Forums:
I wrote in a couple of days ago and asked people to share their experiences with menopause. This is a related question. I am tapering off of HRT and trying to figure out if the hormonal change is exacerbating my symptoms or if I am getting worse. I do not feel as if I am getting better although Dr. b has sone a good job of weaning me off of multiple medications and that seems to be going ok. How do people deal with bladder flares without endlessly cross-examining themselves as to whether they are doing the diet correctly. How do you know if you are getting wrose or getting better?
I should add that I have been in tratment for 2 months and felt better the first 2 weeks and then started to have hot flashes and sleep disturbance and other symptoms even though I was on a low dose of HRT. It apparently isn't enough to suppress those symptoms anymore and so I am going to get off entirely and see what I am dealing with but I am scared.
Bonnie- this is a million
Bonnie- this is a million dollar question. I have struggled with this. What it finally comes down to for me is this; I have always believed chronic illness, hormonal imbalance and allergies begin in an unhealthy gut. If I wasn't with Dr B, I would be pursuing another gut healing regimin and using herbs for balancing hormones and reducing inflammation. Why should I attempt this all by myself when I have a resource like Dr B?
For me this treatment has been like "opening a can of worms" However, I know in my heart that it was a necessary opening if I want to live a long and healthy life!
Keep being very clear to Dr Babout what is gong on and what your concerns are.
hang in there!
Btw- 2 months was a seriously nutsy time for me.
Dier How are you doing? I
Dier
How are you doing?
I totally agree with you, this treatment has opened a whole can of worms for me too and I now know that my digestive system was and still is a complete mess, it has taken decades for it to get in this mess and so I know that patience is necessary to get it to a healthy place. The more I read the more convinced I am that the gut is the source of most disease.
I had iridoolgy a few months ago and it completely bore this out along with a whole host of other things and although in one way it was distressing to know just how out of balance I am even after a year of treatment, in another it was reassurancing that we're on the right track. Dr B found it interesting and it completely was in harmony with her thoughts and treatment.
Hanging in there is the right thing.....I had five days in a row with virtually no bladder pain and even some hours with no pain attall a couple of weeks ago, still had the urgency but it felt like a miracle to me. Pain back with avengence the last couple of weeks but to have that respite was such a blessing.
Re food Bonnie, I still struggle with this but have been able to identify one or two things that make symptoms worse so have taken them out but I am only now able to do this and most of the time it is still so hard to figure out.
Good luck with easing off the HRT.
Lynette x
LYnette- Hi honey! SO GLAD TO
LYnette- Hi honey! SO GLAD TO HEAR FROM YOU!
I would love to hear more abou tthe iridology. I am sorry you haven't gotten hugely better but any progress is progress. YOU WILL GET THERE!!! You are very strong and brave.
I have been doing well. I am afraid to say that even though I don't believe in luck! Anyway- I went through a really rocky upsetting time in March and now I seemed to have stabilized quite a bit. My dose is back to one of the original doses I started with soon after treatment began. I feel a lot of hope now. I don't have time to really update all the details right now but will later.
xoxoxoxo
Deir, this is just
wonderful to hear that you are stabilizing! I have been following your progress since I got on the forum, and I am so happy to hear that you are doing better! That is just the best news today. :) I send you prayers and love that you will continue to heal more and more.
I know it is scary. I was
I know it is scary. I was on Elmiron, and other medications to control my pain. I was so scared to go without them. But I did it, because I knew that the medication was doing more damage to my body. Before I started treatment, I read a lot of these forums. I prepared myself. I told my Husband that I was going to get really sick before I got better. Everyone posts about their die-off on here. So I knew it would happen. Even in Dr. B’s dissertation it says,
“Healing crisis is common when a successful process of the removal of the pathogenic factor is underway. The patient may experience fever, sweat, flushing, and various other symptoms during this process. In the treatment of IC, this is a common occurrence, often misleading the patient to the conclusion that her condition is deteriorating. It is important to follow this process through in order to expel pathogenic factors from the body completely.”
So I do think we will get worse before we get better. But it’s only temporary, and Dr. B will get it under control. You can email her anytime something is not working, and she will do her best to make you comfortable. She has always done it for me.
Gaining Ground
Thank you all for the responses. I went to see Dr. B today and came up with a plan to get off HRT and I feel better. I am ready to do it even if it may be very difficult. WHen I get discouraged, I am going to remind myself that one benefit of being in LA is that I can go talk to her face to face. That really helps.
Thanks again,
Bonnie
Hi Pterzwife, Just so you
Hi Pterzwife,
Just so you know I haven't had my period yet for a 1.4 months after stopping the bc pill, I'm 32. When I started treatment my hormones where such a mess that I couldn't even walk from the pain in the vagina....oh yes that was on fire because I had literally 0 estrogens...I checked several times.. You can track my posts. Thanks to Dr B I've been able to recover from all the horrid feelings and the vagina is healthy again with moisture. A miracle to me. Another drs suggested to take the bc pill again, clever move uh? :/ so imagine, I had to go through all the pain that feels bad today but that will make you heal tomorrow. Just think about that, this type of sacrifice is necessary unfortunately but I promise you'll be fine. I haven't had my period yet but that's because I can't eat properly and I am reacting to all herbs for that matter, although I have to say probiotics are doing an excellent work anyway. Hang in there, it will get better.
Lynette: congratulations in your first 5 days without pain!!!!! Wohooooo..., you see????? Please keep being positive, I know is hard but even though you feel you are not healing YOU ARE. Same applied to me :p is very easy to be a prophet in another land. Have a look to this:
http://www.drlwilson.com/Articles/the%20healing%20process.htm
How far you are in treatment already Lynette? xx
Healing wishes to all.