SF killing me

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Back on SF and the die off is back full force. I seriously feel like crying. I am so tired of dealing with this. I feel nauseated on SF, I feel like I have a fever and the flu, and I have diarrhea. I have chills and it is just the worst. Waiting to hear back from Dr. M. Has anyone else experienced severe die off while on sf? I really dont know if I can handle it. I am about to email Matia to tell her that I will be stopping the SF. I know its the SF because if I skip a dose (I have had to skip many doses because I feel so sick I know I will throw it right back up) I feel good for the next couple hours until I take my next dose. Thanks for listening......

headley.patty@gmail.com's picture
headley.patty@g...

Only one drop 3 times a day and while it improved some symptoms I had uncontrollable shakes, muscle tremors and anxiety, panic attacks, nausea,  muscle weakness and a few more die- off symptoms. I finally decided I couldnt take another day like that right now and emailed Boaz. 2 days after stopping it I was still having die-off. All I can say is thank God for the Rhodiola. First panic free moment I have had in two weeks. I really dread the day Boaz says we've gotta give it another go. I am feeling for you and I hope you feel better soon. 

Mimij67's picture
Mimij67

Cant she back down the dose? Also, take a hot bath each night (10 minutes--I know she does not like saunas) a bath where you sweat a bit. it should help your body manage some of the die off. This is what I read anyway. Most people are lucky enough to do a serious sweating plan while on SF, but we are not allowed because our lymph is too sluggish and overloaded. But maybe a short bath?

If we don't excel at health, the only other option is disease.

cprince's picture
cprince

Hi Star! Unfortunately yes, I have had die off with SF too and SF tastes like vomit to me and even taking in the capsule I burp it up and the vomit taste is awful! I agree Dr. M suggests hot baths for me to help me relax. I hope you find some relief soon!

Pixie's picture
Pixie

Yes, SF even just one drop, is the supplement that has affected me the most- even in such a miniscule dose.  Dr.B says that she thinks that even the one drop every other day that I was doing, is too much for me.  I agree-- don't feel bad about stopping it if you have to- your body will pick it back up again when it can . :) 

headley.patty@gmail.com's picture
headley.patty@g...

Pixie, thank you. I really needed to hear that. I felt like a complete failure that I had to stop. 

cathy's picture
cathy

It is never a failure to have to stop, we are just not ready for it at that time. We have tried twice to add Vit D3 to me without success. Have not tried again for a while now though just went on to other things instead.

JessicaA's picture
JessicaA

I'm reading about SF and it sounds scary coming from you guys. I have not had it yet in my protocol. What is it for? 

headley.patty@gmail.com's picture
headley.patty@g...

Thank you Cathy

Honeybee's picture
Honeybee

Jessica- 

SF722 is a very very very powerful anti fungal of undeceniuc Acid mad from caster oil bean. I LOVE SF722 and can feel it doing it marvelous thing in my system although I have had times where it  was not very tolerated well and we took it out. Not so right now.  I had a little rough patch some time ago and its doing WONDERS for me. So do not get scared here. There are many things may require microdosing ( small amounts) until the body gets to where it can handle it and there are also plenty of herbs that are to be pushed through not bc they are necessarily the wrong thing but just pissing off the critters that are not to happy about their suddenly unfriendly eviction. I will repeat again- plenty of things that once bothered me at one time added back in later did not. 

Carole UK's picture
Carole UK

I love SF, its made a huge difference to me lately, but no die off yet and i've been on it about a month now.

deir's picture
deir

To add to what Honeybee said- I started with 3 drops of SF and had one of my only die off events then we lowered and over a week, I got through it fine and built up to one capsule 3x a day eventually. Stargazer is doing  fantastic in the bladder from what i can tell but is having a hard time with SF. I am not the greatest succcess story (yet!) but I can handle it fine. So, basically my point is - especially to Patty- ther is no value in comparision or feeling bad that you don't seem to tolerate it right now. Means very little except more info for the Doc. Another example -I don't take any probiotics at all. For a while I though you had to build up to more and more. In fact someone on here actually said "You won't get better if you don't tolerate Bifido" I was so upset but then I talked to Dr B  and she said "That's not true at all- some people do not use probiotics."

 

PS- Stargazer- I hope you feel better soon. SOunds very difficult. nausea is so awful!!! I spent about 30 weeks being exttremely nauseus during my last pg and I would say it is the only hting that compares in intensity to IC. (((hug)))

amybarbara's picture
amybarbara

deir's picture
deir

Hey! How are you Amy?

headley.patty@gmail.com's picture
headley.patty@g...

Thank you Deir. I was putting alot of pressure and more anxiety to myself thinking I HAD to be able to adapt to the SF.  It did help some other symptoms so I do want to try it again when its time.  I do think I will be one of those that will need to build very slowly. We are all different for sure. I have heard others that have had trouble with some of the herbs I've been on and my experience with those have been more of calming cooling feeling. I love the Rhodiola -even the taste of it. I can only assume my body was really reaching out for it right now. So please all who read this thread -please understand this.  I know some that love the SF. I was hoping for that but it just wasn't the right time :)

Mimij67's picture
Mimij67

Lots of good posts here!! SF is helping my bloating. But it is slow going! I have been on it for 5 months as we chip away at my dysbiosis. For all of that time I was not on ANY probiotics. This week we tried to add back Rhodiola. My body does not need Rhodiola at all right now, and I was on it for almost 2 years. Now finally we are adding back Mega after 5 months of no probiotics and my body is a bit in shock, having some icky symptoms but I hope that my body will take on the mega again. Mega can't live very well in the presence of candida overgrowth. So since we have knocked back the yeast a little, now I am hoping there is more room for lactobacilli!!

I am boring in the die off dept. All of my die off is in on my face (bumps on my cheeks) and in my gut. I get gas and bloating and that is basically IT. I don't get neausea, headaches, mucous, any of it. 

If we don't excel at health, the only other option is disease.

Bagpuss's picture
Bagpuss

So sorry it's causing you so much grief and nausea. I sort of have the opposite problem and wonder what that means too ! I'm now on 12 sf caps a day and don't feel a darn thing. I know extreme symptoms are so nasty but I wish i had SOME response ! I just can't figure out why it does nothing. 

Can it still help if there's no clear response ? 

I hope you feel much better soon and Dr M can get you more comfortable. 

 

 

Star gazer's picture
Star gazer

Hi, just wanted to touch on what deir said. My bladder has been GREAT for the past 5 months. sF is causing me gi and flu like symptoms...it hasnt irritated my bladder. Except for the past couple days I have been in a "flare" -- we changed the protocol, decreased sf, and took out some things...she still wants the sf in!!!! So i will go w what she says. I dont know if this flare is from the sf itself or the change that is going on in my body. We will figure it out thoughh. Maybe the sf has built up in my body and i just simplycant tolerate it. We will see. Currently on 3 drops sf and 3zgl. Will update in a little.

Mimij67's picture
Mimij67

Star keep us posted. I too was doing pretty well on SF for 5 months but things started shifting. Also my bloating is a little better, but still there. HOpe you find the best combo soon!

If we don't excel at health, the only other option is disease.

deir's picture
deir

I kind of love it when she (rarely) tells me to push through something. It means she is fairly confident with the particular thing she is giving you. One of the reasons I have had such a difficult emotional time with this treatment is that she changes my stuff so often (less freq in the past year thankkfully) and is frustrated and has said "Perplexed" and pther scary words like that! LOL The very few times she has told me to push through- I feel liek "Yes! I can DO IT!"

Star gazer's picture
Star gazer

Thanks deir, yes I am TRYING to push through. It is hard because I have recently started school. I am hoping I can juggle all of this! I forgot to mention that I am on zgl because I started to get a COLD....AGAIN. Right after I just got over my other one a couple weeks ago. Dr. B thinks its MORE DIE OFF....which is why I am on zgl. She wants to keep the SF so the process continues! Thank you to everyone for your words of encouragement!!

amybarbara's picture
amybarbara

That was supposed to have been a post from me but it disappeared. 

Hi Deir I am doing better than I was.... So for everyone I am 28 months into treatment & still very much deling with debilitating symptoms.  August, September were an absolute nightmare. Pain was a 8/9. Since going on SF & some other changes, I have had a much more manageable symptoms with my pain levels around a 4/5 with some periods of lower pain & spikes in pain but I feel shifting so I am very hopeful. SF can be really amazing but also VERY difficult to tolerate. My body needed it because over the last 3 months she has slowly had to add it in & take it out & finally now in the last 2 weeks I can tolerate 1 cap 3x a day & it is not bothering me at all. Stick with it Star... The die off will pass. It is really awful when you are in the middle of it...but the reward with be great!!!!

Mimij67's picture
Mimij67

Amy thanks for checking in. That is wonderful to hear. I tollerate the SF ok now, but it seems like I need more (or more cleansing) BC now she has added back probiotics too. My bloating is barely budging. It has been 5 months on SF with only minor improvements in the bloating. WHAT IS GOING ON IN MY GUT??? It is making me crazy.

If we don't excel at health, the only other option is disease.

deir's picture
deir

AMY!!! SO good to hear from you! Last Summer (2013) was awful for me and since then I really feel like I haven;t gone back to that bad level. I finally feel like I am turning a corner. I hope you are too. Miss you!!!

 

Star gazer's picture
Star gazer

Thanks for the update deir and amy. I hope you both continue to have more good days then bad...crossing my fingers that things are shifting for you both!! Mimi, I hope you feel better soon! Thinking of everyone! Xoxo