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Hello everyone,
Lately I've been a supporter of others on this forum, but this time I need some support of my own. After being completely pain-free for over six months, my pain suddenly came back with a vengeance right before Christmas. Dr. Brizman thinks this is a temporary setback, but so far the protocol changes we've made haven't helped.
I'm trying to keep calm, but I'm so worried that I haven't made any progress after all and that this pain will never really go away. Can any of the folks who've been around longer, tell me if the process of healing is this back and forth? I thougth that once the pain went away it would go away for good. Is that not the case?
Thanks everyone. I'm trying to pull myself out of this funk of fear and dejection, but it's hard. Any encouraging words you can offer will help.
Thanks.
Lauren
I had a week painfree and the
I had a week painfree and the ame thing happened to me right before Christmas too. Try not too worry too much. It could be bacterial die off creating inflammation. That's what I think mine was but it's impossible to know. You will get better again. I know the pain and discouragement is hard to deal with.
Hi Lauren,
Hi Lauren,
I know that set-backs are horrible - they mess so much with your mind. Have you been checked for an acual UTI? I am still battling a horrific one - chose not to take the antibiotics. At least Dr. M and I both knew what was going on after I got confirmation. She never asked me to go and do it - I just needed to find out if it was a possibility.
Hi Lauren
Hi Lauren
I am a relative newbie (almost 3 months in) but it seems I have read/spoken with many people that are now healed had some significant setbacks. Some for weeks, some for a bit longer. If it wasn't their bladder, it was joint or muscle pain, tinitius, teeth, skin, or something else. Not a linear process. It seems the protocol is aimed at balancing multiple things at the same time, and they can be in conflict with eachother. So if one thing comes into balance it can make the body go too far in a different direction and then needs to be brought back. This is one of the things I extracted from Dr. B's dissertation.
But I can imagine that after feeling so good for 6 months this is very scary for you. I hope you can trust Dr. B as I am sure she has seen this before. Did you go over in depth all of the things your are eating regularly and adding to your skin, etc...? I am sure you did but thought I would ask anyway.
Denise has a good point that it would be worth investigating whether you have an actual UTI since it came on so suddenly.
((((Hugs)))) Please keep us posted on how you are doing. Be very kind to yourself and ask for as much support as you need.
If we don't excel at health, the only other option is disease.
HI Lauren,
HI Lauren,
I haven't been on here in awhile, but wanted to say that I totally understand how freaky it is to feel bad after a really good spell. Last January 9th, so not quite a year into treatment, I had an INSANE flare, that came out of seemingly nowhere. I remember how hard that was and how scared I felt dealing with it. During big flares, I find myself sifting through old forum posts, and it does seem somewhat common for people to hit big bumps in the road after doing very well. You're not alone in this. Ugh. I hope you're starting to do a bit better. It can be especially demoralizing when you've been doing so well to get hit with what seems like a big setback.
If you've had 6 pain free months, you have DEFINITELY made lots of progress. Your body will rebalance more easily now than when you first saw Matia.
I have had IC for 16 years, but for many of those years I didn't have symptoms. It has been my experience that IC is something that we will come to manage and heal, but I don't know about "cure" per se. I don't mean this to sound negative, I mean it in that we are all changed by this experience and I think it will be a life-long challenge to continue to maintain awareness of our needs enough to retain the balance we gain through treatment. And I really believe that this is the best treatment because Matia is teaching us how to care for ourselves for the rest of our lives. I hope you have some relief soon, sending you positive vibes!
Claire
Thanks everyone, I really
Thanks everyone, I really appreciate your words of support. I'm feeling a little better today. Several other people have told me that the process isn't linnear, which reassures me a lot. This experience is teaching me to have patience, be kind to myself and trust in the process.
I'm so grateful for this forum and all of you on it as my support system. All the best to you all.
Lauren
Agree with much that has been
Agree with much that has been said already. I have had major improvements since November but I have had some talky bladder days. Not bad just noticeable and they were usually gone within 3 days, but I am seeing that is not all linear
Lauren,
Lauren,
How are you feeling? Better I hope.
Sue