Hi, my name is Núria, I'm 26 years old, I'm from Barcelona, Spain. I know that dr.Brizman, only tarts you if you go to L.A. I cannot go in this moment of my life but I would like to do some questions to her about my case because I don't know anybody here in Spain or in the Anglo-Saxon world, who are like me.
I started with ic symptoms 2 years ago. My main symptom is urgency. I went to an urologist in Barcelona (dr.Vargas) and he said I probably have a low case of ic. He put me instillations for about a year, one kind that he does himself in his personal research, there are not in the market, he calls his instillations "Formula sedante". He puts me 8 and then 3 and then 3 more. I improved a lot. No flares in a year, almost painless sex, no pain, low urgency. I was no cured but I can live with that little symptoms.
Here is the second part of my story.
One moth after my last instillation I was almost fine. But in a regular exam the doctors find out that i had CANCER, A CLASSIC HODKING LYMPHOMA IN MY abdomen, in the empty space between my lung and my hearth (IIA phase). They put me in treatment in ICO (Bellvitge) hospital, 8 seasons of ABDV (quimiotherapy) and then Radiotherapy. Before I starter the treatment I had pneumonia and was interned in hematology plant of ICO hospital for a week. They give me Augmentine 1000 mg for a month. My symptoms of ic disappeared magically after that. Disappeared for 4 months.
NOW, I'm in the middle of the therapy I'm doing so well with my cancer. I believed inside me that I'm cured of that I don't know why. But TRAGICALLY NOW MY IC SEEMS TO HAVE RETOURNED HEAVIER THAN BEFORE.
MY QUESTION FOR DR.BRIZMAN IS, WAS OR IT'S THE BLOOD CANCER THE MAIN CAUSE OF MY IC?
ARE IN AMERICA MORE CASES LIKE MINE (IC+CANCER)?
HAS THE IC SOMETHING TO DO WITH IMUNOLOGIC DISASE LIKE?
WHY I HAD REMISSION AND NOW I'M IN THE SAME PLACE AS BEFORE?
I KNOW I WILL BE CURED OF MY CANCER, WHEN CAN I STARTED TO FIND A CURE FOR IC, I HAVE TO WAIT UNNTIL THE CANCER PASSES AND THEN FLY TO L.A (BECAUSE NOW I CANT DUE TO QUIMIOTHERAPY) AND START THE TREATMENT OR IS THERE ANY OTHER OPTIONS?
I'm sorry for my many questions but for what I have read I think dr.Brizman is one of the greater experts in IC, and I think that If I can be cured of cancer i can be cured from IC too, and she is the only one that with her blogs give me some hope in that issue, in the distance. I only want to be the normal happy girl from Barcelona that I used to be before cancer and ic. Please don't ignore me and don't say that's nothing for me to do.
And sorry for my level of English, it's not the best I know, but I'm learning so much with this website.
Nuria:
Lo site to que esta sufriendo tanto y bienvenidos a este forum.
. These questions are way beyond my ability to answer but I can say that IC does wax and wane and it does hide out in the body and sometimes when other things flare up it settles down sometimes.
In my view, Dr. B is the expert in treating IC. I know some of her patients have had it but I don't know specifics.
Best of luck to you.
Bonnie
Nuria,
Please do call Dr. Brizman's office next week so you can have at least some of your questions answered and determine if you will be a good candidate for treatment with Dr. Brizman. As patients, we are not qualified to address your questions. The protocol re-balances your body in many ways. So if you have the all-clear from cancer treatment, then perhaps you can treat with Dr. Brizman. I know of at least one other patient that posts here with some regularity that has had cancer and IC. Perhaps she will reply to your post.
Warmly,
If we don't excel at health, the only other option is disease.
Gracias!! Bonie and Mimi.
I send this in e-mail too, maybe they answear to me I hope!!! I feel so young and so alone in the world with this two illness and it's why I ask. I will try to call buy I think it's better if they write to me because I don't speak so well, and due to quimio I only had one neuron working jejeje
Wish me good luck,I'm very positive I know I can with cancer and with ic.
Muchos besos a las dos y gracias por contestarme tan rápido, esas cosas le hacen creer a una que el mundo no está tan loco como parece y que queda algo de esperanza.
Hi Nuria,
I'm sorry to hear that you are going through both chemo and IC. I couldnt imagine that on top of IC, since IC is so draining at times. But like the other ladies have mentioned, perhaps you may want to call the office on Tuesday and see what Dr B reccomends. I speak fluent Spanish (my parents are from Ecuador) but I never learned how to write it well. Its very choppy although I do try : )
If you would like to skype, that would be great and you can ask questions in spanish if you would like. I have been a patient with Dr B for 1 1/2 years and yes it is very hard at first but it does get better. You are so positive which helps tremendously. Feel free to look my name up under Tommygurl and you can read about my experience with Dr. B's protocol.. I am very far from being better but I function on a daily basis, some days well and some days so so. It all depends if I stick to the diet and how I handle stress.
Best of luck to you.
Adriane
Hi Adriane I would love it! but unfutunely this Tuesday I cannot be there because I will pass all day in the hospital. I'm in the middle of chemotherapy or quimio ( en castellano jejej) and this Tuesday is the crucial day of my treatment because they do a test to me I don't know the name in english in spanish we call it PET. I will know this day if the treatment is working for me. I think that I working because I'm so mu better and my lymphoma that unse to be 10x7 cm dosen't appear in the radiografia.
Mabye we can do it next week, 2 o 3 days afther quimio, when I will be alive again. ( In Frday I have my 5 cicle of quimio it will be my 9th dosis) and the following 3 days i'm totally off jejeje.
Asi que la cosa está complicada, si pudiera escribirme creo que seria lo mejor, de todos modos gracias Adriane por tu ayuda! que bien que hables castellano, yo el inglés lo entiendo casi todo por haber estado 1 mes de intercanvio en Irlanda pero escribir y hablar ya es otra cosa, debo parecer un poco tontita aunque me esfuerzo todo lo que puedo.
Besos
Hey love!
Welcome to the site. I'm so sorry you are dealing with these two illnesses together, and at such a young age. I'm 25 so I can imagine how awful you feel at being so ill in your youth. I just figure, this way we can get all the sickness out of us when we're young and we'll know how to lead healthier lives when we're healed.
IC does tend to go into remission sometimes when people take antibiotics for a while. This happened to me as well when I had H-Pylori and took a strong dose of antibiotics. I think it's because a lot of IC is a bacterial imbalance. This could explain why Augmentin helped for a while. On the other hand, a lot of times antibiotics make hte IC symptoms worse. Ugh, so complicated.
I just wanted to write and wish you luck :)
Hannah, thank you so much!!! This illness is strange really, but you have to think that if people can pass and survive cancers, and belive ,me I meet people in the hospital that survive 4 or more cancers when the doctors gives theme 3% percent of possibilities of surviving, I relly know that we can get cured.
I think I will have to write a book with all my experiences jejejeje
Hi Mimi , I will know the results of the tests on Friday, tomorrow another day in the hospital and more tests, when this will be finish I will never go to an hospital again, oh my good, it seems that I live there!!
Adriane, I don't know what will be the day of the chemo this week because we are waiting for the tests before doing something more: stay with the treatment or go for another one. I will tell you something on friday, maybe this weekend I can speak with you but I don't know until that day. My life is soo complicated ejjejejej kissses and thank you!!!
Hi girls!
I have very good news!!! In the middle of my treatment of chemotherapy, the tests say that my hodking lymphoma is 60% reduced. This is very good news because my doctor says that it usually reduces only 20% and they consider it good news so imagine my improvment. She was so happy, smyling, and she usually shows no emotion at all.
I had tumors in mediastine ( 12 cm), nek, spleen, lung and stomach.
In the nek, stomach and spleen they have disapeard. In the lungs are millimetric, and in the medisatisne now is only 2,6 cm.
Today they have put me my 5 cicle of chemo I'm totally off but happy.
My ic is so so, yesterday I had no symptoms, today I have a little urgency.
I will finish my chemo tretment in first week of agoust in september I will have 1 month of radiotherapy, the I will have to wait two moths to know If I'm completly clean. What a journey!.
Hola Nur,
I just saw your post today. That is such great news! I am very happy to hear. Yes, tomorrow is fine. The weekends are best as I work full time. please send me an email and we can figure out a time to skype :) akieckhafer@live.com
Hi, my name is Núria, I'm 26
Hi, my name is Núria, I'm 26 years old, I'm from Barcelona, Spain. I know that dr.Brizman, only tarts you if you go to L.A. I cannot go in this moment of my life but I would like to do some questions to her about my case because I don't know anybody here in Spain or in the Anglo-Saxon world, who are like me.
I started with ic symptoms 2 years ago. My main symptom is urgency. I went to an urologist in Barcelona (dr.Vargas) and he said I probably have a low case of ic. He put me instillations for about a year, one kind that he does himself in his personal research, there are not in the market, he calls his instillations "Formula sedante". He puts me 8 and then 3 and then 3 more. I improved a lot. No flares in a year, almost painless sex, no pain, low urgency. I was no cured but I can live with that little symptoms.
Here is the second part of my story.
One moth after my last instillation I was almost fine. But in a regular exam the doctors find out that i had CANCER, A CLASSIC HODKING LYMPHOMA IN MY abdomen, in the empty space between my lung and my hearth (IIA phase). They put me in treatment in ICO (Bellvitge) hospital, 8 seasons of ABDV (quimiotherapy) and then Radiotherapy. Before I starter the treatment I had pneumonia and was interned in hematology plant of ICO hospital for a week. They give me Augmentine 1000 mg for a month. My symptoms of ic disappeared magically after that. Disappeared for 4 months.
NOW, I'm in the middle of the therapy I'm doing so well with my cancer. I believed inside me that I'm cured of that I don't know why. But TRAGICALLY NOW MY IC SEEMS TO HAVE RETOURNED HEAVIER THAN BEFORE.
MY QUESTION FOR DR.BRIZMAN IS, WAS OR IT'S THE BLOOD CANCER THE MAIN CAUSE OF MY IC?
ARE IN AMERICA MORE CASES LIKE MINE (IC+CANCER)?
HAS THE IC SOMETHING TO DO WITH IMUNOLOGIC DISASE LIKE?
WHY I HAD REMISSION AND NOW I'M IN THE SAME PLACE AS BEFORE?
I KNOW I WILL BE CURED OF MY CANCER, WHEN CAN I STARTED TO FIND A CURE FOR IC, I HAVE TO WAIT UNNTIL THE CANCER PASSES AND THEN FLY TO L.A (BECAUSE NOW I CANT DUE TO QUIMIOTHERAPY) AND START THE TREATMENT OR IS THERE ANY OTHER OPTIONS?
I'm sorry for my many questions but for what I have read I think dr.Brizman is one of the greater experts in IC, and I think that If I can be cured of cancer i can be cured from IC too, and she is the only one that with her blogs give me some hope in that issue, in the distance. I only want to be the normal happy girl from Barcelona that I used to be before cancer and ic. Please don't ignore me and don't say that's nothing for me to do.
And sorry for my level of English, it's not the best I know, but I'm learning so much with this website.
Thank you very much
god bless you
Nuria:
Nuria:
Lo site to que esta sufriendo tanto y bienvenidos a este forum.
. These questions are way beyond my ability to answer but I can say that IC does wax and wane and it does hide out in the body and sometimes when other things flare up it settles down sometimes.
In my view, Dr. B is the expert in treating IC. I know some of her patients have had it but I don't know specifics.
Best of luck to you.
Bonnie
Nuria,
Nuria,
Please do call Dr. Brizman's office next week so you can have at least some of your questions answered and determine if you will be a good candidate for treatment with Dr. Brizman. As patients, we are not qualified to address your questions. The protocol re-balances your body in many ways. So if you have the all-clear from cancer treatment, then perhaps you can treat with Dr. Brizman. I know of at least one other patient that posts here with some regularity that has had cancer and IC. Perhaps she will reply to your post.
Warmly,
If we don't excel at health, the only other option is disease.
Gracias!! Bonie and Mimi.
Gracias!! Bonie and Mimi.
I send this in e-mail too, maybe they answear to me I hope!!! I feel so young and so alone in the world with this two illness and it's why I ask. I will try to call buy I think it's better if they write to me because I don't speak so well, and due to quimio I only had one neuron working jejeje
Wish me good luck,I'm very positive I know I can with cancer and with ic.
Muchos besos a las dos y gracias por contestarme tan rápido, esas cosas le hacen creer a una que el mundo no está tan loco como parece y que queda algo de esperanza.
Best of luck - I wish I could
Best of luck - I wish I could speak your language better. Sending you strength and prayers!
Thank you deir!!!! I will
Thank you deir!!!! I will send to you my positive energy too.
Besos
Hi Nuria,
Hi Nuria,
I'm sorry to hear that you are going through both chemo and IC. I couldnt imagine that on top of IC, since IC is so draining at times. But like the other ladies have mentioned, perhaps you may want to call the office on Tuesday and see what Dr B reccomends. I speak fluent Spanish (my parents are from Ecuador) but I never learned how to write it well. Its very choppy although I do try : )
If you would like to skype, that would be great and you can ask questions in spanish if you would like. I have been a patient with Dr B for 1 1/2 years and yes it is very hard at first but it does get better. You are so positive which helps tremendously. Feel free to look my name up under Tommygurl and you can read about my experience with Dr. B's protocol.. I am very far from being better but I function on a daily basis, some days well and some days so so. It all depends if I stick to the diet and how I handle stress.
Best of luck to you.
Adriane
Hi Adriane I would love it!
Hi Adriane I would love it! but unfutunely this Tuesday I cannot be there because I will pass all day in the hospital. I'm in the middle of chemotherapy or quimio ( en castellano jejej) and this Tuesday is the crucial day of my treatment because they do a test to me I don't know the name in english in spanish we call it PET. I will know this day if the treatment is working for me. I think that I working because I'm so mu better and my lymphoma that unse to be 10x7 cm dosen't appear in the radiografia.
Mabye we can do it next week, 2 o 3 days afther quimio, when I will be alive again. ( In Frday I have my 5 cicle of quimio it will be my 9th dosis) and the following 3 days i'm totally off jejeje.
Asi que la cosa está complicada, si pudiera escribirme creo que seria lo mejor, de todos modos gracias Adriane por tu ayuda! que bien que hables castellano, yo el inglés lo entiendo casi todo por haber estado 1 mes de intercanvio en Irlanda pero escribir y hablar ya es otra cosa, debo parecer un poco tontita aunque me esfuerzo todo lo que puedo.
Besos
Hey love!
Hey love!
Welcome to the site. I'm so sorry you are dealing with these two illnesses together, and at such a young age. I'm 25 so I can imagine how awful you feel at being so ill in your youth. I just figure, this way we can get all the sickness out of us when we're young and we'll know how to lead healthier lives when we're healed.
IC does tend to go into remission sometimes when people take antibiotics for a while. This happened to me as well when I had H-Pylori and took a strong dose of antibiotics. I think it's because a lot of IC is a bacterial imbalance. This could explain why Augmentin helped for a while. On the other hand, a lot of times antibiotics make hte IC symptoms worse. Ugh, so complicated.
I just wanted to write and wish you luck :)
Lots of love
Hannah
Hannah, thank you so much!!!
Hannah, thank you so much!!! This illness is strange really, but you have to think that if people can pass and survive cancers, and belive ,me I meet people in the hospital that survive 4 or more cancers when the doctors gives theme 3% percent of possibilities of surviving, I relly know that we can get cured.
I think I will have to write a book with all my experiences jejejeje
Hi Nur,
Hi Nur,
Let's try to see if we can speak on a weekend if that works I hope you are feeling ok?
Adriane
Nur, let us know how you are
Nur, let us know how you are doing!
If we don't excel at health, the only other option is disease.
Hi Mimi , I will know the
Hi Mimi , I will know the results of the tests on Friday, tomorrow another day in the hospital and more tests, when this will be finish I will never go to an hospital again, oh my good, it seems that I live there!!
Adriane, I don't know what will be the day of the chemo this week because we are waiting for the tests before doing something more: stay with the treatment or go for another one. I will tell you something on friday, maybe this weekend I can speak with you but I don't know until that day. My life is soo complicated ejjejejej kissses and thank you!!!
Hi girls!
Hi girls!
I have very good news!!! In the middle of my treatment of chemotherapy, the tests say that my hodking lymphoma is 60% reduced. This is very good news because my doctor says that it usually reduces only 20% and they consider it good news so imagine my improvment. She was so happy, smyling, and she usually shows no emotion at all.
I had tumors in mediastine ( 12 cm), nek, spleen, lung and stomach.
In the nek, stomach and spleen they have disapeard. In the lungs are millimetric, and in the medisatisne now is only 2,6 cm.
Today they have put me my 5 cicle of chemo I'm totally off but happy.
My ic is so so, yesterday I had no symptoms, today I have a little urgency.
I will finish my chemo tretment in first week of agoust in september I will have 1 month of radiotherapy, the I will have to wait two moths to know If I'm completly clean. What a journey!.
Adriane, maybe we can talk on
Adriane, maybe we can talk on sunday, that I will be a little better ( I wish), if you can't I can on Tuesday too.
Kisses
This is awesome news! Hope
This is awesome news! Hope everything continues to go well!
WOW NUR! Great news!!!
WOW NUR! Great news!!!
If we don't excel at health, the only other option is disease.
Thank you girls!
Thank you girls!
Hola Nur,
Hola Nur,
I just saw your post today. That is such great news! I am very happy to hear. Yes, tomorrow is fine. The weekends are best as I work full time. please send me an email and we can figure out a time to skype :)
akieckhafer@live.com