Forums:
Hello everyone,
I have already talked with a few of you via e-mail and appreciate all of the kind words of wisdom. My mom is going to help me get out to California and I am going to see Dr. Brizman on Friday, June 12. I am extremely excited. I keep telling myself that I need to not get ahead of myself and I need to be patient.
I am going to begin eating level 1 of the diet beginning Monday, that seems like a good day to start something new. I think out of everything I a more scared of the diet. I know I can do it and I will dedicate my all to it, but I am just wondering if ya'll have any ideas of what I can eat for breakfast, a few ideas for lunch, snack and dinner?
I am wondering also if ya'll have lost weight by eating this way? By no meaans is my main goal to lose weight. My main goal is to get healthy, but I think it would be an added bonus and motivator if losing weight was common with this way of eating.
I am so ready for this. I can't wait. I do notice some of the posts where some people are 10 mos to a year into this and still having quite a few symtomes, which scares me a bit, but I am not going to back down. I am ready to heal and to smile. Even if this takes a year plus, I am still willing to give it my all.
Have a great day and I am open to any ideas, words of wisdom, etc... and I am so happy to become part of this group!
~Marla
Marla, There was a great,
Marla,
There was a great, long post on this a while back. Do a search (in the search box, top right) for "Diet List 1 Ideas" and you'll see it. Offers many List 1 meal ideas.
And yes, you'll definitely lose weight!
AsIwas
I'm excited for you, you've come to the right place without a doubt. When you see Matia she'll give you hope and motivation. For breakfast I eat eggs sunny side up and spelt toast with butter and I love it. Sometimes I sauté some spinach. I look forward to it when I'm getting out of bed. Sometimes I have sparkling water (just remembered, im on list 2, Matia started me on that this time) to wake me up more, but I haven't decided if I'm tolerating it well. You will lose weight. When I was in treatment the first time around 7 years ago I went from a size 10 to a size 6 in less than a year. This time ( don't worry not many relapse with Matia, I had 2 babies in 2 years and had gone back to old habits) I've been in treatment for 3 weeks and the weight is melting off ( of course I'm also breastfeeding) just in time for my 40th birthday in July! I hate my urgency symptom but I'm grateful to be recommiting to my health and to be heading into my 40's healthier AND to have this 2nd wake up call.
Path to Wellness
I posted a Quiche recipe yesterday. There are some great menu ideas on the forum. Starting new habits doesn't come easy for me, but the diet was much easier than I thought. I started on the diet and had a few frozen blueberries the first week as I was detocxing from sugar. Then I stopped the blueberries since they are yeast feeders. I read Matia's dissertaion as well as the other forum topics. It was so much easier to stay on the diet as I understood the reasons why certian foods were bad for me at this time. As finances allow, I would start switching to the gentle products guide. I have severe IC pain and noticed that my pain has improved as I follow Matia's protocol. Look for creative ways to follow her gentle product guide and save money. For example, I use olive oil to shave my legs. There is also a natural deodorant recipe on this site. Feel free to share cost saving ideas as you find them. Glad to hear you are on the path to wellness!
Diet
I still have a lot of food intolerances. I eat fish and potatoes for breakfast (usually leftover fish from dinner the night before). Lunch is usually a salad with some protein, like salad shrimp or you could use chicken. Dinner is usually a meat, potato, and salad or veggie that I can tolerate. The diet isn't as hard as you think. You will get on to it quickly. There are some good ideas in the recipe section. Good luck!
list 1 diet
I started treatment with Matia about 5 weeks ago. When I first got sick last december I was fortunate enough to obsessively research other options until coming across ICAMA. I started myself on the diet in January and stuck to it quite well until my appointment in March. I LOVE cooking and baking, so I have tried to be creative because I get bored easily. I make a flatbread with spelt/rice flour that I use for everything:2c. flour1 tsp. baking soda or baking powder2 T. olive oil1 t. saltdill, basil and/or garlic powder to your likingenough spring water to get a dough that's not too stickyPut in the oven at 350 for about 15 min, but watch it because it gets dry if it's overcooked! I have experimented with this simple recipe lots using different ratios, flours, and herbs as I've added them in. I find it's an excellent homemade pizza crust too. Just make an oil/basil "sauce," add grilled veggies and chicken and bake! I find baking powder makes it fluffier than baking soda. Anyways, I do lots of grilling because I think it makes everything taste better. I eat fried eggs and spelt flakes in the morning with butter and some spinach or squash. I think runny yolk taste amazing! Experiment lots with the few ingredients and you will find most every combination tastes good. I love the salmon burger recipe on this site. Cabbage stir fried with celery, shrimp, and garlic on rice is another of my favs. I am so excited for you. I am hardly into treatment and already know I am on the path towards healing. The die-off is really tough at times (as we speak I have a migraine and cannot take anything to help it...) but what you learn while going through this about the human body, mind, and spirit is truly amazing and irreplaceable! Patience is definitely key, but this site is a huge comfort! -whitney
Whitney
THANK YOU! for this flatbread recipe with pizza topping suggestion. I made it last night and it was AMAZING! So amazing, I was thinking there must be something about it that's a no-no or that it was going to cause a flare. I topped the crust with the oil/basil 'sauce' and put mozzerella, ground turkey and lots of broccolli and baked it. No bad reaction! It was so delicious, my husband liked it too. This diet can be so satisfying and amazing to me sometimes. I love runny yoke too!! I look forward to getting up in the morning and having my eggs and spelt toast.
Camille, your welcome! another idea...
I'm so glad you enjoyed it!! That makes me really happy! Now, here is an addition if you tolerate these things...For the "sauce" you can make a roasted red pepper sauce.Preheat over to 500 FHalve red bell peppers (take seeds,etc. out) and place them on a broiler pan. Drizzle olive oil on both sides and sprinkle salt and pepper. Broil for 20 minutes. Take out and place in a bowl and cover with foil. Let sit for 30 minutes. After 30 minutes you can peel the skin off but I leave it because I like the "charred" flavor.Roughly chop the peppers and throw in a blender of food processor with olive oil (maybe 1/3 cup? I don't measure) a Tablespoon of water, salt, pepper, minced garlic or garlic powder and fresh chopped parsley or cilantro. OH yeah, when you let the peppers sit you'll end up with juice in the bowl, make sure and add it to the blender. Blend to your desired "sauciness," I usually leave a tiny bit of pepper chunks. This sauce has become my all-time favorite thing in the world! I put it on homemade pizza, lamb or beef meatballs, rice, spelt pasta, or roasted eggplant sandwiches! Tonight I am attempting roasted eggplant and spinach lasagna with the sauce! Over the weekend make a big batch and you will have something so satisfying to add to lots of meals during the week with no extra effort other than maybe heating it up! For me a big batch is probably 4 peppers. It makes at least a couple cups of sauce, probably more. My boyfriend thinks I have a serious red pepper sauce addiction, but he is just as obsessed as I am :)
Wcorisa
Wow this looks fabulous. I will be trying this out this week. I tried a tomato sauce last week and not quite ready. This is for sure a great and tasty alternative. Keep the ideas coming.... and thank you.
Whitney, how do you make
Whitney, how do you make roasted eggplant spinach lasagna, please, if you don't mind?. I think your roasted pepper sauce is outstanding! How many peppers do you use for lasagna?
Would you may be share some more of your favorite recepies?
Thanks a lot!
Thank ya'll for your words of wisdom!
Okay, I have booked my flight to California and paid for my drs. vist. I am so excited. I will not lie, I do often find myself thinking am I going to be able to do this, to stick to the diet, to not use perfume, lotion, etc....but I then find myself saying ABSOLUTELY! I am willing to do whatever it takes to heal. I want this more than I have ever wanted anything in my entire life. I am sure I may become a bit obsessive about it, but I think it will take that to stick to plan. I am so sick of crying, of feeling so sad, of wondering how in the world this happened, what went wrong, and how on earth am I going to get my sanity back. I have learned more over the past 2 years, than I have ever learned in my life. I have learned what the "little things" are and how to appreciate so many things, how to appreciate my health. Without good health, it seems we have nothing. See, I did not realize that before and I took so much for granted. Never, ever again will I take my health, life, sanity for Granted EVER again. I pray to God to please help me heal myself. Please, not only do I want this, I need this. This is not how a human being should have to life. There has to be an answer and I will be damned if another doctor tells me otherwise. I am scared of these die off symptoms ya'll mention, but I feel at this point that I have tolerated so much, that I can make it. I have been trapped in this ill body now for too long, so ridding this out of me is worth it to me. I am scared of my new eating regimen that I plan to begin on Monday, but it is all worth it to me. IC has given me strength that I did not even know I had. I will conquer this, if I have to trick my mind into it, whatever it takes...I am going to heal. This is not the hand of cards I feel I should have been delt, and I am so ready to smile, to not cry, to be a good mom, to workout sometimes, to sleep, to not have to pee all of the time, to not have to lay on the couch or bed each and every night with a heating pad, etc....and the list goes on but I will not continue as this is all negative. I can do this, and I will.
Hi everyone,Well, today is
Hi everyone,Well, today is day 3 of eating the 1st phase. I think once I have done this for awhile it will not be to hard. I am wondering, I have been chewing sugar free Orbit gum. Is that okay, or is that a big no no? I have found one thing that I have made part of my meal from Mon til today, and they are potatoe chips that have potatoes, olive oil, and sea salt. I never loved potatoe chips so much in my life. I had those today with a hamburger patty and broccoli. I can't wait till this sugar craving goes away. Hopefully in a week or so I will not miss things as much. This is all worth it to me and for a wonderful cause.
gum is a no no
I've asked Matia about gum before because my kids' dentist is always recommending gum sweetened with xylitol which is supposed to be a natural sugar free sweetener that comes from birch trees. The dentist says the gum helps to prevent cavities, so I asked Matia about it. Matia said that any kind of gum is unhealthy because it tricks your body into thinking that you are eating. Matia also told me that good dental health will come with a healthy balanced body. Your sugar cravings will go away, hang in there and keep on reminding yourself what a good thing you are doing for your body.Carol
Thank you Carol!
Gum is now in the trash!I also bought products from the Boma Sense website and have quit using perfume, and perfumed lotion. I ordered the face/body wash (fragrence free), jojoba oil, shaving cream, sunscreen, and face/body lotion (fragrence free). I have still been using makeup but plan to do the switch soon when I have more $$$. I am wondering, is Origins makeup okay? I also ordered raw minerals makeup as it seems very non-toxic.
Good for you!
Good for you, you're off to a great start! I've been using the Origins makeup without a problem. A good question for Matia when you have your appointment. I think I've seen Origins mentioned on her safe products list, but it's always good to double check. I don't have any experience with the raw minerals, but I think I've seen other members mention it. Try doing a search, you'll probably find it.
aslwas
Oh man! sugar free anything is a big no-no! avoid them like the plague! Fake sweeteners actually contribute to unwellness so ditch the gum and be patient. Later after you are well you can use a safe sweetener in moderation called agave syrup - or use fruit sweeteners. - make a fruit concentrate for pancake syrup substitute. I had a piece of grapefruit the other day after no fruit of a whole year and it tasted sweet as candy to me. INCREDIBLE! amazingly it was almost too much sweetness. A grapefruit! your palette will become so discerning and detect the delicate and subtle complexities of simple food in no time- just wait. I hardly even use seasoning although I do look forward to the day I will eat a slammin Thai or Indian curry. I think it will be like flavor overload! Good for you about the diet!
I just spit the gum out!
Thank you Honeybee, I just spit the gum out. I am basically addicted to gum, or perhaps it is the sugar I am addicted to ;)I literally each day of my life up until this week would chew about 5-8 pieces of gum throughout the day and it was all sugar free! Argghh, bad, bad!Once this craving goes away, it will all be behind me. I can get through this. I can! Have a great rest of the day.p.s. I am also feeling a little tired, moreso than normal. I guess this is becuase I am not eating sugar or sugarfree stuff to keep me going. Ugh, goodbye sugar, hello healthy life!
Makeup, Sugar & Gum
Re: makeup > Matia says that doesn't tend to be a problem. Just avoid Clinique; people have had issues w/ their lines. I can also recommend Everyday Minerals - very cheap, tons of colors. And Bare Escentuals lipsticks are very plain, can get from Sephora and haven't caused me problems.
Re: sugar cravings > It usually takes about a month. And it can definitely feel like withdrawal, because it is really! Hang in there - even when it feels like you NEED that chocolate cake, as impossible as it may sound now, those strong cravings really do fizzle out. And many people (me too) claim after a while of abstinence, even the casual desire for dessert goes away.
Re: gum chewing > I recently researched this further to get my husband to stop. Figured this is good to share w/ everybody. Great summary info here from Dr. Mercola (mercola.com):
One should rarely, if ever chew gum. There are neurological connections between the jaw and your pancreas. The act of chewing stimulates the pancreas to make digestive enzymes. This is why it is so important to thoroughly chew your food. However, if you are chewing and your pancreas believes it will be getting food it will make enzymes to digest it, but the enzymes will be totally wasted and one"s biochemistry will become unbalanced. It is a huge waste of precious enzyme activity, which is the major reason why people should not chew gum.
Thank you for the tips Lisa! :)
I am going to try the Everyday minerals. Also, what sort of shampoo and conditioner do ya'll use? I woke up today spitting up congestion (sorry to be gross) and I have had a migraine headache all morning. This is out of the norm because I do not get headaches. Could "die off" be happening this soon into it? Only 4 days? Maybe I am just sick or something, I dunno. Can I take tylenol for it or advil or do I have to stick these out? I am also detoxing from Vicodin (don't want to be on Western pain meds!!!) so it may be that as well. I hope to hear from ya'll soon. Have a great day! :)
aslwas
When we change out diet to this simple cleansing one then yes I think our bodies begin the process of cleansing- so you could be a little sick or it very well could be the die off process beginning. You could be cleansing having die off and its making you sick as well as going through some sugar withdraw! In chinese medicine theory phlemg is a dampness condition-a problem condition and candida (yeast) are also considered dampness conditions. A diet high in sugar contributes to a dampness condition and harms the immnue sytem in our GI tract. the lungs and the large intesting have a strong connection and relationship to one another.l In TCM all the organ systems and meridian( energy pathway systems ) systems support each other and are influenced by one another. So its intersting that you are expelling phlemg from your stomach? - its actually fabulous but probably really unpleasant! I beleive that in general matia feels that tylonal and aspirin can really exascerbate IC pain so if you have to - take ibuprofen but keep it to a spare minimum. I took it for menstral cramps but I also kind of felt the ibuprofen was irritating me as well but i don't have to take it anymore. Folks report headaches and migraines as a common symtom of die off. Its so cool how our bodies when given the right precription of food are like- yes- ok now I am going to do what I need to do- it starts the process of cleansing and shedding off the crap it doesn't need or is harming it. FOOD is very powerful medicine- especially on this cumulative level and diet is such a huge part of getting well. migraines and phlem in your stomach won't be an issue in the future if you eat well. even though everyone around me has been getting sick I stayed well this year- on an acute level- no flus or colds or allergies. keep up the good work! you feel so terrible everyday. I recall when I started the diet it seemed like my symtoms were some immediate dieoff- I couldn't see Matia right away- for a whole month but I wanted to get a head start on the whole process. boy did I feel crappy- but i felt better after starting the herbs and probiotcs. not everyone gets that but many have that reaction. still I'm glad I started when I did and that I haven't cheated at all- at least not conciously. somtimes its an accident and you eat something you didn't mean to- its fine you just keep going. having that month of preparation made it easier when I needed to add in all the herbs. I got the hang of it after awhile but I remember feeling sort of overwhelmed too-like just double checking i was doing everything right until it became second nature. anyway I'm rambling again. peace.
Honeybee, thank you so much.....
and I beg ya'll to please ramble on! I learn from yall's experiences. Yep, this must be the beginning of it. It is okay, I am kind of happy it is happening as it tells me I am ridding this crap out of me. I have never felt so crappy and so excited all at the same time. It is sort of like an oxi-moron. Lol! Thank you, thank you! :)
Tonight I made the Spelt tortillas...
I tested one out and to my surprise it was pretty dang good! Tomorrow I am going to make taco style meat (only seasoned with salt and garlic powder). I am going to make tacos, and add the meat, shredded lettuce, red cabbage, and a little oile oil and call it a meal. I will most likely had a side salad as well to add a bit more veggies to the mix. So far this week I have made chiken shish-ka-bobs w/ all allowed veggies, then burgers on spelt bread with lettuce, also with broccoli. I have also had chicken with zuchini/potatoes/yellow squash in parchment paper with olive oil and allowed spices. For breakfast I had eaten 2 pieces of spelt bread (toasted) w/butter, and 2 scrambled eggs each morning. Tonight I had a salad, with piece of spelt bread on the stove with an egg cooved over it and seasoned with salt and garlic podwer. I am trying to keep on making new things. I have to learn to be creative w/the limited amount of food. I think out of everything, this way of eating is the hardest. I just keep reminding myself that one day it will all be worth it. So worth it~
shampoo
On shampoo- apparently I didn't know this for a long time but you can usethe bomasense soap as shampoo too. at the health food store you could ask for a sample and try out this - Neem shampoo. forget the name! Its a green and yellow bottle I have used it with good results and no reactions. I apply a little teeny bit of jojoba oil to my hair as conditioner every once and a while but haven't needed it too badly. look out if she puts you on goldenseal - it will dry your hair out bad! but then after you are off it it will be really shiny and healthy. I hear californina baby makes a gentle shampoo? might lookinto that. there may be simple fragrance free shampoos out there I found one but I forget its name. look for ones that omit common additives like fragrances and essential oils like rosemary and vitamin E.
Sore throat?
Hi everyone,
I have done really good all week by sticking to the eating plan. Last night out of the blue my throat starting hurtimg to swallow. It lasted all night and still today is hurts to swallow and my head hurts a little. I do not have a fever, but I do feel a little off. Is this a common die off symptom?
die off symptoms
Absolutely! Matia would ask me all the time in our sessions- are you having a sore throat or headaches? I would get a sore throat from time to time but it would never develop into anything major- it was often a very quickly passing symptom. somtiems I would feel feverish- take the day off and nap hardcore as much as possible. You will be blown away at the possible range of die off symptoms and the symptoms of systemic candida. Incredible things will come out of your body or manefest as often uncomfortable or gross symtoms - probably all different things- could be bacteria or microbes or viruses or paracites or whathave you getting the boot however it doesn't matter what it is exactly as the evils are coming out! Die off can resemble the flu or colds or it can be manefested in rashes or acne or joint pain muscle soreness, jaw tightness - hot flashes in the legs - stomach cramps, hormonal shifts, anxiety attacks, depression, insomnia,irritibility, migraines, nausea, diarrehea, constipation, major snot and congestion, bloating is a big one- my stomach used to be ballooned out and I coud not hear jeans or pants. I lived in dresses and skirts last summer and all this winter. It has since gone away pretty much completely. In fact as someone who wants to be a belly dancer really really badly- I think my stomach right now is too flat and diminished! I feel way too skinny to really be effective as traditional dancer- they have the most beautiful toned bellies (not six packs- not really feeling that flat ab look)- but still somehow beautiful! as an aside- the other day I was in this department store and this totally smokin woman emerged from the dressing room- quite curvy actually and said to us waiting for the dressing room- ummmm do these jeans make my butt look too small or flat? I thought that was AWESOME! anyway- yeah! even the weridest symtom you could imagine is most likely die off. numbness and tingling in the arm? ( large intesting meridian runs down the length of the arm!) I always kind of found my symptoms facinating- and a strange source of bragging for later. 'Hey honey I'm home! you'll never guess what I saw in the bathroom today! turns out I was hosting a small school of lampreys in my intestinal tract? no idea how they got in there...probably grade school lunch or something" I'm kidding making bad jokes over here. anyway- yeah take notes everyday of your symptoms- keep a little notebook to track them and notice how long they last. somtimes you just leave it alone and it will pass sometimes you might want to apply something IC safe that could make you more comfy. for example i get yeast infections- like more than what I always have... and I'm going- uhhh I need some help here... you can try apllying plain yogurt or put jojoba oil on the area to soothe it. I always check with Matia first- she also has good advice for things to do to help things pass but sometimes you just ride it out and it goes away eventually. getting on the herbs here in few weeks will make a difference- as they will bring out the evils and they will also treat them at the same time. hope this helps. get some rest so your immune system can deal with that sore throat! -Mary
I love your post....
Mary,You have me laughing so I want to start off by saying THANK YOU! Wow, looks like I have alot of die off ahead of me that I have not even begun to enconter quite yet. I called my mom yesterday and told her I was so excited becuase I had a headache and my throat hurt. How funny is that?!?!? I was just excited because die off to me, shows that this way of eating is working and the crud is escaping my body. I really do feel in my heart that I am going heal and I am going to give it my all. I am going to try to remain patient. Even if this takes me 2 years, then so be it. It is either I do this, give it my all and it 2 years I am better, or I don't do this, and in 2 years I am the same if not even worse. I choose the go for it!!! Thank God I was brought to this site and in such irony at the same time. It just goes to show that everything seems to be meant for a reason. This IC I have to me in a way was meant for a reason, but I will not go into detail here. I was going to an accunpcturist here in Austin, then my mom started going to her as well because her neck hurt. Well, come to find out she has a herniated disc. Right next door to my accupuncturist office is a Physical Therapist office. My mom started going there and ended up asking the PT if they worked on IC patients. That PT was not even aware of IC, so she asked the other PT in the office who what do ya know....her sister has been with Matia for over 2 years now and her IC is completely under control and pretty much just gone. That is how I found out about Matia and this site. I had come across the "IC Road to Recovery" site once back in the past but I was so new to IC everything and all of the sites were overwhelming so I ended up skimming over that site and moving onto the next. I hope my future has happiness to come of it cause I am tired of the pain and I am tired of the sadness. I dream of the happy life I am going to lead, I just hope my dream comes true.
Leg Pain, horrid!
Hello everyeone,Well, my bladder is not feeling so bad this is amazing because I am about to start my period in a couple of days. Normally right now I would be in agony over that burning pain. Today is day 11 of the diet. This is actually not so bad at all. I am actually really enjoying it in a way. I have also lost 4 lbs, which is an added bonus. Just 12 more to go. That is not my focus here though of course, it is getting well and my bladder healing. I am sorry to complain but my right upper leg hurts so bad. Is this just another symptom of die off? It is just aching and aching. Ugh, it hurts so bad.June 12th is just getting closer and closer and I am so eager to meet Matia. :) I am a bit worried about what in the world I am going to eat the 4 days we are gone. I will need to figure this one out since every meal will be going out to eat. Hmm, I am going to need to get even more creative. I will figure it out somehow. Where there is a will, there is a way!Please if anyone can relate to this leg pain to let me know I am not going crazy. I feel that my leg hurts just as my bad as my bladder would. Yes, I am super happy it is not my bladder, but I would love to just chop my right upper leg off right about now. What, that visual does not sound so good.....
Many can relate to this.
I haven't had this happen but I have read many posts about leg pain. Torey can relate to this I think. Glad to hear that your bladder is feeling better. I felt a lot better just after starting the diet. I would love to talk to you before you leave. I lost your #. email me. Tammy
hey! my leg KILLS me esp. my
hey! my leg KILLS me esp. my left leg. it hurts worse than my bladder sometimes. im constanly having to rub it, it drives me crazy!!im sure its all die off
upper thigh, glute, and
upper thigh, glute, and sacrum burning were some of the major issues that i came to matia with (in addition to the vulvodynia). like everything else, that pain waxes and wanes. but, i can tell you that those areas definitely are effected by the herbs/treatment. i have definitely had increases in burning in those areas in relation to the herb changes she makes. also, about a month back i was having INSANELY bad burning in all those areas for more than a week and i was concerned that the herbs were making me worse. but, matia said not to worry, that that area is a common area of release for toxins, so if you are cleansing that can get really bad. well, she must have been right because eventually it subsided and i felt a lot better. hope this helps!
Thank you all for your responses
The leg is feeling much better today. I am coming to terms with the fact taht all kinds of odd things are going to happen as the die off continues. It is all worth it to me though. I will just keep on keepin' on!
Just need to get this out...
So today has been a hard day for me. I started my period and the pain is horrid. I am so eager to go and see Matia, but right now I feel so sad. Some days I feel like I am living in a nightmare and I so desperately want my what I remember, life back. Today I sit here just balling wondering will this ever end. I just got in an arguement with my hubbie as well. This illness really causes alot of troubles in every aspect of my life. I am sorry this post is not uplifting and I will try not to post to often when I don't have something postitive to say, but right now I feel so sad. Some days I just shut my door at work and I ball, and ball, and ball and think to myself that I can't take this anymore...but I have to take it. I live each day for that day...pain and all, and I really appreciate the little things in life now like sitting outside and breathing fresh air. Somedays though, like today I just want to run away and never come back as ths sadness really takes a toll on me as well as the constant pain. Thank you all for listening. If there is anyone out there that has a silly joke, or a positive thought, my ears are wide open and listening. I am by no means looking for attention, but I just need to connect with others that know this feeling. I tried to explain to my husband that I go to work every day and it takes everything I have inside of me to stay, but I do it dang it, I stay. I do not let this disease rob me of my career even if the night before I layed in bed going back and forth and back and forth to the bathroom, with a heating pad on and finally going to sleep around 2 just to wake up at 6 to do it all over again. Ugh, I feel trapped. Tomorrow will be a better day, it has to. I will get through this feeling as I have so many times before (well since IC). Once I overcome this illness (yes, I said ONCE because I am going to win, I AM GOING TO WIN THIS BATTLE IF IT IS THE LAST THING I DO) I will be the strongest woman alive. I can't wait to become a better person inside and out. Along the way, getting to be that better person there will be days like today where I wonder how in the world am I going to make it...but I do, I do make it, and I do it over, and over, and over...I want to be well, I want to run outside and laugh and smile, I want to always cherish the little things, put this illness behind me and never forget the beautiful lesson I learned along the way...NEVER AGAIN ONCE I GET BETTER, WILL I TAKE MY LIFE, MY HEATLH, MY HAPPINESS FOR GRANTED EVER AGAIN. Mark my words!
aslwas
Aslwas it is okay to post on here when you are not well. We are here for you in the good times and the bad. You are a very strong person to be able to tolerate the pain and sleepless nights and still go to work day in and day out. For the past year I have had to cut back my work hours due to the sleepless nights. I have slowly been increasing but still not back to full time. I do know that there will be a day when I will get back to full time again as I am improving. I am not good with jokes but I can send you positive thoughts and best wishes. Do take care of yourself, don't push yourself just be kind to yourself. This will benefit you and in turn benefit your family in the long run.
Aslwas, My heart breaks for
Aslwas,
My heart breaks for you. I was in your position a year ago, and still, at times, have moments even now. You are tremendously strong for posting this on here. You amaze me that you continue to work. I've been on disability for a year now and can't imagine going back full time, but am excited for that day. Just remember this will come to an end. I will never take working full time for granted! I yearn for doing the job that I love and hope I won't complain about it ever again!
I often look around at my friends and peers who are just starting their families, enjoying time with family and friends, successful, living regular lives and eating normal, yummy things like birthday cake on their birthday and pie at Thanksgiving. I feel like I'm being robbed of some of the best years of my life. I worry that I'll look back and wonder why my life stood still for a couple years but life around me went on! I feel cheated and resentful sometimes. But know this. WE will all be stronger for this. We are getting so healthy and getting so in tune with our bodies. Women our age probably envy that. They are so busy with their kids and crazy lives, someday they may be suffering with an illness and have to go through imbalance later in life while we are getting it out of the way now and learning so much as we go. Does this make sense?
This IC robs us of so much and takes so long to heal, it can be frustrating and one can lose hope often. That said, we are lucky to be battling a curable illness and not something terminal and horrible. Yes, it's horrible in its own right, but you get my drift. We are dealing with so much pain and unhappiness, but once we are on the other side of it, we will never take things for granted that normal people our ages often do and don't realize. We will be able to enjoy life that much more later on after having gone through this pain and suffering. That's what keeps me going.
I went for a walk today. It was a beautiful sunny breezy spring day. I couldn't help but remember a year ago being doubled over in pain on my bathroom floor wishing I would die. That walk today meant way more to me than anyone could understand, I'm certain! You will get there too! And the air will smell so much fresher and sweeter, The sun's rays will warm you more than ever before! You will smile more than ever before! This day will come, trust me!
AsIwas
As another said, please feel free to post no matter how you are feeling. It helps us all to know that we are all in the same boat when it comes to the intense emotional, physical, spiritual challenges of this disease.This is my second time in treatment. I'm so grateful I have the benefit of the first time I was in treatment with Matia. From that, I know without doubt that I will get better, because I have before (and now I know what to do to STAY better). You will too. Just hang in there, you will get to Matia and you will keep getting strengthened by her persistent care, experience and brilliance and by staying in touch with this website, and by your journey to get healthy.It is SO hard to deal with this syndrome with family and friends, I know. That's why it's so good to come here and pour out your heart, because we understand better than any of our family and friends can, loving and caring as they may be. We know what it's like to have this chronic, torturous condition, that is invisible to others and doesn't have the same attention as a more life-threatening disease. What many people around us don't know is that IC has the power to kill – people have committed suicide rather than live with some of these symptoms.But we are all so lucky to have found Matia, and so we have hope and so much more. I've only started treatment this time 6 or 7 weeks ago, and people are telling me I look amazing, and so young (will be 40 this year). And now I know I need to protect myself against IC in the future, so I will continue this way of life from now on, under Matia's guidance for as long as I need to. I feel that if it wasn't for IC, I don't know what would have ever motivated me to be and stay healthy. I would just keep eating sugar, not exercising, etc., b/c those are the issues I've struggled with. The IC has really taught me that I was really having a hard time loving myself and my body and now I feel so much more committed to myself in that way.Stay the course, you can do this one day at a time. There will be many good days ahead.
Thank you all so much for your kind words
I was obviosuly having a horrid day the other day and had to just let it out. Today is day 20. I am getting pretty good at this way of eating and never do I crave sugar. I thought it would be so hard to do this, but it is not. I know it will sound vein to say this, but I am also losing weight, 7 lbs to date, so this is boosting my self-esteem. I feel like I am killing 2 birds with one stone. I am telling my family that I am going to give this program everything that I have got. I feel a bit obsessive about it, but this is a good thing for me. I want to do this right and I want so badly, even if it is 2 years down the line, to get better. I will be so happy they day I can workout, go and so yoga, go on a 3-5 mile walk, maybe ride a bike (not sure on that one), etc... I know in my heart that I am going to get better. I am going to get through the bad days, always keeping in mind that ahead of me is a life worth living, a life full of happiness. Thank you all so much for listening, and I truly appreciate all of your words. I am not sure if I can express how much they mean to me. Thank you!
Aslwas- You're in good company!
Aslwas- Just reading your post about having such a rough time. I think I probably speak for everyone when I say that you are not alone! I started treatment just over 2 months ago and hit a horrible rough patch a little over a week ago. Living with IC and being in treatment takes unbelievable patience! When my bad spell started I happened to be camping (BAD IDEA). I thought "it's only for one night, I don't want to miss out with all these friends" and leading up to it i felt pretty good. Well, it turned into me bawling laying in the tent at night, my boyfriend not knowing what to do, and me having a total panic attack saying "what if I never get better? If I don't get better I don't want to live." I couldn't breathe, I couldn't stop crying. Now I look back and feel insane, but at that moment in my head I truly meant it and I hurt so much! The mind has so much power, to be positive or negative. I let the negative take over, but you have to try your best to turn off that switch and breathe, as someone recently told me. The key is to know that it is all temporary! Every pain, every terrible moment- they are fleeting and will turn into so many more wonderful, happy moments. This website has truly been a lifesaver, so never hesitate to post about the times you're feeling horrible and need other's help, that is why we are all here...to help each other along :) I hope you are having a better day today and remember that this is not forever, you will get better!
Going to see Matia this Friday, so so so excited!!!!
Hi everyone,Well, the time has finally come and I am leaving to go to California tomorrow and will see Matia this Friday. I know it is different for everyone, but is there an estimated amount I should be prepared to spend when I go and see Matia for herbs, etc? I know there will not be a definite answer, but if someone could just give me a round about answer and any tips if ya'll have any. Thank you all so much and I look foward to this with all of my heart!!! :) (yes, I am a cheeseball but this means the world to me)
aslwas
I am happy for you to be going tomorrow. It is hard to say how much you will need to spend on herbs tomorrow because you are right that it is different for everybody. Who knows you might only need one herb and then the rest will be available from where you live like the fish oils, probiotics etc... I think that I spent about $80. You might also want to look at getting some of the Bomasense products while you are there so you don't have to pay shipping costs. When I got home I decided that I wanted the lotion and sunscreen and had to order it and pay shipping and duty costs as I am in Canada. Best of luck to you tomorrow!
Great advice Kriste
I would advise the same on the Bomasense products. The shipped is a big expense when ordering online. The thing about buying herbs while you 're there is that what she starts you out on may not always be the right fit. She may have to change something. Then you have herbs you can't use. I'm not sure if you can return them either. I bought one bottle of herbs and wished later that I had stocked up on the Bomasense things. Hope this helps. Have a great trip! Tammy
Kriste gave great advice.
Kriste gave great advice. Just want to say good luck & safe travels. So happy you're starting your journey - literally & figuratively!
I had my first appointment
I had my first appointment with Matia last Friday. I walked out with 2 bottles and spent roughly $50. I just placed my order for my next bottle and I was shocked by the price. I'm very happy about doing this, but I'm certianly going broke!! Does anyone know why the shipping is so expensive? I only ordered one bottle of herbs which weigh next to nothing? It was $44 all told for one bottle that will last me 9 days! I live in the US too. The expense of it all is very frustrating to me. Herbs from my acupuncturist used to be around $5 so I don't get why these are so pricey. I might add, though, that Matia's herbs are working!!
I also bought Matia's dissertation which was worth every penny as I always need to know they WHY behind everything we are doing and it's very helpful in that area.
God luck!
Sam
I had my first appointment
I had my first appointment with Matia last Friday. I walked out with 2 bottles and spent roughly $50. I just placed my order for my next bottle and I was shocked by the price. I'm very happy about doing this, but I'm certianly going broke!! Does anyone know why the shipping is so expensive? I only ordered one bottle of herbs which weigh next to nothing? It was $44 all told for one bottle that will last me 9 days! I live in the US too. The expense of it all is very frustrating to me. Herbs from my acupuncturist used to be around $5 so I don't get why these are so pricey. I might add, though, that Matia's herbs are working!!
I also bought Matia's dissertation which was worth every penny as I always need to know they WHY behind everything we are doing and it's very helpful in that area.
Good luck!
Sam
I have been frustrated by shipping costs as well.
Maybe we should bring this up to Matia at the next phone meeting. The last time I ordered my herbs, I got 4 bottles. This was $$$ but in the long run I paid less for the 4 bottles when you add in the freight. I really think she should offer USPS ground for those who can wait for them. Tammy
costs
I ocmpletely agree with you Tammy. I live in Canada so I also have to pay duty costs and axchange rates so anything to save a little would be appreciated. I have delayed my appointment this month just to save a little because I have had to put a few orders in for herbs due to changes.
I have talked with both
I have talked with both Rachel and Matia about this plenty of times. In the past we used to have to pay COD on the herbs and it was even more expensive. Honestly I think they have an arrangement with FED ex with there printing labels ext that is why they use them and only them.
It doesn't seem to matter about the weight it's the amount of time the delivery takes. If i know i am going to be on an herb or taking a supplement I will order more then one bottle. Even if i end up not using the whole thing chances are I go back to it at some time. I have ended up going back to all of my herbs during the corse of treatment. It is definatly more expensive for us long distant patients.
If you can afford to buy your apontments 10 at a time that will save you a hundred dollars but that means 1000. up front. so instead of them being 110 each they are 100.
Also the probiotics I always order my 90 caps and get 3 bottles at a time for the discount. the 3rd bottle is 15 dollars. For me I have been taking them the intire 11 months i have been in treatment so it's worth it to stock my fridge.
I know it's expensive there is just know way around it . I wish i had some better answers for you. They didn't even take credit card when i first started treatmetnt it was all cash. Maybe there will be more options in the future.
I am back in Austin now, but having MAJOR ANXIETY ISSUES Normal?
Hi everyone,The visit was great! I am back in Austin now and sticking to plan. I did vear off there for a bit, but now I am extremely gung ho and ready to heal. I am wondering, since I have been back, I have had a ton of anxiety. Is this normal? I am not sure what is going on. It is driving me crazy. I am trying to not think about it, but I can't seem to help but think about it. I am on the Superdophulis and the Reh. Peominia (not sure how to spell it) and my bladder is feeling okay...it is not bothering my bladder at all)My prob, is that I am getting really anxietyish, like my chest feels tight, it is hard to breath, ugh, I hate it! Any words of wisdom?Please help!
This tends to come up esp. if
This tends to come up esp. if you dealt w/ anxiety issues in the past. As unpleasant and uncomfortable as it is, if it's "manageable," hang in there with it and don't freak out over it b/c as w/ so many other reactions / die-off it is normal. It's also always fascinating to me in the research literature how many ICers have anxiety or panic. Clearly from a Chinese perspective they are connected.
I can recommend an excellent book - When Panic Attacks: The New, Drug-Free Anxiety Therapy That Can Change Your Life. Good for anxiety not just panic attacks.
Thank you Lisa for the book advice
I have always had anxiety, but geese, not like this. It just came out of nowhere and seems to be taking oer my body. I keep pondering, is it the regimen of stuff I am on, or is it die off, or oh goodness...I could wonder why forver and that will just cause more anxiety. I will be so happy when it goes away. I need to look into buying that book. Watch out Borders, here I come!
Wow, went on a walk...anxiety has release for now!!!
Hi there everyone,We have a workout room at my work and I walked on the treadmill during lunch. Prior to walking on the treadmill I had a ton of anxiety, and now I feel so refereshed. So, in other words and note to self: When this disease permits, walk on treadmill or outside to release that nervous energy. If it was my choice I would walk all darned day to release this, but my IC many times does not allow me to do that with the pain. But, I will take today for today, adn be happy I was able to walk today. Ahh, I can breathe.....