Dear all,

I am writing to ask for some advice from fellow travellers. I am seven months into treatment and have noticed some small changes. Things are slowly improving - I had and still have what seemed like a million symptoms, which were impossible to distinguish from one another but I can feel my whole body slowly moving back to normality (although I am a VERY long way from that). However, my most troublesome symptom, which has been there from the start, is the severe head pain/pressure. It's not linked to die-off or anything like that. It is continuous and constant - it has been there for a year and never lets up. It keeps me mostly bedbound and unable to do much at all. I am unable to seek professional help, ie, therapy, because a) I would not be able to take anything in or act on it as I can't think, make decisions, reason, etc.. In other words, my thinking processes have gone!, and b) as a result of this pressure and pain, I can't talk very well, ie, it's hard to talk or read anything , etc. (so therapy is useless - typing on the computer is much easier!). Dr B says she's seen it before and it will go (:)) but in the meantime, I need some advice on how to handle this 'pain' on a constant basis. How do you get through the days if you can't get any professional advice, etc.? I am hoping to start going once I feel well enough but the couple of sessions I tried proved useless for the reasons outlined above. I really need some suggestions on how to keep going until I can get to the point where I can seek therapy. What works for you? It's such a strange thing to be going through - all my thought processes have been wiped out as it were - I can do stuff but my head is constantly full of pressure, inflammation and other odd sensations. It really does feel as if I am in a very, very bad physical fog - weird (and try explaining to people that you have a bladder disease!!). Any advice on moving froward on a daily basis very much appreciated.