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So I thought I was turning a corner. I had sinficant relief for 24 hours. Now it is BACK with a horrible, horrible vengeance. I just don't understand. I guess it is possible that whatever herbs she was giving me now need to be reversed? God this is worse than the onset of my IC by far...
Thanks for your thoughts...
Hey there,
Hey there,
if this is a flare it will pass. For me hot showers and a heating pad works most of the time and if it is really to bad I do take something for the pain.Do you know if there is a bacteria involved because then Dr. Matia will probably suggest a UTI protocol.
In the meantime try to convince yourself that whatever is causing you so much pain right now itt will get better. If it is a bad reaction to a new herb for me it will always take a couple of days to stabalize again.
Thinking of you and sending lot of hugs. It will get better in time.
Thank you Anneke!
Thank you Anneke!
I have been dreaming of taking something for the pain, but not sure what it would be. I don't have anything in the house, really. There was a time tonight I was thinking about going to the ER, but I don't want a bladder instillation, and I don't think they even do those at the ER!?
Goldenseal was working great for about 4-5 doses, so I cant imagine it turned that quickly on me. I am starting to think I should not have drank that 1/2 cup of tea this afternoon and (I know, I know, stupid, but I had been tolerating it!) lemon I had on my chicken tonight. I guess I'd best go back to list 1/2 until I am feeling much better. Drinking water helped a bit, but there is still pain so I am wondering if I should take another dose. Sigh. I wish I could speak to Dr. B!
If we don't excel at health, the only other option is disease.
Mimi, I´m so sorry the pain
Mimi, I´m so sorry the pain came back. Same for me. Since this morning urgency and pain are way up and I don´t know why.
Lemon? Uff. If I were you I would really stick to List 1 and 2 right now. And drinking more warm water. Thats what I do.
Yes Annika, thank you! Back
Yes Annika, thank you! Back to list 1 and 2 for sure!! And tons of water!
Hope you are feeling better soon. I need to go back to keeping a diary as I think that helps. It helps you to see progress too.
If we don't excel at health, the only other option is disease.
Is your urgency way up? I
Is your urgency way up? I never understand the difference between the terms urgency and frequency. I just know, that I always have the srong urge to pee, even though my bladder is empty. And this is driving me nuts. Its worse than pain and there is nothing I can do about it. Ahhhh! It got actually worse since I´ve started the diet. Only the spams improved.
I have that now in the flare,
I have that now in the flare, except on top of it there is burning. The frequency and urgency improved a good chunk for me in the first 4 months. Then it would just come and go around ovuation, and after I drank coffee. Sometimes I will have a faint feeling that I need to pee, even though I don't have to (someone called this background urge) and I could ignore that and it would pass.
With the flare it is crazy, crazy burning, frequency.
If we don't excel at health, the only other option is disease.
The backround urge I feel all
The backround urge I feel all the time. Always! But I´ve noticed that lately the urge is way up after bm in the morning. Then I take a hot bath and drink a lot of water and it slowly calms down again. Not always, but many times. This is so draining on my nerves and I hope so much that Dr. Brizman will be able to help me, because at the moment I cannot take care of myself at all. I´m totally bed ridden. Uff! How do all of you manage with your children? I couldn´t even imagine.
Mimi are you sure there is no
Mimi are you sure there is no bacteria, sometimes for me the test results were negative but a couple of days later testing again for a second time it became obvious there was a bacteria causing the pain.
For me iif the pain is really bad with terrible frequency there is almost always a bacteria lingering there. Also with a bacteria in the bladder for me there is always some itching in the bladder as well.
Mimi,
Mimi,
I'm so sorry you are in so much pain. I think it is really wise that you have decided to stick to lists 1 & 2 until this passes. Going back to journaling for a while is also an excellent idea.
I am praying for you!
So sorry Mimi!:( I do hope
So sorry Mimi!:( I do hope things are starting to settle! This will pass! Saying extra prayers!
Drink yourself silly with
Drink yourself silly with water girl! Why can't you talk to Dr. B? This will pass, my heart goes out to you! You're a warrior!
Drink yourself silly with
Drink yourself silly with water girl! Why can't you talk to Dr. B? This will pass, my heart goes out to you! You're a warrior!
You guys are awesome!
You guys are awesome!
Flare is starting to calm down but still some burning and bladder feels raw. Who would have thought a little benzol peroxid (well, maybe a lot and that was my problem) would cause this???
Dr. B has been emailing me at least two times each morning with instructions so she has been trying to help me calm things down. She said it would take a week to get back to baseline and that she has seen this happen before with BP.
Thanks so much for all of the hugs and support!!!!
If we don't excel at health, the only other option is disease.
HI Mimi- I had a horriible
HI Mimi- I had a horriible flare from accidentally touching vit e oil for a minute. Unbelievable how sensitive we are!!!! When I burned myself really bad last year I took Motrin- the first time anything like that has touched my body in more than 2 yrs. Of course, the next day- terrible flare. I think the treatment starts cleaning you out and for a time, we are more sensitive to things.
So glad to hear you're
So glad to hear you're feeling better, Mimi!
Thanks everyone. Still
Thanks everyone. Still recovering and having some pain. It has been frustratingly up and down. I am taking out my last acne product. Dr. B really wants me to start healing my acne from the inside out. But short of removing dairy and gluten, I am not sure what else I can do. From the limited data I have hear from reading the threads and talking to one patient done with treatment, she has had mixed results with helping people with acne it seems. I think some people have to be extra vigilant in their diets to see any progress. Sigh. Thanks for your support. I pray I am out of the woods soon on this flare, but not there yet.
If we don't excel at health, the only other option is disease.
Hi Mimi, I am going through
Hi Mimi, I am going through the same thing right now and it is always hard to take. I have been going through the same thing since last week and that was after a good 6 weeks of very low symptoms. It could be yeast die off too. The yeast creates alot of toxins that is very aggravating to the bladder. If it's not bacteria, then it probably has something to do with that. The bladder doesn't flare for no reason. Going back to simple foods is probably a good idea. Maybe stopping the coffee would help too.
It will get better again.