Forums:
I have been trying dilligently to take the herbs for the last 10 days and I am getting horrible sinus headaches from the Rhemmaniae P. Dr. B says to persist it will get better but I cannot continue to work and think under these conditions. At least, I need a break. Any thoughts would be appreciated. I do not want to deviate from the protocol but this is very hard.
I am 5 months into treatment
I am 5 months into treatment and have suffered on and off with severe headaches. The headaches do pass. The RP did not cause mine - the goldenseal is the cause. Hot steam helps a liitle. Try to get through it - but if it is to painful I am sure Dr. Brizman can make an adjustment for you. It seems that sometimes you have to take a step back to move forward. I have had to stop and then restart a few times. Dr. B has let me take tylenol if I really need it.
Headaches
Hi Bonnie,
I too have suffered on and off with tremendous headaches. So, I'm feeling sorry for both of us. I never asked if this was ok to do this - so you might ask. Anyway, I've used a Neti Pot with 1/4 tsp sea salt. I've also added, occasionally 1/4 tsp baking soda with the salt. I have a feeling that the baking soda would definately be a no no. Anyway, it has helped tremendously - during the worst part I was doing three times a day.
If you do ask Dr. B - I'd love to hear what she says.
Thanks,
I have been on RP for a few
I have been on RP for a few months now, except for a break while I dealt with bronchitis. I've recently noticed I'm more tired than usual, poor sleep, painful eyes and this lingering nausea and dull headache for about a week now. I just want to stay in bed but then can't sleep well bc of bladder symptoms or whatever. I know--sounds like die off right? I was on a heavy dose of probiotics and then some vitamin D in addition to the rp. I emailed Matia to tell her about these symptoms and she said the protocol was too heavy for me and took out the D and some other stuff but kept in the RP. I know the first sign of D toxicity is headache so I hoped it would go away from taking that out but it hasn't. Now I have a nagging feeling maybe it's the RP.
I'm hoping this is die off but how do you know if it's a sign that your body has had enough of the herb or it's actually benefitting you despite the icky feeling? 3 years in treatment and this still baffles me. I of course want to trust what she is giving me but I start to freak out that the herbs are disagreeing with me and making things worse. I wish I knew and understood more the intent of each herb and exactly what it's role is in this process. So hard to fit those questions in with our quick appointments.
Does anyone know the role of RP and if these symptoms are common and worth fighting through? I have a 2-week vacation to Asia planned in 10 days. I hope this dissipates. I need more energy.
Also-does anyone suffer from itchy feet? My right heel itches often and I'm told it's related to liver stagnation. Interesting. Haven't asked M about that one yet.
itchy feet
Hi Sam,
Yes - crazy itchy feet.
At the moment right now I am so anxiety driven and tired that everything is an effort - It's discouraging when I was doing so well. The herbs she gave me for this, that had worked wonderfully for six months - have pretty much quit working. I have an appt with her tomorrow and hope that she can do something.
Sorry for being such a downer - I haven't really been on here much - but could use a little support at the moment. Unfortunately I'm leaving work in a bit, won't be back until Monday, and my computer at home won't let me "talk" on this site - not sure what the problem is.
Take Care all
Wow
I have to say that the complete and total silence to this was a bit hurtful. Someone once asked why people who had done this for awhile kind of disapeared. I am sure that alot of it is that they have gotten their lives back. I am also pretty certain that they don't really feel like they belong here.
Denise- So sorry you feel
Denise- So sorry you feel hurt. This forum hasn't seen a lot of action lately. It could also be that since your comment was buried in a thread about RP, it wasn't seen the way it would have been if you had posted a separate topic. I've posted lots of scared/worried/sad posts that haven't had direct responses. I generally try to think of all the times people have stepped up to help and you have certainly been one of them. This disease is so tough for everyone and sometimes one of us may feel stronger to help others and sometimes we need the help.
I've been coping with my first real issue with anxiety these past few days and can only imagine what it must be like for you to be experiencing it again after feeling better for so long. I don't have much experience with Dr B's treatment for this but I hope so much and I am confidant that you will get back to the feeling of wellness that you had soon.
Hang in there. I'm sorry.
Thank you Deir
It seems I'm in the midst of my very own pity party - I'm so sorry that you've been hit with the anxiety thing. I do know that there are things that help - I just thought that I was home free. So, please be really clear with Dr. B - For me the results for a very long time were astounding -then something shifted - she's helping me get it under control again.
Again, thank you for your kindness to my temper tantrum - You're right - I should have posted a great big HELP! I feel a bit like an idiot - but it's so nice to know that someone heard me.
Let me know if I can help you in any way.
Sorry!
Hello Denise,
I'm sorry too! This forum has always provided me a lot of positivity and support when I've needed it, and I try to pay it back in kind when I can. I didn't see your post, being at the end of the thread, but I hope you're feeling better and have gotten through your rough spot.
All the best,
Lauren
Thank you Lauren
I am feeling better - just being a two year old who wanted some attention - I appreciate your good thoughts.
(((((((((Hug))))))))))) She'l
(((((((((Hug))))))))))) She'l help you get it under control again.
My small a anxiety seems to be fromstartig JUice plus and it is very minor so I am feeling ok about it.
Hug back
Thank you
Denise, In the back of my
Denise, In the back of my mind I kept thinking that I needed to respond to your post and I just didn't-- I apologize. I always have enjoyed your posts and you have always supported me when I have posted questions.
I remember from one of your previous posts that you mentioned having a really great six months and then a bit of a backslide for awhile. Has it been a little back and forth since then? Is it mostly anxiety or bladder too? Although I am not as far along as you are in treatment, (today completes 8 months for me already?! insane) I would imagine that it becomes a little disconcerning when you backslide. I know one comforting thought for me is always---well, I am only 8 months in or....etc. The good news is that although you are hitting a rough patch, it sounds as though you have come a really long way! It is also crazy to me how such a little thing can throw me off course.... like a hidden ingredients or a change in product. Maybe there is something overlooked? Who really knows... what I basically want you to feel is the we ARE here for you and COMPLETELY support you.
Just shout if you need us and I promise I will listen better!
Katie
Denise, I also should have
Denise, I also should have responded. I read it actually felt the exact same way because I am also struggling with the herbs and am having a hard time pushing through symptoms that I don't think would be there if I was not on the herbs. I just remind myself that many have made it to the end by pushing through and doing their best. I know we can all get there. No one should give up and no one should ever feel like they are alone. We have this forum for a reason...to never feel alone and like there is no one out there that understands. This forum is the best thing that ever happended to me. I read almost every post and if I can relate or I can help I try to reply because it is always a good feeling when you log on and see that others have replied to your post and can relate and give you reasurance and hope. I am going to try so much harder from here on out to check the forum everyday and if I have any imput that may be helpful I will post. I sometimes feel like I don't want to give advice and make someone worse or something but supporting feelings is never ever a bad thing. Caring for one another is all we can do :)
Thank you Portia
It does mean a lot to get a reply - and I so appreciate yours. I'm sorry I acted like a big baby. Please let me know if I can help you in any way. I know that this can be such struggle - Please take good care of yourself.
Thank you Katie
I am better - feeling a bit sheepish. At first it was huge crazy terror - then the bladder kicked in - didn't like the mental stress - then more stress - more bladder - you think I'd know better. I've got to tell you - Dr. B has the patience of a saint.
I hope that you are out of your own backslide?
Hey Denise, Do not feel
Hey Denise, Do not feel sheepish! Sometimes I will act like a crazy person around my house and actually be thinking to myself -- I must be imbalanced. I sound like an emotional loon;) (Not that you sounded that way.... but I most certainly do-- at times;)
I am out of my backslide. Thanks! It took me about 8 days to work through the discomfort and recalibrate my protocol, but you are right... Dr.B has the patience of a Saint! The gift that came out of my backslide is that Dr.B decided it was time to get me off of my heart medication so we are three weeks in to complete removal and so far, so good! So- I am absolutely medication free now AND my bladder is doing well. It does seem as though I do wax and wane quite a bit, but I am able to add more foods (loving list 3- have not tried everything yet;) and the lows don't seem to be so "low". Basically, I am on an upswing and trying to enjoy it without looking down;)
Thinking of you,
Katie
Hey Katie
You will never insult me by making fun of my looniness when you get it. Actually, at times, it's a badge that I wear with honor! How incredible to be off of the heart meds. Isn't it astounding what this treatment can accomplish.
Take Care,
Side effects vs. die off or just normal symtoms?
Sorry for posting here and perhaps confuse everyone!
But I felt that I wanted to join this topic as I have a question related to it.
When I have been reading a lot of forum topics back and forward... I read about side effects of supplements, taking herbs and vitamins at the right time in treatment when your body can tolerate them.
Then a lot of people are writing about die off symtoms. Then we are also writing about symtoms related to the imbalace.
So, I'm one of those (not yet in treatment with Dr.B) that are experiecing A LOT of symtoms.
And I have already tried a few things... like candida diet (made my butt burst in to a yest infection and my stomach accually got better.) Sure thing, that there was somethings needed to get out my system. And I fully understand that it was a die off.
BUT! I have started on probiotics and accually also started taking D vitamins, and a powder drink that makes the body more alcaline. (guess it is calcium, magnesium, calium... )
Well, my qestion is...:
HOW do one know if it the diesese it self getting worse, or accually positive die off symtoms? Or your body not tolerating the herbs or supplements.
So, I have no idea if the suppliments I'm taking are good for me or bad, since I have symtoms ALL THE TIME!
The things going through my head is... oh, are these good for me, perhaps it is die off symtoms now... or does the feeling in my body means that they accually worsen my IC?!
Hope you understand what I mean!!!! (Blame me for I'm Swedish... and trying to explain someting in english makes it harder...haha)
I also guess that once under Matias control and protocol, it will make more sence to me, but perhaps there is a kind person out there that can explain.
symptoms,die off, treatment-confusing!
Hi Kristina,
You're talking to someone who self-treated themselves. So, no judgement - I get it. In truth, I probably wouldn't have believed in this site enough if I hadn't found out first hand that there was something to all of this - kind of like your butt rash : ) I scoured past posts - getting a glimmer here and there what Dr. B used and using it on myself. I think that I was incredibly lucky that it didn't send me into a lot of pain. I have since found out that there is such a huge balance between what your body is ready for. For instance, I was happily on Vit D - bladder and yeast well under control - then Wham - insane panic and terror. So, vitamin D was dropped, other things added, and I was sane again. Fast forward six months - doing really great - on all three pro-biotics, bladder well - then debilitating mental problems again. I was told the energy that the last pro-biotic that I started taking was too much for me - I was taken off of it - vitamin D doubled this time - and now I am getting so much better mentally. If you think that you have found the answer to a lot of your questions, and you can find your way here, in my heart I don't think that you'll ever regret it. Because these questions that you're asking, die off, getting better, getting worse, what should I do, what should I take? They aren't easy answers - Dr. B has dedicated years to helping figure it out.
Oh, please don't think that all of this caused my crazy head trip - I've suffered with it on and off for years. I've been able to give up most conventional mental health meds that never really helped.
Please feel welcome here on this site and ask away
symptoms,die off, treatment-confusing!
Hi Kristina,
You're talking to someone who self-treated themselves. So, no judgement - I get it. In truth, I probably wouldn't have believed in this site enough if I hadn't found out first hand that there was something to all of this - kind of like your butt rash : ) I scoured past posts - getting a glimmer here and there what Dr. B used and using it on myself. I think that I was incredibly lucky that it didn't send me into a lot of pain. I have since found out that there is such a huge balance between what your body is ready for. For instance, I was happily on Vit D - bladder and yeast well under control - then Wham - insane panic and terror. So, vitamin D was dropped, other things added, and I was sane again. Fast forward six months - doing really great - on all three pro-biotics, bladder well - then debilitating mental problems again. I was told the energy that the last pro-biotic that I started taking was too much for me - I was taken off of it - vitamin D doubled this time - and now I am getting so much better mentally. If you think that you have found the answer to a lot of your questions, and you can find your way here, in my heart I don't think that you'll ever regret it. Because these questions that you're asking, die off, getting better, getting worse, what should I do, what should I take? They aren't easy answers - Dr. B has dedicated years to helping figure it out.
Oh, please don't think that all of this caused my crazy head trip - I've suffered with it on and off for years. I've been able to give up most conventional mental health meds that never really helped.
Please feel welcome here on this site and ask away
Are you self-treating?!
Hi again!
are you self-treating?! So I take it you have not been to see Matia?!
Just doing this on your own?
No - I am seeing Matia
Sorry - I was probably as clear as mud. I self-treated for about three months - just long enough to see that my body strongly responded to certain things - making a believer out of me. I then got myself on a plane to seek treatment with Matia - I have never regretted it.