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I am getting better. It is slow but it is there. i will tell you though, that it doesnt get any easier to deal with the symptoms when they crank up again. The past month I have been having more "good" days and then last week I had 5 in a row and Friday was the best yet. I was even thinking to myself, "Maybe I am over this stuff." Then yesterday, I felt the frequency up again and then last night after going a tiny bit off the diet, it came back with a vengence. My issue is bacteria, in particular, mycoplasma. I can feel it in my vagina and in my bladder when things get rough. Yesterday I had a smoothie and though it had no sugar in it, it was too much. While I don't know for sure if that had anything to do with it, I suspect it did and so I am kicking myself today.
This is the hardest thing I have ever been through. I have had surgeries (one on my bladder with all kinds of tubes etc sticking out of for weeks afterwards), I went through Meniere's disease with vertigo attacks in the middle the night. I have lived with tinnitus.(ringing in the ears, though in my case it was a car horn going of 24/7) I had a natural childbirth that was very painful but this is THE WORST yet. The emotional and psychological aspects of this condition are incredible not to mention the physical ones.
I am grateful for the 5 good days in a row in which I remembered what it felt like to be "normal". I despise this disease however and I WILL CONQUER IT.
Anyone that wants to join the venting today, please feel free to add to the thread. Anyone with words of wisdom and encouragement, that would be even better. I am trying to keep my head on straight and stay postitive.
Waaa waaaa waaaa :(
Samara,
Samara,
I am right there with you. I have done natural childbirth four times with no pain relief so I assume that my pain threshold is pretty high - yet, this disease has knocked me to the ground. What is it about IC that does this? I have not had a single 'normal' day in a year - just over a year ago, I went to bed normal, happy and healthy and woke up with this. It is a shockingly bad illness. However, we WILL conquer it. No words of wisdom, I'm afraid, but I do really, really sympathise. My husband has taken the children away for a week on holiday. I should be with them but I am not as I can't go. They have all accepted that mum can't go to the same places as the rest of the family. It's normal to them now. That is so sad. I utterly despise and hate this disease too. If it helps, most people writing on the IC boards ALL say that this is worse than ANYTHING else they've had to deal with. They would go through massive surgery, have bits of body lopped off etc, rather than deal with IC. What is this monster?
(((Hugs to both of you)))
(((Hugs to both of you)))
I too woke up with this nightmare only 3.5 months ago. It is so impossibly hard and isolating.
Vin, how heartbreaking you can't be on holiday with your family. Is there a short trip you can take in the new year where you could drive and have a kitchen to cook in? I plan to travel to Lake Tahoe this winter, even if I have to make pit stops or bring a car potty...Even if it is close by and only for two nights? I know this is horrible. Do you have any positive changes since you started your protocol? Could you post them?
I still am in shock that I even have this disease. I try to just stay focused on the healing because if I dwell too much on the illness it is just crushing and anxiety provoking.
Sam, I think you will be able to manage the ups and downs of your pain levels better when you are adhering strictly to the protocol. While you are still self-treating there are just too many variables for you to keep track of. I think any natural sugars or fruits, or some of the other things you have in your diet are triggering the symptoms. Dr. B will control for all of this so there will be less guessing on your part. I pray you will start with Dr. B in the new year!!!
After the school tradgedy this week, I am focusing on my two beautiful girls. How greatful I am that my family is healthy and safe.
I know we are all moving towards health when this horrible disease will be a memory. Many, many people have healed from this horrible condition. We will too.
If we don't excel at health, the only other option is disease.
Yep you are right Mimi. When
Yep you are right Mimi. When I spoke to Matia last she said since I am having success to keep doing what I am doing, so it's one day at a time!
That shooting was terrible and yes, there are many things to be grateful for even in these crappy times of illness.
We all need a group hug!
SO HERE'S ONE BACK! ((((((((((BIG HUG!!!!)))))))))))))
Just wanted to say that my
Just wanted to say that my thoughts are with you all at this tragic time. I am in the UK - the coverage of the school shooting has been heartbreaking.
Mimi - I am still not well enough to go on any trips really - I have it very badly. It's terrible that the kids have to miss out on life if the mum's ill, so they go with my husband. It's such a shame - but I do hope to be able to join them sometime soon. I have seen some small improvements so that is something to be thankful for. I have a very long way to go - but have no doubt that I'll get there - we'll all get there.