My pelvic pain when eating has gone away again for now, but when it did, I began experiencing a lot of IBS symptoms like stinging pains that felt like they were happening throughout my intestines, and right now, I'm dealing with left side groin pain that feels like a flare on that side when I eat sometimes. It puts pressure on my bladder, and makes me feel like I have to urinate. I wondered if anyone had experienced similar or IBS symptoms after their pelvic pain ceased? Sometimes, I wonder if it is an ovary or endo, and if I should go and have a lap done about it. But I don't want to if I don't have to. I never know what the right thing is to do. I don't think I have enough money to spend on treatment with Dr. B if insurance won't cover it, and I know it's pointless to go to the doctors here for anything except drugs. Sure wish things were easier.

I am making steady progress.  I don't have debilitating pain everyday like I used to.  I can sit for much longer periods of time (I used to avoid sitting altogether because of vulvodynia pain).  Sex is much more comfortable.  I am able to be productive all day and get work done, rather than being in bed all day just trying to get through.
 
I'm still really sensitive to food, even foods on List 1, but I know this will get better in time.  I'm so thankful to Dr. B for her treatment.  My body is healing!
 
Lisa

VIn- I am so glad to hear that you are seeing some progress with the terrible head stuff! Every little improvement is a step in the right direction. Hang in there! (((((hug))))

Good news Lisa Ann!

to hear you are doing better Vin and Lisa Ann, even small improvements are so encouraging. I have been having muscle pain since April, and it is finally starting to get better. I realized I was making a mistake by making my own yogurt, which is too strong. When I took that out of my diet, I started to notice an improvement. I tried to add in regular yogurt, but that didn't work. So I am off yogurt right now, and my muscle pain is getting better and better. This is such a huge relief for me as it affects my sleep so much.
 
My left eye gives me a lot of problems. It has even before I went to see Dr. B. It's always red and dry. I also have floaters in both eyes. Right now both of my eyes are dry and red. I am hoping and praying this will improve one day just like my muscle pain. :)

I am starting to have them! Not all the time....maybe once every few weeks. But they are a blessing and keep me going. 

I have been in treatment just about two years and was a relatively mild case, but made things much, much harder on myself by refusing to adhere to the diet for the first six months. I still have laspses, but when I stick to the diet, I feel good. Like really good. Good enough to envision days when this is totally behind me. 
The things that have been hardest for me to kick are irritation following bowel movements. I used to feel miserable for hours, but this has calmed down to the point its only an issue sometimes. My pain is gone, my weight has plateued, sex is enjoyable (most of the time). You'll get there. Keep at it. 
As hard as all this is, I truly believe remaining positive throughout is very, very important to the healing process. This is hard, and there are setbacks, but we don't have any other options, so chin up and remember that we're lucky to live in a time and place where viable treatment is available to us. As one user said, we're freeing ourselves from pain, not imprisoned by it.