's it.
My yeast has been very systemic....all the fungus in my ears and chest are gone...but they are working themselves out through my colon...and it's sooooooooooooooooooooooo painful and awful...haven't been able to stand up for 5 months...in bed...crying....and screaming.....awful...so over painnnnn....and no one understands what we go through.....
aaaaaaaaahhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh
Keren
I am so so sorry. Please know that our hearts are with you. I simply don't understand what this world is all about. At the moment, I probably have it better than you. In the past, three times of breast cancer plus IC - My body looks like some strange cut up jig saw puzzle and a sess pool from all the chemo and radiation. I simply don't get it. What I do know is that reaching out is a good thing. It is also a good thing that the crap is coming out of you - do you have some good moments? What does Dr. B say to you?
I think that my talk of cancer scares most people away - have lost a lot of friends over it. If you ever want to chat - I can be found at greatworker1@hotmail.com
Hugs
Pillow
Keren, Hope you are feeling better. Take a pillow and beat it if you have a little bit of energy (I know that you don't have much but just an idea to release the anger) and scream may be ? OK, I am not sure if you would like this idea but I will just say it anyhow: I don't know if you like classical music but may be it helps --- it usually soothes my nerves, esp lately after having so much mental/emotional pain..well its kind of sad as well but happy sadness. http://www.youtube.com/watch?v=27SbVk1i-RI&feature=BF&list=QL&index=3
http://www.youtube.com/watch?v=h018rMnA0pM&feature=BF&list=QL&index=5
http://www.youtube.com/watch?v=3X9LvC9WkkQ&feature=related
Much love my dear
Keren
My heart goes out to you! I am so sorry you are suffering so. I do not understand this all either completely. Why some have to suffer so much. But you will be in my prayers. I have thought of you often.
We understand, and I am sorry you do not have much support. That is such a lonely place! IC is such a lonely disease. Please hang in there. You have people thinking and praying for you.
Hopeful