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I felt I should communicate with you all as I have received so much encouragement from reading all the posts. I have been in treatment with Matia for 2 months now and am grateful to have found Dr Brizman and this site. With the variety of die-off symptoms I have had and do have, i think I would have been in anxiety all during this time without being able to read the stories and info on this site AND, of course, being able to communicate with Matia. Some of the discomforts I have include, itchy scalp, TMJ problems, sinus congestion and sores, gum and teeth soreness, EXTREME fatigue, fuzzy thinking, emotionally vulnerable, GAS, constipation, inability to move to List 2 without discomfort, itchy and sore anus and vagina and area, and the latest is coldsores. While all this is happening, it is odd, but I feel mostly optimistic and certain I am on the right path. My current big problem along with the fatique,is not being able to walk any distance or sit very long without hurting like h--l. The great news is that I have had no Flares to speak of during this time and am now up in the night only 2 to 3 times. Still, I get down with the restrictions on life , but then remember how restricted I was before seeing Matia and then resolve to continue and accept it will take some time.. My husband is a wonderful help and support and for that also, I am so grateful.
Some eating discoveries include buying the KitchenAid mini chopper , serial # KFC3100. I love this little machine. I find I can chop up the various veggies,keep in the fridge and create a quick salad, stirfry, wrap or a spread for rice cakes..highly recommend. One afternoon the family decided to go to a movie (Abba..great fun). I was bolstering myself to resist popcorn and the like when a flash hit. I took my Brown Rice cakes, crumbled them into a baggie, added melted butter and kosher salt and stuck in purse..great..just like popcorn.
Well, that's my saga so far. I am conscious of you fellow travellers and wanted you to know I'm here and very happy you are, too,
Iolo
Thanks for sharing. It's great that you are feeling optimistic despite so many symptoms.My solution for itchy back passage (due I think to candida) is an olive oil wipe! I know it sounds strange but I've found it very effective (found the advice in a herbal book) I believe olive oil is anti-fungal. Live yoghurt is soothing and, again, anti fungal for vaginal itchiness. My solution for discomfort while sitting is to use a goose down pillow - it's like sitting on a cloud! Like you I have a wonderful husband and it helps to know how lucky I am in this respect.It's good to focus on positive stuff. Sometime its hard when I'm having a bad day but it helps so much to know that I'm not alone in this condition - this website is a lifeline.
Hi lolo
yes! I felt the same way when I started--lots of nasty die off, but I knew I was on the right path. It was a relief to me to be uncomfortable b/c I was getting better, not b/c I was getting worse. I used to tell myself, sometimes you have to go through pain to get out of pain. There is a pain that means you're getting worse and a pain that means you're healing.Yep, rice cakes broken up is just like popcorn, I've thought the same thing. It gives me heartburn, so I can't eat it for now.For anal itching -- man, I had rectal issues -- pain, burning, itching, that were insane at times. You would have to check everything with Matia, but some things that helped me were: q tip with colloidal silver just inside, followed by q tip with aloe vera gel; olive oil with a little powdered goldenseal, or just olive oil by itself, jojoba oil, plain yogurt with some probiotic in it. It all depends on symptoms, if you need soothing or cooling or both. All of these remedies contain yeast killers.
to icnotforme
I still do not understand. You have been doing this treatment for 6 years with Matia on only list 2 of foods, is your bladder lOTS better or symptom free?? How about all the other issues like energy that you have talked about? It would be encouraging to hear positive about you. Most symptoms improved?
Thank you
Wow..I cannot tell you how good it is to have these symptoms recognized by you guys. Thanks for the tip..I will try the olive oil, goose down pillow and have already had some success with yoghurt (just yucky and smelly, but good to know it's there when unbearable)..but mostly will bolster my spirits by remembering there are others with simiiiar experience.. It's sad to think how alone I've been with this for 6 years. The description of good and bad pain is so true.
I just started treatment this
I just started treatment this week. I took my first dose yesterday and found that my urgency was worse. I have been on diet 1 for 4 months and had been feeling pretty well. I know from reading many of the stories here that sometimes you have to feel worse (at first) to feel better. I was wondering if anyone can share their stories with me about this kind of thing happening to them. Often I read (as in this post) that the urgency and frequecy get better at first but that other symptoms (colds, sore throat, etc.) start to happen. I don't want to get discouraged but sometimes it's hard not to.
Tammy
to Tammy
I am glad that you have started with Matia. All I can say is don't get discouraged. Keep in touch with Matia as she will get you through this. I did and do have reactions to things that we try and Matia gets me through. This I know can be frustrating and discouraging. I am 5.5 months into treatment and overall doing much better but still have reactions. One thing that I keep having a reaction to is the fish oil which frustrates me so much but now we are trying a different route to battle my dryness. My urgency and frequency go way up when I take the fish oil. Also one of the probiotics I am on if I take more than half the capsule I feel reactive. It seems to be a balancing act and Matia knows how to find that right balance. It may take a bit of time (not to long). All I can say is hang in there and communicate it will get better. Last week I went for a walk with my husband and went for a cup of tea which was remarkable. In January I thought my life as I knew it was over. This may sound like a small thing but it is something that we used to enjoy together and we were able to do it again. When I tell people without this condition this story they don't get how special this was to me. I am sure you will get it and you will have your own special stories very soon.
Kriste
Kriste
Thank you so much for your reply.
It has been a difficult day for me and reading your post is just want I needed to bolster my spirits. The diet has been the easy part for me. I probably won't feel that way 6 months from now but when I started the diet my symptoms got about 90% better very quickly. I've been on the diet for a little over 4 months and had gotten to a point where my urgency and frequeny were managable. The flare I got starting my herbs has been eye opening. So much for thinking this might be easy. That I might be one of the lucky few that would just start getting better. I think we are all so used to taking a pill and things getting better (or thinking they are) and I know from religiously reading all of the posts here at this site that that doesn't happen very often. I'm so thankful that this site is here us. Thank you again for the helpful words.
Tammy
for Tammy
Tammy,Everyone has a unique treatment combination and things that work for you at first won't be good later and things that are uncomfortable at first become tolerable.that said- let Matia know if something is feeling like its too intense and is makeing things worse. It may just need a little tweak. somtimes its the difference between a sip of formula. Keep a journal of your condition for your self and your appointment because the details are very important- and are clues for the next step of your treatment. If I reacted to something and it was not tolerable- l(I have a very sensitive relationship with my body now and usually can tell if something is tolerable to ride out or defiantely something to change.) I let Matia know right away and she has always been able to find the right formula of herbs that helped me out of my reaction. Alot of times it was that we just needed to go slower or take something out. She will keep working with you until the right formula is found. I have had trouble with getting through the second probiotic. My bladder just freaks out every time I try to take more than 6-7 sips! I feel a bit stuck this past month but then I remember how a few months ago I couldn't even handle a whole bififdus and I had to take half a bif and 3 sips and now my bladder tolerates a whole bif but 7 sipsnow. This is real proof to me that sloowly my body is changing. It may just need more time to adjust to the additional sips but it will get there. You will have victories and encouraging things happen soon- and that will help your healing too. You can heal. your body has the potential- just communicate pay close attention and be diligent in your treatment. May you get some relief soon and know that you are not alone in what you are experiencing! Mary