Need encouragement to get through this

Facebook iconTwitter iconGoogle icon

Forums: 

Hey Girls,

 

Just needing some love and care from you all.  I was doing so well and then a flare hit that has not let up for almost a week.  The pain is way up there.  Dr. B is doing everything she can to be slow and careful with changes in doses for me because my body is super sensitive to EVERYTHING.  It is just so discouraging when you think you might be getting out of the woods and then you end up so deep in them that it's hard to imagine getting out.  I know I will, but I'm just bummed that I'm here in the middle of them right now.

DLFox123's picture
DLFox123

Hi Lisa Ann,
I'm sorry - being in pain makes it so hard to think and feel anything but desperation.  Are you able to get some sleep? Has this happened to you before? It will get better.
Hanging in there with you - Hugs

Rachel Ann's picture
Rachel Ann

Thanks everyone for your replies!  I am usually very upbeat and positive, but I'm in a bit of a dark place at the moment.  It will pass, I know, but it is good to have encouragement to get me through these dark days.
 
This process is just taking longer than I thought it would, and I'm always hoping there are better days right around the corner.  I am a tough case because I've had IC for so long and was on drugs for such a long time.  Matia has assured me that she has gotten plenty of people out of complicated situations so I know she can do it.  It's just that my body is so sensitive that everytime I try a new dose, it almost always feels worse before it feels better and that's really hard.  I can't even eat everything on List 1 yet.  I've been eating the same eight things for almost a year because everytime I try something new, it causes me a lot more pain.  Matia knows all this and is doing everything she can to get me better.
 
Thanks for letting me vent a little bit!

deir's picture
deir

LIsa Ann- You've been doing this awhile and I am sure you know almost all the positive thinking tricks. I know for me, sometimes I actually need to accept  the dark spots. I feel like I pressure myself to be positive all the time and yes- we need to keep on keeping on ,so to speak, other wise some of us would cry all day!! But I find that sometimes, I just need to feel the sadness and fear: leaning into it instead of resisting. My mantra for a while has been Acceptance and Gratitude and when nothing helps, I just accept that I feel upset right now and I do not need ot be a perfect emblem of courage at every turn.
 
(((((HUG))))

Mimij67's picture
Mimij67

Very well said, Deir. I put that in the catagory of being kind to myself, and as Denise said, talking to the little girl inside me and acknowledging my own feelings. When they are acknowledged and accepted, they seem to have a lot less power. This is what I do for my girls. I wish my parents had done it for me, but they did not. So now I need to learn how to do it for myself!!

If we don't excel at health, the only other option is disease.

pterzwife's picture
pterzwife

It is amazing how we are all here for eachother when one of us thinks that we can't bear it anymore. Lisa Ann, we all draw such strength from your calm and dignified efforts and we know this will pass. Someone told me that when we are in pain our brains lose the ability to conceptualize time. I also find that I feel differently about the pain if I am neutral about it than if I feel that it is a sign of something bad. I know that you know that we are here for you when you post about hard times and we glory in your successes. Onward!
 
Love, Bon

pterzwife's picture
pterzwife

It is amazing how we are all here for eachother when one of us thinks that we can't bear it anymore. Lisa Ann, we all draw such strength from your calm and dignified efforts and we know this will pass. Someone told me that when we are in pain our brains lose the ability to conceptualize time. I also find that I feel differently about the pain if I am neutral about it than if I feel that it is a sign of something bad. I know that you know that we are here for you when you post about hard times and we glory in your successes. Onward!
 
Love, Bon

DLFox123's picture
DLFox123

Hi Mimi,
Your girls are so lucky to get what we didn't get as kids.  It's so nice to hear that you get what I was saying - isn't it incredible that it actually works?

Mimij67's picture
Mimij67

Thanks Denise. I see it work in my girls all of the time. If I argue with them, or try to discout their feelngs (honestly, I don't do this anymore, but I see my husband slipping into this pattern ;) they stop holding on to their feelings and then they just move on! It is beautiful to watch!! 
Hi Bonnie! :) Wise words from you as per usual. 
Lisa Ann, hope you are hanging in.
Dier, if you read this I had some questions about neck and lymph and flow.
Can you email me possibly?
mimikjohnson@gmail.com

If we don't excel at health, the only other option is disease.

Rachel Ann's picture
Rachel Ann

Thank you all for your comments.  It really means so much to me!
 
I agree with you Deirdre, that I just need to be okay with being sad sometimes.  My husband has been so great the last few days being my shoulder to cry on and reminding me that this too shall pass.
 
I started on a new herbal formula today, and while it isn't yet making me feel a whole lot better, at least it isn't making me feel worse ;)  I'm sure it's just a matter of combining it with the right things.  It is causing some die-off which is a good sign.
 
I got an encouraging, reassuring email from Matia this morning so that was good also.

Rachel Ann's picture
Rachel Ann

Okay, so I had to let you all know...I am feeling some real relief with this new formula I'm on!  Yay!!!

deir's picture
deir

Yippee!!!!

Mimij67's picture
Mimij67

Awesome!!

If we don't excel at health, the only other option is disease.